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  1. Replies
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    I have not seen or spoken to him, it has always...

    I have not seen or spoken to him, it has always been the nurse who programs the pump that I've seen and she doesn't see how I could have a leak this far out from surgery....
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    Thanks KLD. I should have clarified that my...

    Thanks KLD. I should have clarified that my neurosurgeon is the one who did the initial implant. If the catheter slipped, wouldn't that show on the X-Ray he ordered?

    The neurosurgeon is away until...
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    CSF Leak Possible?

    Hi All,

    I had a Baclofen pump placed April 8 2019. I had not have any issues with a leak immediately post op.

    Over the last month or so, I have been getting really bad headaches to the point...
  4. Thanks KLD.. they did X-Rays today and they're...

    Thanks KLD.. they did X-Rays today and they're saying everything is still placed where it should be; they are satisfied so Neurosurgery is referring me back to Neurology for Migraine management.
  5. Baclofen Pump and CSF Leak 6 Months Post Op

    Hi Everyone,

    I have had a Baclofen pum for almost 6 months to the day.. In the last week to 10 days I have been having WICKED headaches. I am on Lyrica for migraines and assumed it was migraines....
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    Thank you all for your responses, I guess what...

    Thank you all for your responses, I guess what I'm not understanding is, if his urethra was too swollen to get to the stone last time, why would they get to it now? Is it because he hasn't passed a...
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    No, they won't do it because the stone is too low...

    No, they won't do it because the stone is too low down? My question is what makes them think they;ll be successful this time if his urethra was too swollen to do the procedure last time?
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    That makes sense. But if they tried to do it last...

    That makes sense. But if they tried to do it last time and everything was too swollen, why would they be able to get it now?
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    Kidney Stone Removal Procedure

    Hi all,

    I am hoping that by writing this and get some answers or reassurance my anxiety levels may ease.

    In June my boyfriend had a kidney stone, he passed it. Then, about a week later he had...
  10. Sort of, they turn off and start sounding alarms....

    Sort of, they turn off and start sounding alarms. Now that's just another thing the hospital has to piec together, though. Plus, shouldn't emergency personnel know I have a pump in my belly and a...
  11. I live in Canada so that's not always the case...

    I live in Canada so that's not always the case here :) We got one today, though.
  12. I did. It's just been advised I also have a...

    I did. It's just been advised I also have a medical alert bracelet.
  13. Baclofen Pump Meidcal Alert Jewlery/Tattoo?

    Hi Everyone,

    So I had my pump put in and it's been advised I get some kind of medical alert bracelet/necklace/whatever.

    Does anyone know what should be on it?

    Thanks!
  14. Replies
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    Hey There, Here is the survey :) 1. ...

    Hey There,

    Here is the survey :)

    1. Whatfeatures do you look for when purchasing a new vehicle? Why?
    2. Are there any features that would not wantto have in a vehicle? Why? 3
    3. What...
  15. Replies
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    Thank you, both! I have PM'ed you. If there is...

    Thank you, both! I have PM'ed you. If there is anyone else willing, please let me know!

    Thanks!
  16. Replies
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    Marketing Class Survey

    Hey everyone,




    Please delete if not allowed/ I am currently taking a marketing course and have to create a survey to find out what people look for in features and colors when it comes to a...
  17. Replies
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    Let me clarify: 1. I didn't have an allergic...

    Let me clarify:

    1. I didn't have an allergic reaction to the intrathecal dose. The itching didn't start until over 24 hours after the last dose via catheter was given
    2. They are aware they gave...
  18. Replies
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    Sorry, I didn't word that properly. I took the...

    Sorry, I didn't word that properly. I took the oral Baclofen while in hospital as well. The only time anything changed was when I received the full dose via the cath as my muscles were very relaxed;...
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    I had the test Tuesday and Wednesday... I am on...

    I had the test Tuesday and Wednesday... I am on 50 mgs and resumed the dose regularly once out of the hospital; I've been on it sign June of 2017. I seem okay today. I also take Lyrica for migraines...
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    Bacolofen Withdrawal PLEASE help

    I had the intretheical test done to get a pump and it went well.

    I've taken them orally and as directed sinve removal of the cath and leaving hospital..

    Fast forward, I am unbearably itchy,...
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    I am so excited! We did the trial Tuesday and...

    I am so excited! We did the trial Tuesday and Wednesday this week, wow! I was able to transfer from hospital bed to chair and keep my feet on my foot plate, It's so strange, I got a warm sensation in...
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    Help guys Permobil F5 Joystick Knob

    Hi Everyone,

    I am trying not to, but I am low key freaking out.


    The knob on my joystick fell off and I can't find it..

    I know the last time I had the chair looked at, I was told...
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    Thank so much for all the info. The doc I saw...

    Thank so much for all the info. The doc I saw yesterday was incredible. He told me that we will really have to watch for symptoms of overdose/failure and spoke of the itching. He also wasn't rushed...
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    Really? Can you tell me more if it's not too...

    Really? Can you tell me more if it's not too personal?
  25. Replies
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    Saw the Neurosurgeon Today

    Hi everyone,

    I had posted a while back asking some questions about a Baclofen pump..

    Just a little recap:

    I have Cerebral Palsy and have been on Baclofen since June 2017. I landed in the...
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