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  1. Thread: Ampyra (4 AP)

    by filbert2
    Replies
    11
    Views
    12,838

    Ampyra (4 AP)

    Dr. Young,
    I have read so many posts over the past years about Fampridine,now called Ampyra. I have asked several of my doctors (primary doctor, physiatrist & neurosurgeon) to prescribe it to me...
  2. Environmental Control Unit (ECU) - any recommendations?

    I am in the process of building an accessible house. I am a C 3-4 quad. someone recommended that I purchase an environmental control unit. although I will have home health aides, any thing that...
  3. fingers crossed!

    fingers crossed!
  4. Replies
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    29,906

    what an amazing week!

    I just returned home from my trial week at SCI step. What an experience! The staff is extremely dedicated, compassionate and knowledgeable. It was honestly the first time since the accident I felt...
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    I will be November 4 -- 10th! I cannot wait! ...

    I will be November 4 -- 10th! I cannot wait!

    Michelle,
    have you received everything?
  6. http://www.wivb.com/global/story.asp?s=7059077 ...

    http://www.wivb.com/global/story.asp?s=7059077

    Dr Cappuccino says, "We may be wittnessing a minor miracle." He said that because, today, Kevin Everett was able to voluntarily move his arms and...
  7. breaking news! Doctors say may be a minor miracle!

    I live in Buffalo and just watched a short segment that was braking news. He is now voluntarily moving both his arms and legs!
  8. Replies
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    29,906

    hopefully!

    I will not find out of the results until mid to end of November. Isn't that ridiculous! 4 months waiting period, I am just enjoying time to myself again and catching up with friends and family that...
  9. Replies
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    perfect way to start back up!

    Michelle,
    I just recently took the New York Bar examination and finally have free time to myself again. I would love to get back on an exercise regimen and feel this would be a great opportunity to...
  10. I know it does not illuminate the need for...

    I know it does not illuminate the need for intermittent catheterization, I'm just wondering if it would allow me to go longer between ic or even reduce my bladder spasms. I was just looking into...
  11. I am extremely motor incomplete but unfortunately...

    I am extremely motor incomplete but unfortunately not in my upper extremities. My arms are pretty useless.
  12. Interstim by Medtronic

    Does anyone have one of these? Does it work?

    http://www.medtronic.com/neuro/interstim/index.html
  13. Also give me your level of injury. If only I had...

    Also give me your level of injury. If only I had my arms! grrrrrrrrrrrrrrrrrr
  14. Bladder augmentation, superpubic, ic, Foley???

    To all the spinal cord injured girls out there, how do you manage your bladder? I have been hurt for almost eight years and am extremely apprehensive about going through with a bladder surgery. I...
  15. Good luck with everything, hopefully he can beat...

    Good luck with everything, hopefully he can beat this! If this is who I think I went to therapy with back in 1999 at the Shepherd Center he is one tough and determined guy.
  16. Thread: segway?

    by filbert2
    Replies
    15
    Views
    9,346

    segway?

    Does anyone own a segway, or has anyone tried one? I would love one but want to make sure it will really balance me.
  17. Thread: phase 3 hp184

    by filbert2
    Replies
    11
    Views
    3,989

    is enrollment for the phase three clinical trial...

    is enrollment for the phase three clinical trial already complete or are they still accepting applicants? I missed the phase two trial and do not want to miss out on it again.
  18. Thread: Hp 184

    by filbert2
    Replies
    1
    Views
    1,141

    Hp 184

    Does anyone know if or when they are going to start a phase three trial for HP 184? I know the second phase was completed and have yet to hear any information for phase three. Dr. Young, have you...
  19. I sent her a message so hopefully I will hear...

    I sent her a message so hopefully I will hear back. I have been out of the loop for a while but hope everyone is doing well!
  20. Replies
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    I'm so in this year! Let me know what I need to...

    I'm so in this year! Let me know what I need to do.
  21. Replies
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    4,060

    Messed up system= why should I work?

    As everyone knows the government wants and pushes spinal cord injured people to work or go back to work, right? So why is the system so Fucked up?

    Does this make sense to anyone and is anyone...
  22. Replies
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    5,613

    Insurance coverage on equipment.

    It has been way too hard lately to get to therapy because of my crazy school schedule. So Ihave been doing most of my work out at night if I get a chance. im trying to get my insurance to cover a...
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    i wear whatever the hell i like ex. bikini,...

    i wear whatever the hell i like ex. bikini, skirts, tight shirts, anything i woUld pre SCI! the only thing i'm self conscious of is my toes an feet, so i miss my cute open toed sexy sandals, my feet...
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    Awesome, thanks!

    Awesome, thanks!
  25. Replies
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    Happy birthday!

    Happy birthday!
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