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Type: Posts; User: Khaleeka

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    Reviving the issue of MCS

    I know that this conversation took place almost five years age, but this is starting to affect me now.

    I'm "allergic" to South American MSG. By that, I mean that while consuming it is enough to...
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    Did that at a friend's house. Bless her heart,...

    Did that at a friend's house. Bless her heart, she let me sleep while our kids played. It sometimes comes along with whatever ails us. Check to make sure it's nothing worse, then just make sure you...
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    Bonnette, TM and MS are not the same. The problem...

    Bonnette, TM and MS are not the same. The problem is that MS symptoms can be so similar that it is mistaken as TM. Each one has different (theoretically) causes.

    I'm one of the rare few to...
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    Some of us with Transverse Myelitis or MS are...

    Some of us with Transverse Myelitis or MS are told by our neuros to stay away from it. My symptoms all started after having a whole whack of vaccinations prior to travelling. Now my immune system is...
  5. Trying to find a number...

    Trying to find a number...
  6. Is siliconized latex same as silicone coated?

    I have a latex allergy so naturally the catheter of choice for me is a silicone one. As those of you whom have been in my shoes can profess though, if you have it in suprapubicly, having it removed...
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    Resurrecting a thread

    I realize that this was posted over 4 years ago, but had a good chuckle at your saying someone else should know to change it.

    Would you believe that, living in long-term care, in a 460-plus bed...
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    Using a paper bag hasn't been recommended for...

    Using a paper bag hasn't been recommended for quite a few years: http://www.emedicinehealth.com/hyperventilation/page6_em.htm
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    Isn't it ironic how so many of us deal with...

    Isn't it ironic how so many of us deal with day-to-day fatigue from our conditions and the pain they cause, only for our bodies to turn around and kick us in the rear by causing insomnia at the same...
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    I'm with Triumph...don't be afraid to report...

    I'm with Triumph...don't be afraid to report unprofessional behavior. What started with that type of behavior with one aid ended up turning into an outright assault a few weeks afterward.

    Whether...
  11. Thanks for the head's up! I just realized that I...

    Thanks for the head's up! I just realized that I had it programmed to record...will watch it asap. =D
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    I feel for you. Nothing like having to deal with...

    I feel for you. Nothing like having to deal with total idiots who think they know so much better just because they have a framed diploma on your wall. Maybe a letter from your neuro is needed to...
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    This this was before I had an SP catheter. The...

    This this was before I had an SP catheter. The suprapubic was first inserted in March of this year. Until the allergy was discovered last fall, I used to tape to keep it down… It was shortly after my...
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    zillazangel... I'm not allergic to silicone,...

    zillazangel...
    I'm not allergic to silicone, it's the latex that I'm allergic to. I'm trying to figure out if I could use a latex catheter that has been coated with either Teflon, silicone or...
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    I am allergic to both, actually. The blistering...

    I am allergic to both, actually. The blistering was directly under the latex tubing… A long line of it where the tubing was in direct contact with my leg. Then, large red welts where the tape...
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    suprapubic catheters and allergies

    Hi everyone,
    I had a suprapubic catheter implanted at the beginning of March. Since I have a latex allergy, they used a 100% silicone Foley. This allergy popped up in the last year, probably from...
  17. Thread: Itchy Skin

    by Khaleeka
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    5,297

    Thanks, CKF, I don't know why I didn't think of...

    Thanks, CKF, I don't know why I didn't think of that. This happened with my Gabapentin...definitely worth a look into for the rest of you peeps.
  18. Thread: Itchy Skin

    by Khaleeka
    Replies
    11
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    5,297

    I fully intend on doing that after verifying if...

    I fully intend on doing that after verifying if it is in fact the culprit. I went through a lot to find something that works. I intend on booking an appointment with my urologist asap...I however...
  19. Thread: Itchy Skin

    by Khaleeka
    Replies
    11
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    5,297

    I've been dealing with a rashy-feeling itch for a...

    I've been dealing with a rashy-feeling itch for a month or so and now that it's been mentioned, that was when I started Ditropan again...I was assuming that it was another form of neuralgia that's...
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    Hey! Do you know a young lady named Natasha?...

    Hey! Do you know a young lady named Natasha? She's in that program now... I read about it and it sounds awesome.
  21. Quad, that was awesome food for thought.

    Quad, that was awesome food for thought.
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    70 MPH Wheelchair Worthy of the Racetrack

    Thought you'd like this =D
    http://www.aolnews.com/weird-news/article/70-mph-wheelchair-worthy-of-the-racetrack/19682576
  23. I used to train service animals and knowing how...

    I used to train service animals and knowing how beneficial they are, would not get one myself because of my inability to care for it...I can barely care for my two daughters. The big issue is walking...
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    I've had two surgeries with exacerbations...

    I've had two surgeries with exacerbations afterwards, but since they were C-Sections, there is obviously no way to tell if it was the birth or the anaesthesia that caused it.
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    I never heard of a link between anaesthesia and...

    I never heard of a link between anaesthesia and MS exacerbations, but I see how it's possible...I've heard of people with MS having exacerbations after surgery--just never made the connection before....
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