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    So cystoscopy looked ok. But he'd already gotten...

    So cystoscopy looked ok. But he'd already gotten a low grade fever, and been put on antibiotics on Monday. Culture showed proteus and psuedonomas both over 100,000. UA showed clear signs of...
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    Well it clogged another catheter, so that's a...

    Well it clogged another catheter, so that's a week between. And it wasn't just an inch of clog it was several inches. And the mucus was pushing out through the penis. I'm at a loss. The Uro has a...
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    Can't skip his shakes. He can't chew/swallow...

    Can't skip his shakes. He can't chew/swallow well enough to get his calories any other way. These are homemade with protien powder, fruits and veggies, coconut oil, etc. Without the shakes he'd be...
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    Uro wants to do a cysto. They did culture each...

    Uro wants to do a cysto. They did culture each time, in addition to the UA. The very first time he also had bloodwork because they were concerned about sepsis and his WBC were very high. Follow up...
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    A long time ago he had stones, but I thought the...

    A long time ago he had stones, but I thought the Potassium Cit. had taken care of it. He hasn't been scoped probably since the SP was put in, which was a couple years ago I think (gosh I can't even...
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    He's had Proteus Mirabilis and then added E.Coli...

    He's had Proteus Mirabilis and then added E.Coli this last time. And greater than 100,000 of the organism so IMO clearly an infection and not just colonization. In fact he was SO sick the first...
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    Mucus in urine in LARGE amounts, help

    So a couple months ago IS started getting odd white mucus in his urine. It slowly increased until he developed clear symptoms of a UTI. We ended up in ER with his blood counts elevated and his SP...
  8. Sudden AD episode in MS, during surgery?

    Hi all..
    My husband just had surgery to implant the Baclofen Pump (yay!). However as they were prepping (possibly during intubation) he had an AD episode. This has never happened before. He got...
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    Argh I don't know, Medicare/MediCal, someone is...

    Argh I don't know, Medicare/MediCal, someone is covering the orange backed bed pads, lol! I know it isn't Kaiser's DME dept. cause it isn't "durable" equipment. They also cover his bed bags,...
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    We only get what MediCal will cover... Ugh. Now...

    We only get what MediCal will cover...
    Ugh.
    Now I'm not sure this is better than what he was on before.
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    Q about LAL mattress use

    My husband has a persistent stage two sore and we just got a LAL from Home Health/Medicare. It has an alternating pressure feature as well.

    Here's the Q's:
    Does using a Chux pad under his...
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    Well, home health nurse came to look at his...

    Well, home health nurse came to look at his latest bed sore and checked his stoma... and unlike before it had green pus and a foul odor.
    So he went in to uro on Friday. There was less pus (I had...
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    See, THAT is what I felt his stoma should look...

    See, THAT is what I felt his stoma should look like! And he has a 24 fr silicone. The reason it is so big is because he has a history of blockages, and uro wants to make sure it stays free flowing....
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    Uro said, based on pics, no concern, normal. But...

    Uro said, based on pics, no concern, normal. But he said we can bring him in if it makes us feel better. Sigh.
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    SP tube site not healing

    Has anyone seen anything like this happen after SP tube placement? His surgery was Nov. 7th. It has never completely healed, and at changes, the nurse just tells us "the tissue is healthy and not...
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    All the GI drs say is "you don't want a...

    All the GI drs say is "you don't want a colostomy" and when I ask them why, they dodge the question. Its beyond frustrating.
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    And... he's now complaining (yet again) that he...

    And... he's now complaining (yet again) that he isn't "going enough." Says he feels upper abdominal pressure.

    I can't get the GI drs to do much of anything but suggest a variety of OTC stool...
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    Annnnnd As predicted his GI is completely...

    Annnnnd
    As predicted his GI is completely unconcerned.

    "Yeah i think given his bowel, there will be unpredictable moments. When it is more liquid, definitely do what you did, which is cut back on...
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    He's essentially home bound except for dr appts. ...

    He's essentially home bound except for dr appts. Which right now are once a month for the catheter change as they are monitoring and moving him up a size each appt.
    He has only mentioned abdominal...
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    Bleeping Bowels again

    Never a dull moment, right?
    For the past week, possibly two, Chris's bowel movements have been liquidy. we have reduced his Miralax, no change. We can't just take him OFF it, he gets "backed up"...
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    For Chris it kicks in at about 30 mins to 1 hour,...

    For Chris it kicks in at about 30 mins to 1 hour, but only lasts around 4 hours then he needs another dose.
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    Post surgery it takes about 3 or 4 days. Drink a...

    Post surgery it takes about 3 or 4 days. Drink a LOT of water, that's really all you can do.
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    Honey will calm a cough. Vicks will also, and...

    Honey will calm a cough. Vicks will also, and will help open airways.
    Gargling salt water will soothe the sore throat.
    Hot tea w/Lemon and honey will as well.
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    Just had my gallbladder removed. Had a severe...

    Just had my gallbladder removed. Had a severe attack on Sunday night, and they did CT scan and later ultrasound and found I have stones. Basically not having it out just makes you a ticking time...
  25. Thread: question

    by Knight's Wife
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    Chris has two kidney stones. They just monitor...

    Chris has two kidney stones. They just monitor them, as long as they aren't moving they aren't going to cause any trouble.
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