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Type: Posts; User: xmasholli

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  1. Replies
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    Hi All,
    I found it fascinating that you found this book! I for one seldom read books on pain because it is just a...
  2. Replies
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    6,600

    The Pain Chronicles

    Hi All,
    I found it fascinating that you found this book! I for one seldom read books on pain because it is just a reminder of what I (and You) live with every day! However, this book is so...
  3. Replies
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    11,916

    Gary, I know of no one personally who has had...

    Gary, I know of no one personally who has had this surgery. I remember a long time ago the editor of "New Mobility", I think his name was Gary Corbitt had the surgery after about 30 years of...
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    55
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    12,338

    My neighbors and acquaintences think I am "The...

    My neighbors and acquaintences think I am "The life of the party" I definately fake how I feel when I am out in public and it takes tons of energy! It is exhausting!
    I too have had terrible burning...
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    6,391

    John Callahan

    So sad! He was so funny..............and politically incorrect! I Will miss his humor.
  6. Replies
    84
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    I agree! 18 years post injury in pain for 17!

    I agree! 18 years post injury in pain for 17!
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    I am going to the support group meeting at Tampa...

    I am going to the support group meeting at Tampa General tonight, I should get the scoop and I'll let you know what I find out. The switch board operator at the rehab facillity didn't even know...
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    WHAT!!!!!! When did this happen? Now I know I...

    WHAT!!!!!! When did this happen? Now I know I should never have moved here!
  9. Replies
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    Dreaming of walking

    I have been paralyzed at c5/6 for 18yrs and all that time in terrible pain! I have noticed that when I dream however, I always dream that I can walk. I run, swim, play catch and have such joy in my...
  10. This is the first time in 18 years that I have...

    This is the first time in 18 years that I have visually seen what my pain feels like! Maybe with this picture my pain doctor will finally understand! Now we just need pics to describe the rest of the...
  11. Replies
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    11,505

    Prialt (zinconitide)

    Well, I wish it were better news. I now have 5.6 micrograms/day of Prialt in my pump. I haven't had any noticeable side effects so far. But no pain relief either. I have just Prialt. The...
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    Thank you Mike. I stayed at 3.8mcg for another...

    Thank you Mike. I stayed at 3.8mcg for another week. Tuesday I will have it turned up again to 4.3. So far I have no pain relief but I keep hoping. I have started having some pretty severe spasms...
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    My doctor was also involved with the original...

    My doctor was also involved with the original trials of Prialt. He believes if you titrate slowly there will not be a problem. So far I have had no pain relief at 3.8ug/day. I am still at 10 re:...
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    11,505

    Prialt or Zinconitide My experience so far..

    Hello all, I apologize for not having my e-mail available. It now is.
    I wish I had terrific news regarding the Prialt that is in my medtronic pump. I really don't like to post because I don't want...
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    I am one of those people who has popped in and...

    I am one of those people who has popped in and out of these pages for the last 10 years or so. I am a c6 SCI quad who has also had debilating pain since 2 years post injury. I am sorry to say, it...
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    I truly enjoyed reading your experience with the...

    I truly enjoyed reading your experience with the colostomy. I have been fighting bowel problems for 14 years now. I even tried the "ACE" proceedure but am still tied to the toilet for hours or days...
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    I also am looking for a new power wheelchair. ...

    I also am looking for a new power wheelchair. Who makes the TDX4? The DME specialist is suggesting the Quantum 600? Anyone know anything about this chair? Good? Bad?
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    I'm sorry I didn't see your request earlier...

    I'm sorry I didn't see your request earlier however, maybe I can still be of help. I lived in Sacramento for 20 years (10 as a quad) I had great doctors at the University of Ca, Davis medical...
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    Great Doctors in Sacramento, CA

    I just wanted to let anyone who needed to know about some of the greatest docs!!! Univ of Ca Davis Medical Center--in Sacramento. As a urologist Dr. Anthony Stone is tops. He is kind, and he...
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    Pain Doctor and PM&R doc in Tampa

    I have just recently relocated to Tampa from Sacramento. WOW! what a change. I have been in touch with two pain docs. Dr. Winston Parris who I really liked, can do my pump and is very experienced...
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