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Type: Posts; User: rahilka

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    Short blog entry about some of the early results...

    Short blog entry about some of the early results we're seeing since we've been home, in case anyone is interested.
    ...
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    I can understand that - questioning why you'd do...

    I can understand that - questioning why you'd do it if you could already walk. But I guess everyone wants to improve, regardless of what their situation is. Even though he walks, he still had...
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    If they're 0-24 months from injury, then, sure -...

    If they're 0-24 months from injury, then, sure - lots of changes happen during that time period, and it's hard to say where the credit goes. But for people who are 5-10 years from injury, I don't...
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    @Barrington - We already have some great exercise...

    @Barrington - We already have some great exercise equipment - which I agree is a great investment. But it only gets him so far, and we wanted to do more. And there are people who really truly have...
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    @Vgraf - I'm surprised that you didn't meet...

    @Vgraf - I'm surprised that you didn't meet anyone who had positive results. I think spinal cord injuries are one of the more difficult conditions they treat, with more variability in results. But...
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    We're nearly done with treatment - we've been...

    We're nearly done with treatment - we've been here four and a half weeks, and we're leaving on Sunday.

    Daniel has felt pretty rough most of the time here - frequent headaches from the lumbar...
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    @RDF - You had asked if he was getting sick or...

    @RDF - You had asked if he was getting sick or having any side effects from the treatment. This weekend he started feeling sick, and today he felt really really awful (fever near 102F) - horrible...
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    @Paolo - Thanks for the encouragement! Don't...

    @Paolo - Thanks for the encouragement! Don't worry, I won't be run off! Anyway, I'm agnostic (though hopeful) about this whole thing - maybe we'll have great results, maybe we'll have none, but I...
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    @RDF - he had a wicked headache the morning after...

    @RDF - he had a wicked headache the morning after the first spinal canal injection, but that was it, and that's supposed to be pretty common. He didn't go straight to bed after the injection that...
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    Yes, he has. Last week he got one injection via...

    Yes, he has. Last week he got one injection via IV, and two into his spinal canal. He has the same schedule for this upcoming week - one more via IV, and two more into his spinal canal. No signs...
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    @FlyPelican - very interesting. I would love to...

    @FlyPelican - very interesting. I would love to know more about that. The reps here did tell me when I visited in June 2011 that they were involved in trials with the Miami Project. This is the...
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    @Christopher - I'm not sure about either of your...

    @Christopher - I'm not sure about either of your questions. I would love to know more about the thought process of the people at the Miami Project, but I don't have any contacts there - hoping Wise...
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    @Wise Young - always a pleasure to have you join...

    @Wise Young - always a pleasure to have you join the discussion! We talked quite a bit with the CEO on our first day here (Monday) about the umbilical cord sources, and were assured that they only...
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    FYI, I have posted Daniel's pre-treatment ASIA...

    FYI, I have posted Daniel's pre-treatment ASIA scores to his blog. As promised, we will eventually post post-treatment ASIA scores, as well. http://danielleonard.weebly.com/blog.html

    We are on...
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    I considered Medra for my brother, but was not...

    I considered Medra for my brother, but was not able to find a single person who had been there and who recommended it. Anyone I talked to who had been there was disappointed with their results.
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    @Colin - I'm excited and apprehensive and...

    @Colin - I'm excited and apprehensive and everything in between. But, yes - he wants very much to try this, and as his sister, I want it for him - so I am excited that we're making it happen.
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    By the way, for those who suggested that I email...

    By the way, for those who suggested that I email Wise Young about this clinic - turns out someone already has. For those who are interested, here's a link to Dr. Young's response, which I think is...
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    @Jim (and others) - we had his ASIA scores taken...

    @Jim (and others) - we had his ASIA scores taken by his physical therapist a week or two ago - I plan to post them to his blog as soon as I get a copy for myself. And we definitely plan to get him...
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    @RDF - You're familiar with the University of...

    @RDF - You're familiar with the University of Miami and their SCI research, right? They have the Miami Project there, and their hospital. When I was in Panama, the people I talked to at the Stem...
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    For those who are interested, this is an...

    For those who are interested, this is an interesting paper written about one of their patients and his results - http://www.intarchmed.com/content/pdf/1755-7682-3-30.pdf. Some of you may have read...
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    @ineedmyelin - I am familiar with the 60 minutes...

    @ineedmyelin - I am familiar with the 60 minutes story that you're referring to. I was very disappointed in how one-sided it was, and I have read that it was paid for by Pfizer (though I haven't...
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    In the information packet they sent us before we...

    In the information packet they sent us before we made our appointment, it said the cost of the treatment was approximately $35K. However, our appointment confirmation email said the actual cost is...
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    Sure - their website is...

    Sure - their website is http://www.cellmedicine.com/. The page detailing the protocol for spinal cord patients is http://www.cellmedicine.com/treatment/spinal-cord-injury/.

    Let me know if you...
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    Also, if anyone on here has been to the Stem Cell...

    Also, if anyone on here has been to the Stem Cell Institute in Panama already, I'd love to hear about your experiences, and any advice you have.
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    Stem Cell Institute in Panama

    I'll be accompanying my brother, a C3-C5 quad, to Panama City, Panama, for stem cell treatment at the Stem Cell Institute there. We'll be in Panama from Feb 4 - March 11. I know this is a subject a...
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