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  1. Replies
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    4,155

    Baclofen Pump Alternatives

    Hi all,

    I am on the max dose of oral baclofen (actually, I've been prescribed a higher dose than what is typically recommended, at 100 mg/day). I still have a tremendous amount of tone and...
  2. Don't forget to apply to this incredible 10 week...

    Don't forget to apply to this incredible 10 week long (paid) research opportunity, undergrads! Handicap accessible housing is provided on the Baker University campus.

    http://www.bakeru.edu/canopy
  3. Thread: First Job

    by Ptarzan80
    Replies
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    1,436

    I didn't even know there was a resize thingy, so...

    I didn't even know there was a resize thingy, so you're one step ahead of me.
  4. Thread: First Job

    by Ptarzan80
    Replies
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    1,436

    Thanks, Lynnifer! I'm a T8/T9 complete, but am...

    Thanks, Lynnifer! I'm a T8/T9 complete, but am managing quite well, actually. I'm learning a lot and discovering that I'm capable of more things than I previously thought.
  5. Thread: First Job

    by Ptarzan80
    Replies
    7
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    1,436

    It is a cool job. And I know - there's no way to...

    It is a cool job. And I know - there's no way to prevent the booty-peek!
  6. Thread: First Job

    by Ptarzan80
    Replies
    7
    Views
    1,436

    First Job

    I'm working in Kansas for the summer - my first job since being injured. Climbing trees, studying leaf herbivory and microscopic critters called tardigrades (you should look them up - they're...
  7. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
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    3,980

    It does help, thank you.

    It does help, thank you.
  8. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
    Views
    3,980

    Thanks so much.

    Thanks so much.
  9. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
    Views
    3,980

    Thank you!

    Thank you!
  10. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
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    3,980

    I hooked the belly bag up last night and woke up...

    I hooked the belly bag up last night and woke up dry, but I still didn't dare to wear it during the day because I had a lot of errands to run and didn't want to risk leaking again. Is there a trick...
  11. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
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    3,980

    Thank you, paramoto. I do all of those things...

    Thank you, paramoto. I do all of those things (except I did empty the bag completely). I will give it another go and not empty the bag entirely this time. I hope that makes the difference, because...
  12. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
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    3,980

    So I've tried using a belly bag for the past two...

    So I've tried using a belly bag for the past two days, and what I was afraid would happen, happened. Plenty of urine is going into the bag, but plenty of urine is also going elsewhere, and I end up...
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    Meaning overnight bags? I have five that I could...

    Meaning overnight bags? I have five that I could give you if you wanted to cover the shipping cost. Message me if you're interested.
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    1,225

    Standing Frame Alternatives

    I will be leaving the state for 2 and a half months and will not be taking my standing frame with me. Are there things I can do that will give me comparable benefits? Also, I notice people on this...
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    Many thanks.

    Many thanks.
  16. Replies
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    Thank you - I really appreciate that.

    Thank you - I really appreciate that.
  17. Replies
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    1,249

    Thanks so much.

    Thanks so much.
  18. Replies
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    A Birthday Poem

    Without going into a whole lot of detail (although there are bits and pieces scattered throughout this site), it is safe to say that I am in a good place. I am not bathing under waterfalls or riding...
  19. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
    Views
    3,980

    That's what I was worried about. I'll give it a...

    That's what I was worried about. I'll give it a go and see how it works for me. Thank you!
  20. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
    Views
    3,980

    Thank you.

    Thank you.
  21. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
    Views
    3,980

    Kathy Repetto at Rusch recommends...

    Kathy Repetto at Rusch recommends www.healthykin.com for buying medical supplies, as she says they are usually the most reasonably priced. They are back-ordered on belly bags at the moment, but will...
  22. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
    Views
    3,980

    I know! When I saw the opportunity, I thought to...

    I know! When I saw the opportunity, I thought to myself, "Wait... Kansas has trees?" Thanks so much for the suggestions - very much appreciated.
  23. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
    Views
    3,980

    I will be doing biological field research -...

    I will be doing biological field research - climbing trees, collecting tardigrades (I'd never even heard them, but you should Google them - they're fascinating!), and studying them in the lab...
  24. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
    Views
    3,980

    Do you order them online? From where? I cannot...

    Do you order them online? From where? I cannot find a local pharmacy that even carries them, and am searching for the best price. Thanks!
  25. Thread: Belly Bags

    by Ptarzan80
    Replies
    24
    Views
    3,980

    Belly Bags

    I will be in Kansas doing research this summer (my first job since being injured 5.5 years ago, hooray!), and have been told I should bring shorts as it gets very hot there. I have not worn shorts...
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