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  1. Replies
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    I thought this was interesting at the end and how...

    I thought this was interesting at the end and how the author made a lot of comments on the translation and implementation.

    "If the SCI patient...
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    Here you can watch the archived conference. ...

    Here you can watch the archived conference.

    Day 1: https://videocast.nih.gov/Summary.asp?File=27326&bhcp=1
    Day 2: https://videocast.nih.gov/summary.asp?Live=30198&bhcp=1
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    You can watch the conference this Tuesday and...

    You can watch the conference this Tuesday and Wednesday here! https://videocast.nih.gov/summary.asp?live=30194&bhcp=1

    And, yes, I will be attending! Much of the North American Spinal Cord Injury...
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    Here is your chance to express your opinion and...

    Here is your chance to express your opinion and voice for the consumer panel. The North American Spinal Cord Injury Research Consortium (NASCIC) is looking to gather information from the community...
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    Niall, thanks for your input into this! What...

    Niall, thanks for your input into this! What other thoughts about distruption, barriers to treatments or changes do we need from the scientific community? We need more from our community to come to...
  6. It’s partial return of function. Most of the...

    It’s partial return of function. Most of the people that received the implants are AIS A.
  7. NRT or any other SCI treatment will not happen...

    NRT or any other SCI treatment will not happen unless we get more investor buy in. It's sad to see good technology not being able to help people because of funding and not the technology.
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    How has that been applied? Nothing meaningful...

    How has that been applied? Nothing meaningful has successfully made it through the FDA pipeline.
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    Right to Try and SCI?

    President Trump signed the Right to Try bill into law. What are everyone's thoughts? Will this affect us (SCI)? Good or Bad? Will researchers and/ or companies follow this route?
    ...
  10. Opps, I posted this too early. Please ignore.

    Opps, I posted this too early. Please ignore.
  11. You can get on their participant registry...

    You can get on their participant registry database and learn more about this trial here https://www.estand.org/

    This is a great study if you can commit to monthly visits in Minneapolis for a year...
  12. Here is a video taken in November 2017 with Nick...

    Here is a video taken in November 2017 with Nick talking about the progress and technology. https://youtu.be/glBAHp3YpU4
  13. It is frustrating that any news good or bad can't...

    It is frustrating that any news good or bad can't be announced as it happens. For me living with this decrepit injury, every day matters. I do understand the peer review journal process, but it...
  14. No disruptions so far.

    No disruptions so far.
  15. It is up and running again. Just an...

    It is up and running again. Just an administrative error with the website.
  16. Getting 100 people through all has to do with...

    Getting 100 people through all has to do with funding.
  17. Here is a talk from W2W from Dr. Darrow, who is...

    Here is a talk from W2W from Dr. Darrow, who is the PI, about this study.

    https://vimeo.com/album/4252235/video/191041172
  18. ESTIM Clinical Trial (Epidural Stimulation in Minnesota)

    The epidural stimulation clinical trial in Minneapolis, Minnesota began enrolling today! You can find out more at this website.

    https://www.estand.org/

    Here is the inclusion and exclusion...
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    Minnesota SCI Research

    Here is an update of research going on in Minnesota. The state research grant has funded its second round of research.

    http://www.ohe.state.mn.us/mPg.cfm?pageID=2197

    Currently, there is a...
  20. Yes, that was a good article. Mark Pollack has a...

    Yes, that was a good article. Mark Pollack has a blog where he had posted a similar video last fall with him using transcutaneous stimulation. I'm looking forward to hearing more about transcutaneous...
  21. If you can write one this fourum, you can look up...

    If you can write one this fourum, you can look up your legislators and write or call them to ask for support for research. It does make a difference. I am a C4 quad with no arm function and helped...
  22. Right now, some advocacy leaders and myself have...

    Right now, some advocacy leaders and myself have been working to build a united advocacy coalition for research. If you are interested, you can PM your email to me and I will add you to the list....
  23. Dr. Silver, Thank you for responding and...

    Dr. Silver,
    Thank you for responding and engaging our community through this channel. I am excited about this peptide and the Ch'ase developments.

    A few questions:
    1) Can you give us an actual...
  24. More information will be published soon (weeks to...

    More information will be published soon (weeks to 3 months most likely). It is exciting that this research is expanding.
  25. Mayo Clinic will be identifying and recruiting...

    Mayo Clinic will be identifying and recruiting internal patients for now. They want to maintain the same health records from the beginning of the injury to the treatment. Hopefully it will expand in...
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