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  1. Replies
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    The only thing besides vitamins is he takes...

    The only thing besides vitamins is he takes sennekot twice a week for bowel program. He's done that since his injury. He has a baclofen pump for spasms and that is it. He takes A LOT of tylenol...
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    He is 39 and on no meds, only vitamins. MRI was...

    He is 39 and on no meds, only vitamins. MRI was of the brain and was totally normal.
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    Loss of Memory/confusion - Help

    My dh who is 13 years post injury, has started having episodes where he loses his short term memory. It starts with him asking me what day it is. Then we come to find out he cannot remember what we...
  4. Thread: Severe Dysreflexia

    by jjs
    Replies
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    1,521

    His dr prescribed lydocaine (sp?). We tried it...

    His dr prescribed lydocaine (sp?). We tried it on his last bowel program and it didn't do anything. That is when we decided he needs more medical attention. His dr brought up a hemorroid but I...
  5. Thread: Severe Dysreflexia

    by jjs
    Replies
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    1,521

    Dh is talking with his physiatrist that he had...

    Dh is talking with his physiatrist that he had when he was in an SCI rehab 12 years ago. This has been his main SCI dr since injury. This doctor has routinely brushed off things that dh complains...
  6. Thread: Severe Dysreflexia

    by jjs
    Replies
    8
    Views
    1,521

    Severe Dysreflexia

    My dh is C5 post injury almost 11 years. Over the past 11 years he has had mild cases of dysreflexia (ie sweating, headaches, etc.) About a week ago he had a severe case where he was screaming and...
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    Accessible vehicle that seats 6??

    We currently have a side entry mini van. With our daughters car seat in the back, we can only carry one additional passenger. We are now expecting triplets. So we need an accessible vehicle that...
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    SCI Step or similar in Eastern PA?

    Does anyone know if there is a program similar to SCI Step or Project Walk that is in the Eastern part of PA. Like the Philadelphia area?

    If not, what are the closest ones to my area?
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    Thanks so much for all of your replies so far. I...

    Thanks so much for all of your replies so far. I know I am pretty sensitive to this kind of thing. That's why I asked for advice.

    We have been to this same picnic for the last 5 years. Never...
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    How do you handle...

    We went to a picnic this past weekend. It was held at the home of a friend of mine for over 20 years. When we got there, all the guests were on a patio out back. The patio was raised about 12" off...
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    Great idea! I had not thought of this. After...

    Great idea! I had not thought of this.

    After 9 years of SCI, I think it will be awesome for my dh to finally travel without me and have some independence again.
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    I am not going on the trip. If I was it wouldn't...

    I am not going on the trip. If I was it wouldn't be an issue. He is going with my brother (which he surely does not want his brother-in-law doing a BP for him.
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    Program when traveling

    My dh does not do his own bowel program. He is thinking of traveling with a family member in a few weeks but we are unsure of how to do his program when traveling. Has anyone used a nursing agency...
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    Thanks a lot for this info. We have always had...

    Thanks a lot for this info. We have always had trouble when traveling. We never had something we could take with us. The true travel ones are SO expensive. The one you mentioned is so affordable....
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    Accessible Disney World

    I am mainly looking for hotels that people have had experiences with at Disney. Also looking for info on Disney shuttles and accessibility.

    Of coarse any other info that you may have that would...
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    I have a 14 month old daughter. My husband (C6)...

    I have a 14 month old daughter. My husband (C6) was 5 1/2 years post injury when we conceived her through IVF. We used testicular biopsy to get the sperm. Unfortunately the stimulation did not...
  17. I am just getting ready to start our second...

    I am just getting ready to start our second IVF/ICSI cycle in September. Our first IVF/ICSI was successful and we have a one year old daughter. We had 8 eggs retrieved and 6 fertilized. We...
  18. Thread: father-to-be...

    by jjs
    Replies
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    I'm a little late to respond here but my hubby...

    I'm a little late to respond here but my hubby stays home full time with our 9 month old. Hubby is C5. Some of the best advice we got was from this site. The card table for a changing table works...
  19. Thread: Walking Pneumonia

    by jjs
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    1,008

    Walking Pneumonia

    MY cousin's son has walking pneumonia. He has just started antibiotics and my cousin says he will not be contagious after a few days. We are supposed to go to their house for a birthday party this...
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    Thank you all so much. I don't know why I didn't...

    Thank you all so much. I don't know why I didn't think of an extension tube. Such a simple solution. I'll tell him to try that. It will make life so much easier, not to mention will get him more...
  21. Thread: Wanting a Baby ---

    by jjs
    Replies
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    12,682

    My husband and I too tried the Ferticare with no...

    My husband and I too tried the Ferticare with no results. He also has a baclofen pump. We actually never thought of the pump being the problem but that makes sense. Well, anyway we were also ready...
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    intermittent catheters

    Is there a male catheter that is long enough to use without having to use a urinal? It seems like the catheter should be long enough for a male in a wheelchair to reach the toilet. My husband is a...
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    I really appreciate all of your advice. I've...

    I really appreciate all of your advice. I've been relating it all back to my husband. We have decided to first try getting him off of the sennekot. So he has started taking one sennekot instead of...
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    Another thing, doesn't fiber make your stool...

    Another thing, doesn't fiber make your stool looser? Wouldn't that defeat the purpose? I've wondered about fiber myself.
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    Thanks for all the replys. During his program...

    Thanks for all the replys. During his program the consistency is usually good until near the end when sometimes it seems to be very loose. I have thought about the idea of going back to every day...
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