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Type: Posts; User: shamrock88

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    Help with new computer

    I am a high level quad C4 and use my desktop PC significantly daily. With a gooseneck microphone and DragonDictate along with Know Brainer 2011, I am able to utilize pretty much everything by voice...
  2. I have a resistant Pseudomonas infection, and...

    I have a resistant Pseudomonas infection, and fortunately I'm not insensitive as some people, I can tolerate a higher percentage, and generally keep 50 mL in my bladder for one hour twice a day. You...
  3. I have been using these products for many years...

    I have been using these products for many years since Leila (Suzanne), 1st started posting regarding them. I haven't kept up on the exact breakdowns of ingredients. But had some time today and the...
  4. thanks! I was getting the product on subscription...

    thanks! I was getting the product on subscription 15 % off, for around $22. That stopped in June, as they discontinued it in my monthly subscribe save. I completely forgot about Microcynah? Is that...
  5. Where is the place to get Vetericyn these days?

    Was getting a pretty good price on Amazon on automatic shipment, but it's no longer available.
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    thanks for the update, I'm glad you found...

    thanks for the update, I'm glad you found something that's working for you. Very disheartened to hear the phage was ineffective. Great to hear you have a oral antibiotic that is effective in Cipro. I...
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    Apple voice control

    I'm a C4 quad 33 years. Was watching the Stanley Cup and I saw an commercial for the Apple voice control, which will evidently be coming out on IOS 13. I've never used an Apple product, use Windows 7...
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    just checking in seeing out you were progressing,...

    just checking in seeing out you were progressing, hope it's going well. Give us an update If you can when able.
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    I get Enterococcus as well as a secondary...

    I get Enterococcus as well as a secondary infection, with Pseudomonas by far being the dominant infection. Most of the time the enterococcus infection I get can be cleared with macrobid. Can I ask…...
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    good for you, I have been thinking about this a...

    good for you, I have been thinking about this a good part of the day. Good for you for taking your health and well-being in your own hands. I know exactly where you stand, I've been dealing with it...
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    thanks for your post, I'm definitely intrigued...

    thanks for your post, I'm definitely intrigued and interested with your results. Are you saying they cannot ship the product directly to you? I don't know any Canadian citizens. You said your dose...
  12. Yes, I concur biofilm is a hard nut to crack,...

    Yes, I concur biofilm is a hard nut to crack, I've been battling with it for 30 years. Besides phage , I have done virtually every other therapy that there is. As I said, I've seen at least 10 ID...
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    I am absolutely fascinated by this post. I read...

    I am absolutely fascinated by this post. I read of that company in Georgia, several years ago, I knew there would be no way I could get there. I never imagined they did things through the mail. I'm...
  14. You are correct, I'm not sure if it reaches the...

    You are correct, I'm not sure if it reaches the bladder either, but willing to try. I remember Susanne quite well and spoke to her often Back in those days about Microcyn. I wasn't aware she wrote a...
  15. Constipation is definitely caused by opiates. I...

    Constipation is definitely caused by opiates. I feel your pain brother, I've been at this myself since June 1986, C4. Being as brief as I can, I would try to cut down the opioids, take Miralax, a lot...
  16. thank you for the reply. Yes, I have definitely...

    thank you for the reply. Yes, I have definitely consulted ID doctors. I live outside Boston and over the years, have met with ID doctors at Boston Medical Ctr., Brigham and women's, Beth Israel,...
  17. thank you so much for the reply. I have spent...

    thank you so much for the reply. I have spent many hours, actually countless hours over the years reading about pseudomonas, etc. I have had these resistant UTIs for probably 25 years. I live with...
  18. Has anyone ever used Biofilm Defense or Interfase Plus ??

    I am a C4 quadriplegic injured 33 years with a long history of resistant Pseudomonas infections. I've done absolutely everything, and still struggling. Recently read about these two products...
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    Hello Guys, thank you for the responses. I have...

    Hello Guys, thank you for the responses. I have Samsung smart TVs, and Amazon Echo. I thought with the Alexa app, and the Samsung Smart Things App, I would be able to at least turn the TV on, shut it...
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    Linking Alexa to Fire TV

    I recently tried to link my Alexa to my fire TV stick on my Samsung TV, via Smart Things App and Alexa App, on a android phone. The only thing you can do consistently is shut the TV off. Very...
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    thank you again old-school, much appreciated....

    thank you again old-school, much appreciated. Sitting here in Massachusetts with 17 inches of snow, I sure wish I had moved to San Diego. LOL
    all the best, thanks again!
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    thanks so much for your response, greatly...

    thanks so much for your response, greatly appreciated. Did you have any symptoms prior to being diagnosed? I really have had no symptoms best I can tell, although I am a high level quad. Very...
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    thank you for responding, it sounds like I have a...

    thank you for responding, it sounds like I have a similar path. Was spotted on my annual ultrasound as well, I have had a CT scan, and have been scheduled for a similar scan with contrast. Dr. told...
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    Kidney cancer question

    Has anyone had any experience with kidney cancer? I'm a C4 quad (34 years). I've had kidney stones removed twice over the years, so every year I have a renal ultrasound to check for stones. On my...
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    Yes no changes in medications or diet. Guess I'll...

    Yes no changes in medications or diet. Guess I'll have to give the doctor a call. Thanks!
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