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Type: Posts; User: jools

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  1. Replies
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    Tag and Andrew, Thank you for your responses. ...

    Tag and Andrew,
    Thank you for your responses.

    We can't afford private physiotherapy and the local area health service has been approached directly, by my husband's LMO and also by a doctor from...
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    Bob's Wife, The thing is, you are still not...

    Bob's Wife,
    The thing is, you are still not reading what I wrote. I have no negativity about research and funding for a cure. My concern (why do I have to state this again?) is that I don't want the...
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    Bob's Wife, My first post on this subject was...

    Bob's Wife,

    My first post on this subject was simply to explain why SOME disabled people are concerned that funding will be diverted to research from the day-to-day care needs. Nowhere did I say...
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    Bob's wife, Firstly, I haven't made any...

    Bob's wife,

    Firstly, I haven't made any decisions on the part of the disabled. I simply suggested a reason why SOME disabled people might be concerned that much needed funding for their day-to-day...
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    Firstly, what's 'wrong' with me is that I simply...

    Firstly, what's 'wrong' with me is that I simply posted an opinion that many disabled people feel that funding (such as it is) will be directed away from the current needs of disabled people.
    ...
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    No, I'm not OK. I haven't posted here for...

    No, I'm not OK.

    I haven't posted here for yonks because I'm worn out. I've been doing the caregiver thing for 25 years and I'm exhausted. I'm up 2 or 3 times a night. My husband is in constant...
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    OK, Jeff and DA. As I said, I'm only a carer....

    OK, Jeff and DA. As I said, I'm only a carer. Sorry to butt in.
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    I'm a carer, not a person with SCI and I haven't...

    I'm a carer, not a person with SCI and I haven't posted on this particular board before, so I apologise in advance if I'm out of order.

    My feeling about this is that many disabled people are...
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    Martha, I'm glad you wrote what you did. I've...

    Martha,
    I'm glad you wrote what you did. I've been a member for a couple of months (and a caregiver for 25 years) but seldom post.

    The very first time I looked into this board, there was quite a...
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    What a brilliant idea

    I once got into a 'discussion' with someone about disabled parking spots and was told that she (a person with cardiac disease) needed the spot more than my husband (a quad) because he doesn't have to...
  11. Thread: coping

    by jools
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    Poll: I answered for my husband, the SCI person in our...

    I answered for my husband, the SCI person in our house. His views mirror those of whiterabbit.

    It was difficult but a challenge at the beginning; the middle years he (and I) coped quite well but...
  12. Thread: Stupid AB lines

    by jools
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    TD: I've been known to say that I didn't...

    TD:

    I've been known to say that I didn't realise illiteracy qualified someone for a disabled parking permit but then I'm famously rude when it comes to inconsiderate $#%@ who park in disabled...
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    We get half price vouchers for taxis. You would...

    We get half price vouchers for taxis. You would not BELIEVE the envy some people display when they find out. The fact that 99% of buses and 75% of trains are totally unaccessible to someone in a...
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    This topic gets me going as well. I have been...

    This topic gets me going as well. I have been helping my husband into/out of cars for 25 years, which is why we seldom go out.

    A couple of weeks ago, we were out and the only disabled spots were...
  15. Thread: Dreaming I Walk

    by jools
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    My husband has been a quad for 25 years. He tells...

    My husband has been a quad for 25 years. He tells me he's never had a dream in which he's been disabled.
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    Poll: I'd like another category as well (I realise it's...

    I'd like another category as well (I realise it's not possible):

    No outside help because I'm expected to cope with the lot.
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    I was talking about my husband...

    but I'm up for a trip to Beaumont, Texas if there's gonna be dancing. Foxtrot anyone?
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    He doesn't know it yet...

    but he's taking me dancing.
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    Poll: I answered for my husband

    He refuses to use a power chair because he thinks it would make him look more disabled. I wish he'd change his mind, though (not much chance of that) because I've been the official family pusher for...
  20. I wonder how much money they wasted...

    finding that out? It's not as if it's new information fer cryin' out loud and if they wanted to see *who* is mostly affected by SCI, a walk through a spinal unit would've provided the same...
  21. Thread: Caregivers 24/7

    by jools
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    Poll: Is this just a general info poll?

    I'm a caregiver not a receiver so I wouldn't be able to answer the poll in any case, but I wondered whether there was a view to lobbying the government or other body with the results?

    Just asking,...
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    They tell fibs...

    in the newspapers? I'm shattered http://sci.rutgers.edu/forum/images/smilies/wink.gif
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    Not really SCI related...

    but Kevin Andrews who is opposed to the use of Stem Cell research is the Minister for Aged Care. I thought there were potential uses for people with Parkinson's Disease and Alzheimers?
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    Kevin Andrews

    I bet Kevin Andrews would feel differenlty if a family member of his had SCI.
  25. Wow! This may be worth a try

    My husband is C5/6 and his sleep has been getting progressively worse. He does have a lot of problem with pain but even on those nights when he's pain-free, he sleeps poorly.

    I have a horrible...
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