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  1. Replies
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    Regarding sleep and being extremely sound...

    Regarding sleep and being extremely sound sensitive... maybe your body can adjust to white noise?

    I know I have trouble sleeping without white noise. I actually use both fans and a white noise...
  2. Finding and Evaluating Long-Term Care Options

    Hi all,

    A fellow high-level quadriplegic is wondering about how to find and evaluate long-term care options.

    She is also a ventilator user, currently living with her parents in the Orlando...
  3. Here is a similar option I have used: ...

    Here is a similar option I have used:

    http://www.vitalitymedical.com/sterile-lubricating-jelly-2-7-gram-foil-pouch.html

    I cannot feel it, but my caregivers say it works well if you massage the...
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    It happens to me periodically as well. Sometimes...

    It happens to me periodically as well. Sometimes I can "power through" a meal without taking a break to rest my jaws; other times five or six bites of something can tire them out.

    I have yet to...
  5. I second the Tecla Shield. One of the cool things...

    I second the Tecla Shield. One of the cool things about it is you have your choice of device (iPhone or android, tablet, etc.) and it will work with any type of switch input.

    Nice video Ian. The...
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    Thank you GJ. Yes, I also take potassium when...

    Thank you GJ.

    Yes, I also take potassium when I take Lasix.

    That's interesting about limiting water intake to 2 L. I did not realize 3 L might be too much. Fortunately I have been blessed to...
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    Thank you pbr Yes, the swelling does go down...

    Thank you pbr

    Yes, the swelling does go down over the course of my time in bed, but sometimes Lasix provides an assist. When the puffiness is moderate, I skip Lasix, but when it is more severe...
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    I take 400 mg once a day. I don't swallow well,...

    I take 400 mg once a day. I don't swallow well, so I have chewables, but also have some capsules which can be pulled apart and mixed in juice. These are the capsules I take:
    ...
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    Swelling / edema? what is normal?

    Hi all.

    How much swelling or edema is "normal" for you, or in general for people who spend a good number of hours daily in a wheelchair?

    I was injured at age 20, and for about the first 15...
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    I agree with everyone above. My bowel routine...

    I agree with everyone above.

    My bowel routine is four times a week, so buying by the 100, we always end up using some expired magic bullets.

    Praise the Lord, there seems to be no issue with...
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    I second this. Congratulations to Brian on a...

    I second this. Congratulations to Brian on a truly extraordinary achievement!

    I know you are a proud dad, Roger. Rightfully so.
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    Welcome to CareCure my friend. :) Thanks for...

    Welcome to CareCure my friend. :)

    Thanks for elaborating on what I briefly mentioned above.
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    Hi again TThomas, It would be great if a...

    Hi again TThomas,

    It would be great if a phrenic nerve pacer, or diaphragm pacing system might work for Wyatt, but I'm encouraged by what you wrote above. To find out that he is eating, talking,...
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    Hi TThomas. I can relate with much of what you...

    Hi TThomas.

    I can relate with much of what you have written from the patient's perspective.

    I am a C1-2, Shepherd Center alumnus. Being a higher level injury, I was not able to wean, but I hope...
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    My mattress is an Atmos Air with "Self Adjusting...

    My mattress is an Atmos Air with "Self Adjusting Technology" but I think it has been discontinued. Even though it has "air tubes" in it, I like that it is nonpowered and thus (seemingly) more...
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    Hi all, I have been meaning to update this...

    Hi all,

    I have been meaning to update this thread for some time now.

    To make a long story shorter, I eventually discovered that it seems secretions can really affect my voice, even relatively...
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    Thank you StarLord. I still notice the...

    Thank you StarLord.

    I still notice the swinging/shifting also. Maybe we will try to fasten a bungee cord. If we don't figure out a way, I might ask you for a picture – just a heads up! :) But, my...
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    Thank you StarLord. Sorry for the delay, but...

    Thank you StarLord. Sorry for the delay, but somehow I did not see this reply when you sent it.

    I recently got an in use carry bag from Respironics, and we attached it similarly to what you...
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    Thank you Smashms. I may have discovered a good...

    Thank you Smashms. I may have discovered a good alternative.

    I did a Google search and found an ALS forum similar to CareCure, which had some users talking about strapping their Trilogy 100...
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    SCI_OTR, I know this thread is a bit old, but...

    SCI_OTR,

    I know this thread is a bit old, but did you successfully collaborate with Permobil to design a solution for Trilogy 100 ventilators?

    The Permobil C500 standup chair that I originally...
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    Thank you for your thoughts Linda. My...

    Thank you for your thoughts Linda.

    My secretions are reduced by wearing the PMV also. I think it's because there's less humidity in the vent circuit for one, due to the PMV. Just don't get...
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    A belated update... My voice is some better,...

    A belated update...

    My voice is some better, but still not as strong as it was before it suddenly went soft in December.

    For comparison purposes, the "Meet Bill Miller" video I linked in the...
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    For you all who are using DragonDictate... which...

    For you all who are using DragonDictate... which DragonDictate are you referring to?

    I'm using a really old version, DragonDictate Classic Edition, which is copyrighted 1993-1997 and was abandoned...
  24. Voice software... using it hands-free...

    Hi all,

    I'm preparing to switch to Dragon NaturallySpeaking, and I've found a program that can make it much more user-friendly for hands-free operation.

    The program is called SpeechStart+ which...
  25. I've used Yahoo messenger to text phones, which...

    I've used Yahoo messenger to text phones, which is also free, but receiving return texts seems to be problematic occasionally. I think I'll try Google voice.
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