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Type: Posts; User: mlkost

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    I recommend Dr. Patrick Shenot at Thomas...

    I recommend Dr. Patrick Shenot at Thomas Jefferson 811 Chestnut St. Philadelphia. I am paralyzed 13yrs from complete SCI. Been to many Urologist thru the years. Dr. Shenot specializes with SCI. ...
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    Hi Miss Sept. & Brenda. The clinical trial I...

    Hi Miss Sept. & Brenda. The clinical trial I participated in is now closed. I received a letter over a year ago stating that all research and studies from this trial were complete.
    However, I was...
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    I just had my 2nd bladder surgery @ TJU. For...

    I just had my 2nd bladder surgery @ TJU. For urology issues Dr. Patrick Shenot specializes with SCI and neurological care...He is great. As far as insurance I am covered by medicare. The only thing...
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    Also

    I will send however many you need. It could be by single kit or by case.
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    Intermittent Catheter Insertion Kit

    I have cases of "Rusch" brand Intermittent Catheter Insertion Kits. If anyone needs them you can have them. Just pay shipping from zip 17901
    *the pic attached is not the same brand name but the...
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    Afraid I was Suckered

    I found a Permobil C300 on Craigslist of course it sounded like a deal ... elderly man used it for seven months before passing away and then it sat for 2 years. It only needed batteries....
    I went...
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    answer to your questions

    I feel so frustrated at times because of the leaking. I always was an impatient person. I was hoping having a larger bladder would stop the bladder spazms and prevent the leakage. My Dr. said to be...
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    1 year later

    Well surgery went well. They staff was very helpful and nice. The worst experience during the whole ordeal was that Thomas Jefferson Hospital, Philadelphia is not accessible for handicap patients....
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    Van ?

    Where are you located? What state?
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    biopsy & surgery delayed

    Hello, my biopsy was delayed until 10/25/07 because the lab (Tengion) was not accepting tissue for a few weeks. I was told prior that they were cleaning the lab and they do not accept new tissue...
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    Latest update

    Hello all, I completed all testing with success. I go for my bladder biopsy 10/4. Then they will send biopsy to lab and grow the new bladder, this will take 6 to 8 weeks. I know when I first...
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    Update : Neobladder Construct

    Hello all, I went through all the testing required for the study I am waiting now for the appt. to have the biopsy taken. I know I first posted it would take 2 weeks to grow the new bladder in a...
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    Clinical trial for women with SCI (bladder)

    I went to a urologist in Philadelphia last week for incontinence. He asked me if I would like to be a part of a clinical trial he will soon be starting. I am definitely going to participate. He...
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    buy a can of fix a flat works great if the hole...

    buy a can of fix a flat works great if the hole is not big
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    check out your local LIONs club, rotary, they...

    check out your local LIONs club, rotary, they sometimes have loaners for a day out. Also, I don't know about your area but in my area my local UCP (united cerebral palsy) refurbishes all types of...
  16. Thread: alcohol wipes

    by mlkost
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    alcohol wipes

    If anyone needs alcohol wipes. The kind Doctors use to wipe the skin before a needle shot. I have too many boxes of them. If anyone needs them let me know. I will be happy to send them to you.
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    van door problem

    I have a 1999 ford Windstar (IMS). The automatic door is operated by a cable. The cable snapped and broke. I now have to close it manually. I called the dealer to get it repaired, they require to...
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    What kind of powerchair do you have?

    I'm still in the market for a new power wheelchair. I would like to get a stander with a seat that also elevates. I currently have a permobil but had that many problems with it I can be the icon...
  19. tilt

    I am in my power chair (permobil K2000) anywhere from 14 to 18 hours a day. I don' tilt often maybe once every 2-3 hours if I remember. I have been very lucky I'm SCI almost 6 years and no skin...
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    I have E&J

    I've been using mine for 5 1/2 yrs. I had to get the front caster wheels replaced. Other than that, it has been fine.
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    Haven't heard anything. I tried in May and was...

    Haven't heard anything. I tried in May and was denied.
  22. Thread: spinal Hernia

    by mlkost
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    spinal Hernia

    I'm not sure if "care" is the correct category, however a friend of mine has a hernia in the lumbar region of his spine. He is having paralysis in his one leg. I was told the hernia is wrapping...
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    It sucks to wake up!

    Did you every have a dream so vivid when you wake up you question yourself if it really happened or not? In my dreams I am always walking. There are dreams that are weird with me in the chair. The...
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    Sounds like your friend needs some! Go by the...

    Sounds like your friend needs some! Go by the Dr. not your friend. I assume she would say you are nuts if you see a psychiatrist too? Not true.
    ARe you Moody?, Crying over nothing, get upset...
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    GallBladder Anyone?

    Last week (7/27) I was sick to my stomach, vomiting from what I first thought was a bad salad I ate. Went to ER expecting to hear food poisoning. They told me I had pancreatus infection and...
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