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Type: Posts; User: Kitten

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  1. Replies
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    5,456

    I have had good results with reduced night time...

    I have had good results with reduced night time spasms with 4AP, maybe that would help with clonus too. I never had this problem when I was walking full time with crutches but after a few years in a...
  2. Thread: Bowel issues

    by Kitten
    Replies
    13
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    2,732

    Have any of your medications changed recently...

    Have any of your medications changed recently around the time that your bowel program started producing lackluster results? I find that my bowel is really sensitive to my meds and have to really pay...
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    I have the same problem with lower back pain and...

    I have the same problem with lower back pain and tightness. I don't know anything about the cold feeling though because I don't have that but I have lots of weird sensations that don't make sense...
  4. I think a limb is much more complicated than the...

    I think a limb is much more complicated than the spinal cord, there are many more cell types involved and they need to be oriented in physical space in a much more complicated way then nervous system...
  5. Research Results

    To build on what Wise said, the trials going on now are only addressing part of the problem with SCI and that is the nerves need to be regenerated. Once regeneration occurs the nerves need to be...
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    5,565

    Tethering

    I have suffered from tethering myself and yes, it is something that keeps reoccurring, at least in my case. Luckily though my first surgery to remove the tether left me stable for 9 years before it...
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    2,037

    Just by looking at the results it looks like...

    Just by looking at the results it looks like there might be some modest improvements in motor control. The numbers for cord blood, EPO, and rehabilitation look highest but I can't tell without doing...
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    4,013

    Thanks for the considered reply! Posting photos...

    Thanks for the considered reply! Posting photos is a great idea, then you can see exactly what I am talking about with the chain. I understand what you mean by cross chaining, I used to race bicycles...
  9. Replies
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    4,013

    Evaluating Used Top End Excelerator XLT Pro

    I am looking at a used Top End Excelerator XLT Pro to see if it will work for me and have a couple of issues to work out before I can buy it. One, my knees keep locking which is a little...
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    1,068

    Yes, fortunately there are a few groups near me...

    Yes, fortunately there are a few groups near me that work with neuroradiology and I am in the process of consulting with some different doctors. I get the feeling that the doctors really are hesitant...
  11. Replies
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    1,068

    Treatment options for AVM

    I have an AVM in my spinal cord at the T8 level that is actively bleeding off and on and I would like to do something about it before it decides to hemmorhage completely. The options that I have...
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    2,249

    Don't forget that Dr. Lima is operating in a...

    Don't forget that Dr. Lima is operating in a clinical trial environment and feels that he needs very strict controls on the test subjects to show that his procedure works. When the cure is available...
  13. Replies
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    1,177

    Poll: Scientist salaries

    Many people here believe that researchers are milking their grants and are not really interested in finding a cure. Out of curiosity, how much money do you think the average research scientist makes?
  14. Replies
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    1,037

    You might try calling up Craig's main switchboard...

    You might try calling up Craig's main switchboard number on their website and ask for the outpatient clinic for any advice they can give you about visiting the hospital. They are all very caring at...
  15. Replies
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    18,217

    Yes, I received SSDI for a full 12 months during...

    Yes, I received SSDI for a full 12 months during my trial work period after I started making more than the cutoff.

    "The prospects for a cure today are better than they were yesterday."
  16. Replies
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    18,217

    That's how it worked out for me. "The...

    That's how it worked out for me.

    "The prospects for a cure today are better than they were yesterday."
  17. Replies
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    18,217

    I was overpayed for a year before Social Security...

    I was overpayed for a year before Social Security caught on. But, I was making more money than the cutoff so it was a true overpayment. I was able to work out a deal where I made small payments every...
  18. Thread: 3rd Party

    by Kitten
    Replies
    29
    Views
    3,576

    "We'll never be as we were before the injury"...

    "We'll never be as we were before the injury" sounds very discouraging. In my opinion many people take this to the extreme and think that there is no hope for the cure, and even when the cure does...
  19. Replies
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    2,853

    My question about the 4ap trial for SCI is why...

    My question about the 4ap trial for SCI is why wasn't there a requirement for participants to stop taking antispasmatics? Since they were looking for the action of 4ap on spasticity wouldn't it be...
  20. Thread: AFO'S

    by Kitten
    Replies
    6
    Views
    1,807

    I walk all the time. But I also spend most of my...

    I walk all the time. But I also spend most of my waking hours in front of a computer so I don't really do much more than sit anyway. Are you having trouble with anything in particular? If you use...
  21. Thread: AFO'S

    by Kitten
    Replies
    6
    Views
    1,807

    Were your AFOs molded to you? Or did you get...

    Were your AFOs molded to you? Or did you get someone's hand-me-downs? My molded AFO fits me well, but I do have to buy a size larger shoe to accomodate it, and there are some rivets in it that I have...
  22. Thread: Bladder return?

    by Kitten
    Replies
    7
    Views
    2,889

    The return of bladder function for me started...

    The return of bladder function for me started with painful bladder spasms that eventually led to leakage of urine. A normal bladder holds around 500 mls but as soon as I get to 200 mls the spasms hit...
  23. Replies
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    4,929

    All the more reason to get the doctors and...

    All the more reason to get the doctors and therapists to stop telling people they will never walk again. When the injury is still new is the time to educate people that there is hope and the cure is...
  24. Replies
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    4,440

    One other thing I had to do to get onto SSDI and...

    One other thing I had to do to get onto SSDI and then Social Security was to make sure all of my assets were below a total net worth of $2000. Since I didn't own anything except my truck and cashed...
  25. Replies
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    I am an incomplete T10 and have very good control...

    I am an incomplete T10 and have very good control in the right leg but not so good in the left. I use crutches and an AFO on the left foot to keep my foot from dragging so much. Sensation is about...
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