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Type: Posts; User: pnadolsky

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  1. Replies
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    We are going to Cincinnati Children's so my son...

    We are going to Cincinnati Children's so my son can learn how to use the Peristeen. Edgepark Medical in Ohio is the supplier. We haven't actually used it yet or physically seen it, so we don't know...
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    Oh my, Dr. Kerr is wonderful! He has always...

    Oh my, Dr. Kerr is wonderful! He has always answered everyone of our emails within a very timely manner. He has been my son's doctor since his occurrence of TM in November, 2005.

    Ben has had...
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    spinergy flexrim

    Has anyone used the spinergy flexrims? Please let me know your thoughts about this product.

    Thanks so much!

    Pam
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    Thank you so much for the information. Ben is...

    Thank you so much for the information. Ben is trying out the MagicWheels. He loves/hates them right now. You are right. They work well on short grades, but he is on a constant upgrade for quite...
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    Emotion Wheels or Magic Wheels??

    My son attends a school that is rather hilly. He needs help. Does anyone have any views about the e-motion wheels versus the Magic wheels?? He is a T-10 complete para. He just needs assistance in...
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    Cold Feet and TM

    My son is a T-10 complete from transverse myelitis. Yesterday, his right foot and calf were extremely cold. His left leg and foot was fine. This morning it was warm again, but all day yesterday it...
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    TopEnd (Invacare) Crossfire

    My son has one. He loves it! He doesn't have the titanium version, but it's lightweight and easy to manuever.

    Only problem he can find is the paint chips.
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    I am so glad it was posted again. This is the...

    I am so glad it was posted again. This is the first time I have seen it. I haven't signed on in a while.

    Thank you!
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    Nathan's Nanny please read

    I have tried to send emails, but all have been returned. I would love to talk to you. We thought we were the only ones out there.

    Please send an email via this site.

    Pam
  10. Hi Deb, Thank you for the information. Pat...

    Hi Deb,

    Thank you for the information. Pat Neal refused us, because Ben is a child. I will try UT Hospital and Associated Therapeutics. We have been going to The Therapy Center for PT in...
  11. We were there from Dec. 6, 2005-March 14. 2006. ...

    We were there from Dec. 6, 2005-March 14. 2006. We are here again in June and will return every 3 months at least. It is a good program. We have had a good experience. If you want any further...
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    My son's muscles are completely flaccid. He has...

    My son's muscles are completely flaccid. He has nothing from the waist down. We can't give up hope. His injury from TM started at T4 and the damage included the rest of the cord. He also has...
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    You should really check out KKI and the...

    You should really check out KKI and the International Center for Spinal Cord at KKI with Dr. John McDonald. My son is a T-10 complete, but they offer encouragement and hope with...
  14. Thread: Tm Mri

    by pnadolsky
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    2,858

    My son had 3 MRIs done at KKI/John Hopkins. They...

    My son had 3 MRIs done at KKI/John Hopkins. They were looked at by Dr. Kerr and Dr. McDonald. Dr. McDonald went over them with me. You could see the damage to the cord. There were small pin...
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    My son is 9. He was diagnosed with TM in Nov....

    My son is 9. He was diagnosed with TM in Nov. 2005. He is a T-10 complete.

    Pam
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    What are regenerative and remyelination therapies?

    Wise,

    What are regenerative and remyelination therapies? My 9 year old son was diagnosed with TM on 11/20/2005. He is a T-10 complete; however his inflammatin occurred from T-4 to the end of the...
  17. Thank you.

    Thank you so much for responding. We are glad to meet you.

    Thanks so much for the information. I will check into it.

    Pam
  18. Thread: TM anyone?

    by pnadolsky
    Replies
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    7,213

    My son was diagnosed with TM on 11/18/2005. He...

    My son was diagnosed with TM on 11/18/2005. He is a T-10 complete. He is paralyzed from the waist down. We have been at KKI until last week. He has been doing restorative therapy. We are hoping...
  19. Thanks for responding

    Hi,

    We are so glad you responded. Thank you. Have you found many folks in TN?



    Pam
  20. KY or TN

    I am a few miles from Louisville, TN. I am 6 hours from Louisville, Ky.

    Thank you.

    Pam
  21. I am interested

    I am only a few miles from Louisville. Can you give me her contact info.? I would be interested in talking to her.

    Thank you.

    Pam
  22. Are there any children or teens with SCI in TN?

    My son is 9 years old. He had TM on 11/18/2005. He is a T-10 complete. We are interested in finding anyone in the area with SCI. We are in Knoxville. We returned from KKI last week. Good experience....
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