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Type: Posts; User: RosieSoaring

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  1. Hi, luckydog! I am being treated for a...

    Hi, luckydog! I am being treated for a Mitochondrial Disease called Mitochondrial Myopathy. I am waiting for Full Genome Sequencing to come back that may provide information about what is going on...
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    Mystery, I am so glad you found some wheels that...

    Mystery, I am so glad you found some wheels that make you happy! I also enjoyed reading your narrative about all of your adventures (and misadventures)... and could picture everything as you...
  3. Are you still moving to Vermont, Broadsey? I used...

    Are you still moving to Vermont, Broadsey? I used to live up near St. Johnsbury and the winters were beyond brutal... bitter cold sub zero temps with whipping winds at times. I doubt you would want...
  4. Awesome, Broadsey!!! Which Jay back do you have?...

    Awesome, Broadsey!!! Which Jay back do you have? It sounds like lateral supports would be great for you! I forget if you have someone working with you on positioning?

    What angle do you have on...
  5. Broadsey, how is your ZRA working out? Rosie

    Broadsey, how is your ZRA working out? Rosie
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    Thank you, smokey!

    Thank you, smokey!
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    Thank you so much, smokey! Should I contact...

    Thank you so much, smokey! Should I contact Michelle even though I have just ordered a wheelchair? Would she still help me with positioning? Spaulding in Charlestown is where I had intended to go....
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    JeffAdams, thank you so much for all of the info...

    JeffAdams, thank you so much for all of the info on the icon! It definitely sounds like it would work for me, except maybe for taking the front end apart to get it into my Mini.

    Lin... I am glad...
  9. Broken Doll, I do not have an SCI, but I use a...

    Broken Doll, I do not have an SCI, but I use a FitBit One to track my activity level with a chronic illness. A FitBit wrist device would track the difference between whatever it considers a normal...
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    Hi, Jeff! You responded to my post the other day...

    Hi, Jeff! You responded to my post the other day and I would like to know more info about the Icon. I have watched your YouTube videos and read what I could find on the forum. Some questions:
    ...
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    Thank you for ALL of your ideas and suggestions! ...

    Thank you for ALL of your ideas and suggestions!

    Mystery, I love the idea of the Whitmyer Quick Headrest mount!

    Lin, how will you use the adjustable back when you get an Icon? Do you know if...
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    Smashms, an independent DME suggest a J3 back...

    Smashms, an independent DME suggest a J3 back with a Whitmyer contour headrest... similar to a Quickie Iris set-up. The need for neck support/positioning was the original impetus for a wheelchair...
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    JeffAdams, how would I go about checking out the...

    JeffAdams, how would I go about checking out the Icon... or placing a custom order? Can a neck/headrest be added (such as the Whitmyer Contour)? Thanks! Rosie
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    Broadsey, thanks so much for the encouragement! I...

    Broadsey, thanks so much for the encouragement! I have related to your story and have been following your progress with your new ZRA! Rosie
  15. Outstanding, Broadsey! I have been following your...

    Outstanding, Broadsey! I have been following your ZRA story and eager to hear how it works for you!!!

    Rosie
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    Lin, I have been following your posts (and...

    Lin, I have been following your posts (and identifying with you) about the Q7, which had initially been my choice... due to adjustability on the fly. But, I have read so much about the Q7 not holding...
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    Thanks, SCI-Nurse! I have HMO Blue of MA, which...

    Thanks, SCI-Nurse! I have HMO Blue of MA, which would cover Spaulding and probably New England Rehab. Spaulding, (who is familiar with metabolic disorders) told me that a rehab PT and a wheelchair...
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    Wheelchair eval in Boston

    Hi! I have been researching wheelchairs and, even though I do not have a spinal cord injury, this forum has been THE most helpful resource. I have a metabolic disorder that causes variable...
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