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Type: Posts; User: alan

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  1. Replies
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    Do bisphosphonates work in people who are not...

    Do bisphosphonates work in people who are not ambulatory? I have been told by doctors that they don't. Nor do calcium supplements.
  2. Thread: New CareCure

    by alan
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    Thank you for your time and work.

    Thank you for your time and work.
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    It can reach the 160s or 170s over 100+, but 130s...

    It can reach the 160s or 170s over 100+, but 130s to 150s is more common. That's with or without symptoms, which is why my BP is regularly checked. I can also have symptoms with normal BP (90s to...
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    The worsening continues, but the syrinx size...

    The worsening continues, but the syrinx size remains the same.
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    I can ask for the abdominal x-ray. Digital...

    I can ask for the abdominal x-ray. Digital checks not uncommonly find stool in varying amounts (few to many), and Magic Bullet and sample Enemeez produce the same (a little to a lot.) Bladder is...
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    Nothing different. We did find a small open area...

    Nothing different. We did find a small open area on the right side of my scrotum, apparently caused by pressure against my thigh. I don't know if this is THE cause of the always elevated BP, or a...
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    SCI Nurse - can't find AD cause

    I have been dealing with AD-caused elevated BP (been lowering it with NItroBid, per my doctor), and cannot find a cause. Sometimes, stool is present, and removed, and hemmorhoid cream used, but that...
  8. Thread: colostomy and AD?

    by alan
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    That's good. Is there any AD when stool passes...

    That's good. Is there any AD when stool passes through the stoma, as there os when it passes through the sphincter?
  9. Thread: colostomy and AD?

    by alan
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    1,360

    Good to know. Thank you.

    Good to know. Thank you.
  10. Thread: colostomy and AD?

    by alan
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    So the colostomy stoma isn't a pain-causing area...

    So the colostomy stoma isn't a pain-causing area that causes AD?
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    I hope they find a cause for your sensation...

    I hope they find a cause for your sensation rising, and are able to deal with it.

    I have had symptoms of an ascending syrinx (increasing pain intensities, new pain sensations, change in sensation...
  12. Great work.

    Great work.
  13. Thread: colostomy and AD?

    by alan
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    I'll check the Enemeez site. I already take 1000...

    I'll check the Enemeez site. I already take 1000 mg. of stool softener daily. I can add more fiber. I drink 2.5 liters or more of water daily. I always have below normal sodium when my blood is...
  14. Thread: colostomy and AD?

    by alan
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    9
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    1,360

    colostomy and AD?

    I'm considering a colostomy, because my Monday-Wednesday-Friday bowel program (Magic Bullet) is no longer sufficient. I'm requiring stool (sometimes a lot, sometimes hardly any) be removed almost...
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    Mine is a former Baltimore Orioles baseball team...

    Mine is a former Baltimore Orioles baseball team logo.
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    I'm still here. Been here sine 2001 (seems...

    I'm still here. Been here sine 2001 (seems longer.) I think I was on one of the previous sites.
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    This loss of sweating as a warning that something...

    This loss of sweating as a warning that something is going on in the bowel department isn't good.
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    Somewhat related question - is there a limit to...

    Somewhat related question - is there a limit to the number of times dig stim can be performed during one bowel evacuation? In one day? Days per week? Or is the answer as often as necessary to all...
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    My computer won't update Win 10 because my...

    My computer won't update Win 10 because my motherboard is too old, apparently.
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    Yes, things change over the years. Annual MRIs...

    Yes, things change over the years. Annual MRIs show no ascending syrinx - it remains the same size, and same place (doctor measures it every year.) The sweating/chilled feeling changes are in...
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    This continues. I have chilled/sweaty feeling on...

    This continues. I have chilled/sweaty feeling on my upper back, including over shoulder blades (doesn't cool the constant burning, so somehow I feel both sensations at once) much of the time. It's...
  22. Thread: GJ has passed

    by alan
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    I'm terribly sorry to hear of your loss.

    I'm terribly sorry to hear of your loss.
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    I have a Drive Medical LAL/LR mattress. It gets...

    I have a Drive Medical LAL/LR mattress. It gets the job done.
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    I'm taking Amoxicillin nightly as a prophylactic...

    I'm taking Amoxicillin nightly as a prophylactic to prevent the bacteria which cause my bladder sediment from taking hold.
  25. If such AD-like symptoms and change in sensation...

    If such AD-like symptoms and change in sensation are not an enlarging syrinx (mine are not, apparently - my latest neurologist visit last week and his measurement of the small syrinx in my messed-up...
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