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Type: Posts; User: Brinda41

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  1. Replies
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    I concur with the SCI nurse as your syrinx (cyst)...

    I concur with the SCI nurse as your syrinx (cyst) is too small to worry about.

    I began having symptoms (bad pain and spasms) beginning in 1989/1990 when I was working making working horrible....
  2. Even without summer... beginning in 2016 I began...

    Even without summer... beginning in 2016 I began to have much more swelling in my feet, ankles and lower extremities. I began to have A LOT of stress and I contribute to that. It is also called...
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    1,478

    I have used a Magic Bullet suppository since...

    I have used a Magic Bullet suppository since 1989. I have always used (from a caregiver, family member or husband) only one finger since using two fingers (unless they are very very small) are...
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    Hi Greg (it's me Lori from the Quad list). ...

    Hi Greg (it's me Lori from the Quad list).

    They sent me home with an order for a nebulizer if I need it. I also took home with me one of those plastic things that are commonly given to use as...
  5. Thread: Dark urine

    by Brinda41
    Replies
    3
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    452

    Ironically, unless my earring is red, brown were...

    Ironically, unless my earring is red, brown were super super dark and I am not having any bladder infection symptoms (whereby I always know that I have the same symptoms each and every time)... I...
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    FINALLY I have read about, albeit 12 years ago,...

    FINALLY I have read about, albeit 12 years ago, someone else experiencing a visiting nurse filling up the balloon in your son's urethra rupturing your son's urethra requiring an SP catheter. This is...
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    2,286

    My 1st experience with Acinetobacter Baumannii in my urine

    Well, here is my story:

    On February 25th of this year (2018) I had a bladder biopsy done. The results were that it was, unfortunately, "superficial or low grade cancer." My urologist removed the...
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    Since I use voice recognition software I meant to...

    Since I use voice recognition software I meant to say "I think you are a paraplegic...." I often don't have time to proofread but how it can mix up the word "They" with the word "I"... who knows!
    ...
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    2,800

    Yes, that will most likely be the decision. I...

    Yes, that will most likely be the decision. I have an appointment with my urologist on June 25 (I just got a letter in the mail from them that they had to change it from June 11 to June 25) and he...
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    OK, thank you everyone for your concern and...

    OK, thank you everyone for your concern and advice!!! This past Wednesday night the severe bladder pain and flank pain came back with a vengeance (even though I was still on Doxycycline) so since my...
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    It took me 4 1/2 years to get diagnosed with...

    It took me 4 1/2 years to get diagnosed with Syringomyelia. I started having abdominal cramping around 1989. I had every test imaginable thinking it was something abdominal and everything was...
  12. I take a stool softener (started out with Colace...

    I take a stool softener (started out with Colace back in 1998/1999 then just switched to any generic form of Colace) daily and then I am on a regular bowel regimen (every third night) so that morning...
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    SCI-Nurse - I forgot to answer your question re:...

    SCI-Nurse - I forgot to answer your question re: my urologist considers this surgery to be a huge risky one. This is because Pneumonia, C-diff and MRSA are running rampant through the hospitals. He...
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    My urologist has to refer me to another urologist...

    My urologist has to refer me to another urologist in the area who does these [Ileal Conduit] surgeries and to remove my bladder. Because my bladder cancer was "superficial" and did not invade the...
  15. Weeler... did you ever have the operation done? I...

    Weeler... did you ever have the operation done? I am also in that situation where my urologist wants to remove my bladder and do the Ileal Conduit. I feel so old and weak that I don't think I could...
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    2,800

    Ileal Conduit same as a Urostomy?

    I have a simple question that even my research can't seem to straightout answer yes or no. Is an Ileal Conduit the same thing as a Urostomy?

    I was diagnosed with superficial bladder cancer and...
  17. I usually do not have time to login here but I do...

    I usually do not have time to login here but I do every once in a while. Funny you should bring this up. I am 37 1/2 years post and have had an indwelling Foley catheter for all of that time. It was...
  18. Thread: hibiclens

    by Brinda41
    Replies
    7
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    8,055

    I am a female quadriplegic. 37 1/2 years post. ...

    I am a female quadriplegic. 37 1/2 years post.

    My husband went to medical school and work in all kinds of fields. He began washing me up with Hibiclense at least a couple decades ago because of...
  19. I was finally able to have my Cystoscopy &...

    I was finally able to have my Cystoscopy & Urodynamics done on February 7. The experience was absolutely terrible because the first thing that happened was the machine didn't work and the doctor and...
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    I had never heard of syringomyelia until after 4...

    I had never heard of syringomyelia until after 4 1/2 years of wondering what could possibly be wrong with me causing abdominal cramping and severe severe severe spasticity. With the abdominal...
  21. Thread: Foot Swelling

    by Brinda41
    Replies
    4
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    2,941

    I know that your post is quite old but I just did...

    I know that your post is quite old but I just did a search on swelling or edema since mine has increased dramatically in 2015 and 2016 and I began taking an anti-seizure medication after being...
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    Females with SP and bladder sling...

    Hi Pixie,
    Did you ever get this resolved? I am sorry I saw your post 8 years later but that is when I began to have the problem with my bladder that you describe and possibly resorting to the...
  23. Decision Decisions

    I went to the Urologist that my urologist of 10 years referred me since my urologist at 10 years is not qualified to do any reconstructive surgery in case I need that. This was Monday.

    I first saw...
  24. Thread: leg swollen

    by Brinda41
    Replies
    9
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    2,427

    I had this exact same concern back in 1995....

    I had this exact same concern back in 1995. Fortunately, I had just gotten onto the Internet (been on the Internet in people's homes was pretty new back then) and I didn't even know how to use it. To...
  25. Understood KLD and I truly appreciate your candid...

    Understood KLD and I truly appreciate your candid response. I also appreciate all of your input! Here's hoping you have a great holiday season!!!
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