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  1. Replies
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    I haven't increased it in years. That's another...

    I haven't increased it in years. That's another option I guess. I just hate to go too high on this stuff.
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    muscle pulling tight - unstable core

    My injury level is c6-7. Three years ago, my left leg fell off of the foot holder on an electric chair while I was tilted back. Three years before that I had weakened the muscles or something in the...
  3. I'm in the 900 range too. Haven't heard of the...

    I'm in the 900 range too. Haven't heard of the PTM. Will check into it.

    PBR, I had a dye test, which indicated the pump is working fine, but here I sit getting twisted with super high tone.
  4. Baclofen pump - Building up a tolerance to medication

    I've been using baclofen pumps for over 20 years to help with spasticity. In the last few years, my torso has become extremely tight and wants to pull to one side. Last night,, I had a fan ...
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    Sticky: https://www.prnewswire.com/news-releases/stemcyte-...

    https://www.prnewswire.com/news-releases/stemcyte-receives-phase-ii-investigational-new-drug-ind-clearance-from-the-us-food-and-drug-administration-fda-300772277.html

    This press release states...
  6. The only type of chiropractor I would see is one...

    The only type of chiropractor I would see is one who uses an activator tool. This is not too invasive. I would totally avoid chiropractic care that involves drop tables or physical manipulation with...
  7. Thanks for the input. Gives me more things I can...

    Thanks for the input. Gives me more things I can talk to my nurse practitioner about on Tuesday. I've also had an increase in high tone at the same time, which I think is causing this. However, I...
  8. I'm eating the same diet that I always have. I...

    I'm eating the same diet that I always have. I went to bed three hours early last night to help with the edema. It did work to some point (I cathed five times, but will need to do it again tonight...
  9. High Muscle Tone -- Swollen Legs - Low Urine Output

    My injury level is c6-7.

    I started swimming once a week about seven weeks ago. I was hoping that would help the high tone I have in my core. I have swam before, and after the sessions I always had...
  10. Thread: Broken spoke

    by ouch
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    Invacare A4. There's a sticker on the inside of...

    Invacare A4. There's a sticker on the inside of the wheel that says ''sun rims sw6000.''
  11. Thread: Broken spoke

    by ouch
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    Broken spoke

    I have a broken spoke on one of my wheels.. What's the best way to fix this? Bike shop?
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    Surprisingly, after I read your advice, the wheel...

    Surprisingly, after I read your advice, the wheel actually came off when it was pulled on. It was full of rust so I used some WD-40 and silicon lubricant spray.. Now, it's as good as new. Thanks.
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    quick release on wheel is not working

    The quick release button presses in on my wheel, but the wheel won't come off. Can someone tell me what might be wrong and how I fix this? I don't want to get stranded without a wheelchair if I need...
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    How long does a baclofen pump catheter last?

    I am still sitting here after four hours trying to straight cath. My groin is so tight and just stays that way. The tension is also in my back and pulls my core to the left. I have taken my legs and...
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    25 years next June. I've never been depressed....

    25 years next June. I've never been depressed. Just pissed off and how stupid this is.
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    Insanely High Muscle Tone

    My injury is at the C6-7 level. Three years ago, my left leg fell off of a wheelchair foot support when I was tilted back. I'm not sure what happened inside, but my torso area between my ribs and...
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    Is there a lifespan on a catheter? I know they...

    Is there a lifespan on a catheter? I know they can do a test to see if there are any leaks.
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    Maybe an oral med at night might help. A few...

    Maybe an oral med at night might help. A few years ago, I tried Valium, but ended up havin really crazy dreams That actually made things worse.
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    HighTorso Rigidity

    My injury level is c6-7. I am getting stiffer and stiffer in my upper body. I'm able to loosen up a little bit during the day by the end of the night. I go to bed and start the whole thing over the...
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    Scoliosis trunk support

    I am C6-7 quadriplegic. After having my left leg dropped three years ago, my left side has been arching out. I have been wearing a stomach binder, but it is now cutting into my right side, which...
  21. Thread: acupuncture

    by ouch
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    Well this sounds encouraging. I found an...

    Well this sounds encouraging. I found an acupuncturist who has good reviews, so I'm going to give this a try and hope that I get some good results too.
  22. Thread: acupuncture

    by ouch
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    2,690

    acupuncture

    Has anyone had good results with acupuncture for high-back tone that doesn't react to a baclofen pump? I'm getting pulled to my left and my pump isn't helping at all.

    Or... Just experience with...
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    Botox in back muscles

    I had a baclofen pump refill appointment last Friday. I told the nurse practitioner about my problem with twisting back muscles.. He mentioned Botox.. Has anyone had that put in their back...
  24. I had surgery two and a half years ago. Of...

    I had surgery two and a half years ago. Of course, everyone is different,, but here's what I did.

    Stayed in bed for two months. At that point the area looked nice and healed so I started my...
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    Torn back muscles and paralysis

    If someone with paralysis tears a back muscle and it's a grade 3 injury that requires surgery to repair, would a doctor perform the surgery? I would imagine there would have to be some rehab after...
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