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  1. I am very sensitive, but coming off neurontin was...

    I am very sensitive, but coming off neurontin was a complete nightmare. I wasn't taking much, but the side effects really bothered me. So I weaned down over the course of MONTHS and still it...
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    Dunwawry, Sadly still just disjointed scribbles...

    Dunwawry, Sadly still just disjointed scribbles (in typed form) and big ambitions. I just had the sobering realization it’s been ten years since i wrote the frustrated tome to my doctors that...
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    Dunwawry, You might appreciate this thread. Can...

    Dunwawry,
    You might appreciate this thread. Can I add you to my list of consultants?
    http://sci.rutgers.edu/forum/showthread.php?t=65187
  4. You have to say to befuddled strangers multiple...

    You have to say to befuddled strangers multiple times a day "My legs have a mind of their own."

    You fear maiming yourself trying to stop the clonus.

    (Foolish: I would LOVE to learn how to...
  5. Thank you Max for posting the full article...

    Thank you Max for posting the full article (though I venture to say you underestimate the luminosity of the rest of our community). I don’t know any of you and I don’t have much of a handle on the...
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    Clonus management epiphany

    My clonus is ceaseless and bilateral, and the only way I can pause it is moving around. Maybe you all already know this, since people/doctors always push down on my knees as if they think that will...
  7. I do hope you can find some brawn to help, and...

    I do hope you can find some brawn to help, and would think you might be successful calling the fire co and just asking for volunteers. if nobody wants just to lift you, guiding you up a portable...
  8. Ah, DeadEye, you underestimate me. Aren’t we all...

    Ah, DeadEye, you underestimate me. Aren’t we all ruefully talented at discovering elevation change where nobody ever imagined it (least of all the designers of purportedly accessible structures)?
    ...
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    John, I’ve been appreciating your exhortation for...

    John, I’ve been appreciating your exhortation for weeks.

    It strikes me today--how about suspended animation? That captures my hopes for re-animation in a post- George Bush world.
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    What about our prolific Nordic mountaineer whose...

    What about our prolific Nordic mountaineer whose name escapes me?

    Ah yes, anyone heard from Leif? I haven't been around to know he's missing, but in brief visits I haven't seen him My 'history'...
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    Cory, you da man! Thank you for helping me laugh...

    Cory, you da man! Thank you for helping me laugh out loud like I don’t do nearly enough.. And I am so impressed with your ingenuity and problem solving skills, don't know if I would have come up...
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    I think I'm with Zaphod. And JAD, whom I can't...

    I think I'm with Zaphod. And JAD, whom I can't guess how to abbreviate (forgive my presumption) I see the looming threat of tragic, that life ever will be only about managing, that I'll never get to...
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    Van Quad, please no aplogies--the delay was all...

    Van Quad, please no aplogies--the delay was all mine. Though you really shouldn't toy wih a girl'sd hopes like that...

    And I'm not really such a misanthrope. I'm always very sincerely...
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    Hi Mem. Sending a smile your way. I laugh...

    Hi Mem. Sending a smile your way. I laugh remembering the context in which I shared your Dr. King quote in a fax to my doctors. [yeah, I wrote this when the qute was in your aignature but got...
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    Looks like it, thanks!

    Looks like it, thanks!
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    Pudental nerve stim

    Interstim (sacral stim) failed to relieve my incontinence, and my doctor consoled me with mention that someone is coming out with pudental nerve stim within a few months. Has anyone heard of this? ...
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    Alarm clock solutions?

    My fingers no longer will hold down the alarm button so I can set my alarm; they let up and I reset the time. Does anyone have any suggestion for a different kind of digital alarm clock?
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    Seeking dressing aid advice

    I know there are devices out there to help with putting on your socks but I don’t have a sense of the universe of options. I also could use help getting my feet into my pants legs. Balance...
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    Monkey helpers

    I remember learning there is an organization that trains little monkeys to help disabled people. Can they help you get dressed and undressed?

    And does anyone train anything bigger that could...
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    The Urine smell

    Any tips for mitigating it between my getting the trash out?
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    I've had a similar question. The most difficult...

    I've had a similar question. The most difficult part of using the bathroom is standing to get my pants up and down. One doctOr suggets I IC but that would not remove the getting my pants up and...
  22. Digital recorders – voice recognition

    Now that showering is no longer the occasion for leisurely rumination it once was, those flashes of brilliance and insight sprinkled among the to do lists are happening en route to sleep and after...
  23. Any tips for getting up from the floor?

    Please move this if it should go somewhere else.

    I’ve missed a couple transfers lately and wonder if there are any remedial approaches I could learn to get back up when I slide to the floor.
    ...
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    Other than insulting my sense of fitness, are...

    Other than insulting my sense of fitness, are there any problems with having an elevated pulse--elevated compared to my normal or just in the 80s (seems you said only over 90 was a problem)? Do I...
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    Can 4-AP increase your pulse?

    I always had a resting pulse of 60. When orthostatic hypotension was bad it would go to 150 standing, but still return to 60 lying. Now it is consistently in the 80s and I’m wondering if 4-AP could...
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