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Type: Posts; User: ButterflyMom

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  1. Replies
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    Thanks Brian, that's interesting to know. I try...

    Thanks Brian, that's interesting to know. I try to read what you guys post about handcycles: One day I'd really like to get one. I'm not very mechanicaly inclined; I assumed and thought I read on...
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    8,337

    That's a pretty cool and very ingenious setup. ...

    That's a pretty cool and very ingenious setup. I'm no where near setting that up for myself, but I'm curious: The wheels on the wheelchair only have two bearings, correct? So, wouldnt that make...
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    1,033

    I have the PRx on mine. I was getting pressure...

    I have the PRx on mine. I was getting pressure sores on my sit-bones (from previous cheap shower chair) and needed the extra cushioning. The cushion lasts longer than previous chair's cushion also.
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    165,862

    Sticky: 1. United States 2. USAF (Aircargo...

    1. United States
    2. USAF (Aircargo Specialist)
    3. 1984-1989
    4. Not service related
    5. I got out of the Air Force a few months before Desert Storm, Was hard watching the people I worked...
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    My Dad raised goats when I was a kid, growing up...

    My Dad raised goats when I was a kid, growing up in Pa. They really are cute! I even had my very own that I had to take care of; her name was Vanilla & she had a brother named Chocolate. I miss...
  6. That's awesome, thanx POP0367, will do Rebecca

    That's awesome, thanx POP0367, will do
    Rebecca
  7. Thank you KLD, I was in the Air Force for four...

    Thank you KLD, I was in the Air Force for four and ahalf years, active duty, honorable discharge. I enlisted right after Grenaida and discharged right before Desert Storm. This time period is about...
  8. That is such unbelievably good news. When I had...

    That is such unbelievably good news. When I had my accident the hospital/rehab looked into the VA for me because I am a veteran, but where ever they were looking, they were told I don't qualify...
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    One day/One moment at a time...hang in there...

    One day/One moment at a time...hang in there Betheny, Yes, tomorrow is another day...
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    2,178

    after my aumentation/stoma surgery, I still...

    after my aumentation/stoma surgery, I still continued to have leakage/accidents. the augmentation gave me good volume, but my bladder still had spasms irregaurdless. Auxibutynin did'nt work for me....
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    Pretty much like anything else: just gotta try...

    Pretty much like anything else: just gotta try it. I wasn't sure if I'd be able to either; I'm medium to short so I didn't think I'd be able to reach. But I can in most places. I make sure I park the...
  12. You do have a Beautiful Smile...love it and good...

    You do have a Beautiful Smile...love it and good luck.
  13. Replies
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    I'm T-4 also, The first time I went swimming...

    I'm T-4 also, The first time I went swimming after my accident, I had 3 friends with me. I had no Idea what my body would do and I thought I was going to drownd. It was wierd: My lower body wanted to...
  14. Replies
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    When I had my stoma surgery, I also had an...

    When I had my stoma surgery, I also had an augmentation. Even after everything healed I was still leaking. But my leaking was caused by my bladder spasming. I am now on two different medicines to...
  15. I'm no expert and have not experienced this, but...

    I'm no expert and have not experienced this, but my first thought is an infection. Not of the bladder but maybe some bacteria inside the Stoma Canal. Deninately see a Dr. before it gets worse. I...
  16. Thread: Baclofen

    by ButterflyMom
    Replies
    11
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    4,483

    I'm no expert, can only go by my own experience...

    I'm no expert, can only go by my own experience and from what I remember others here on CC stating. When my spasticity started it wasnt too bad but my Dr. was in a hurry to start me on Baclophen,...
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    When I ordered my new shower/commode chair, I...

    When I ordered my new shower/commode chair, I also considered the smaller wheels. I measured the heights and it seemed like there would be no problems fitting over the toilet. I got lucky and the...
  18. I had to watch that a couple of times: His legs...

    I had to watch that a couple of times: His legs smacked but it looked like they didn't smack flat or hard, there was some angle to him. Otherwise, it looked like a blast. If I wasn't afraid of...
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    I got the Medecare survey and chose not to fill...

    I got the Medecare survey and chose not to fill it out because, yes, it is voluntary; and I don't have Medicare part B and I haven't been to the doctors in the past six months: which is mostly what...
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    As I read your posts I'm just wondering IF maybe...

    As I read your posts I'm just wondering IF maybe the problem isn't stoma leaking but maybe the bladder is spasming?? I got a bladder augmentation with the stoma last year. even after the surgery I...
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    Megha, my stoma leaks a small amount. I take two...

    Megha, my stoma leaks a small amount. I take two different medicines for the bladder spasms, which help alot. (A stoma or Mitrofanoff wont stop the spasms.) But before my stoma, I was restricted...
  22. Thread: Shoes????

    by ButterflyMom
    Replies
    63
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    11,685

    I wear shoes for all the safety/protection...

    I wear shoes for all the safety/protection reasons already mentioned; But I also wear them because the weight of my sneakers helps to contain my spasticity/tone. When I take my shoes off, the...
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    We need more of that, ThankYou

    We need more of that, ThankYou
  24. Replies
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    3,806

    Coolbreeze, did that help at all? (I don't...

    Coolbreeze, did that help at all? (I don't Really know what the cog nut is or how it works. I'm guessing its the nut that the wheel meets up against?) I don't know enough about axles to feel...
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    Hi Coolbreeze, my wheelchair is tippy also. I...

    Hi Coolbreeze, my wheelchair is tippy also. I don't know very much about the proper mechanics/balance, but I had lowered the "dump" on my chair by only a little and then I noticed it was more tippy....
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