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Type: Posts; User: Lemur Wheelz

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  1. Replies
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    I love your gargoyles! Great work! 😁 I've just...

    I love your gargoyles! Great work! 😁 I've just started painting again. I have limited hand function with poor dexterity. I didn't think I could paint again, until I tried. 😉 I push the brush into the...
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    I am very sorry you are struggling so much. As...

    I am very sorry you are struggling so much. As I'm sure you know and others have said, you can certainly build up tolerance to meds of any kind, especially ones that work on the GABA receptors. It...
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    I am so happy to hear about your progress! My...

    I am so happy to hear about your progress! My father has sleep apnea as well. He found the CPAP made a huge difference too, although he does still take some meds for sleep; I know he was able to cut...
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    Thank you. I appreciate you sharing your...

    Thank you. I appreciate you sharing your perspective. I'm in a similar boat when it comes to ADL's; if I do laundry, I don't have the energy to bathe. It helps to be reminded that getting more help...
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    I tried it and all it did for me was make me...

    I tried it and all it did for me was make me nauseous. I found no pain relief, no help with seizures, nothing. However, I did a trial run with MMJ and I was happily surprised. Not only did it help...
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    I am glad you made some improvements, but I am so...

    I am glad you made some improvements, but I am so sorry to hear he's had more falls. Solutions can be challenging to find when you have a lot of issues to consider. I will keep my eyes open for...
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    I may need to upgrade to a PCA; I currently have...

    I may need to upgrade to a PCA; I currently have a home health aide come once a week. Bathing is an issue. I'm working with my care team on this, so I'm not looking for help with how to choose the...
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    It feels good to connect with someone who gets...

    It feels good to connect with someone who gets it! Though of course, I am sorry you have to go through this too. I used to have to massage my belly from gas. I would do mini crunch movements in bed...
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    I will talk to my GYN. She's a new doc for me and...

    I will talk to my GYN. She's a new doc for me and as I mentioned, I have a hard time with doctors. (I have a good core team I see regularly and my last GYN visit was fine.) It's something I'm working...
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    I've never used Instead; maybe I should look into...

    I've never used Instead; maybe I should look into that. Mine is reusable and it has a ring on the stem to assist with removal. I'm having difficulty manipulating it as my fine motor function isn't...
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    Surgery complications worry me, but hearing your...

    Surgery complications worry me, but hearing your feedback, I'll investigate. How was the recovery? Long and painful? Did you lose trunk strength?
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    I am sorry you feel that way. It was through that...

    I am sorry you feel that way. It was through that organization I discovered GLoves for Life which changed my life for the better. Everyone has different experiences. I know they are conducting on...
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    I saw her early this year, but I forgot to ask....

    I saw her early this year, but I forgot to ask. It was a hard appointment. I have trauma issues related to docs. The thing with meds is I'm super sensitive to medication. I'm on a cocktail now that...
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    I hear that. Sometimes a good cry can release...

    I hear that. Sometimes a good cry can release pent up stuff. I used to know a girl who screamed when she needed to let out frustration or hurt...I still do that too. Whatever helps as long as it...
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    Menstruation contemplation

    Hello! I am fairly new around here. I looked for a post to answer this question, but I've not had any luck. I have a progressive neurological illness along with a plethora or other issues. I cannot...
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    Have you thought about contacting the Christopher...

    Have you thought about contacting the Christopher and Dana Reeve Foundation? That might be a good place to start. I would also contact the Mayo Clinic to see if they have ideas or if they'd be...
  17. I was only able to access the beginning of the...

    I was only able to access the beginning of the video, but I liked what I saw. It lit a fire in me to get in touch with a local Buddhist friend who teaches meditation. We have been out of touch for...
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    Your pictures are lovely. When I first came...

    Your pictures are lovely. When I first came across this thread, I thought it was for everyone to post life pics. I tried, but I couldn't. It's probably best, because I would have felt completely...
  19. Forestranger52: thanks for the tips and...

    Forestranger52: thanks for the tips and suggestions. I appreciate it!
  20. Thank you for the pic!! I don't know why I...

    Thank you for the pic!! I don't know why I couldn't access the site before; we have poor service here.:thinking:
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    I am so sorry he had such a slew of seizures...

    I am so sorry he had such a slew of seizures landing him on the floor. Head injury is a major concern as you know and it can, as you said, trigger more seizures. One option I looked at for a while...
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    Yes. I do have pain in my lower abdomen during...

    Yes. I do have pain in my lower abdomen during bad times. I've brought it up a few times over the years; I'm always told it's gas. So, for me when that happens, I push aside worry of worse issues,...
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    Has anyone ever mentioned costochondritis to you?...

    Has anyone ever mentioned costochondritis to you? It's inflammation of the chest cartilage. I'm not qualified to diagnose, but I've got it and it can present as you described. I'm actually surprised...
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    Wow! Technology is amazing sometimes. It looks...

    Wow! Technology is amazing sometimes. It looks like a nice design, though it needs some adapting for those of us who require extra help. It definitely has possibilities. It WOULD be great if costs...
  25. Poll: My situation sounds similar to yours. It saddens...

    My situation sounds similar to yours. It saddens me to hear how many people lose connections or cannot make new ones. As someone else stated, it's not easy for someone to call up and ask if we want...
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