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  1. Replies
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    Um, no! Sequester originated from the White House.

    Um, no! Sequester originated from the White House.
  2. I sometimes get AD and start sweating and...

    I sometimes get AD and start sweating and tingling before urinating out of my urethra within a minute or two after instilling straight VF or HC. I can't wrap my head around why it's fine most times...
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    This is almost exactly my story, including it...

    This is almost exactly my story, including it being 5 years ago that I had an SP placed. No major UTIs since. I drink a gallon of water a day to "flush" my bladder, which I believe has helped.

    As...
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    Your catheter is probably getting a bit clogged...

    Your catheter is probably getting a bit clogged due to debris from your surgery and when you lie down your kidneys are releasing faster and the catheter's not draining at full capacity and can't keep...
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    I'm sorry you're going through this! If you're...

    I'm sorry you're going through this! If you're not already, be sure and consult an infectious disease doctor. I had a similar issue with Pseudamonas a few years back and myself am near the end of...
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    James, My approach is very similar to darty's,...

    James,

    My approach is very similar to darty's, with some of gjnl's thrown in--like instilling VF daily. Unlike gjnl, I don't require an anticholinergic, and you may not either. I never wanted to...
  7. If nothing's wrong, e.g., an infection, adding...

    If nothing's wrong, e.g., an infection, adding more salt to your diet may help. My doctor told me that.
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    When I had a skin breakdown around my coccyx I...

    When I had a skin breakdown around my coccyx I pinched off the "tits" on my Roho in that area so the tailbone wouldn't be touching when I sat in the chair. I sprayed the area with Vetericyn VF in the...
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    I was in the hospital five times in a 5-month...

    I was in the hospital five times in a 5-month period in 2009. The stays were because I kept having to see my doctor for extremely low BP and tachycardia, which were caused each time by a UTI. The...
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    I purchase mine here. I get two of the 16 oz. VF...

    I purchase mine here. I get two of the 16 oz. VF to get free shipping. Never had a problem with them.
    https://www.calvetsupply.com/category/s?keyword=vetericyn
  11. That's exactly what I use to clamp my catheter. ...

    That's exactly what I use to clamp my catheter.

    I agree, GJ. The cyns should not irritate the bladder. And when I've used it on cuts it never causes the AD. I really don't like "wasting" it on...
  12. I use 30 mls,undiluted every single day. I'm...

    I use 30 mls,undiluted every single day. I'm probably overdoing it, but I'm sticking with what's working.

    Before my ID doc recommended I go to an indwelling (SP now) because I was getting...
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    Texas, It's been about 15 years since I...

    Texas,

    It's been about 15 years since I started the daily routine. I know it wasn't long before I'd trained my bowels (they called it bowel training in rehab) to go daily. There are days I'm...
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    Years ago, after leaving rehab, I used a...

    Years ago, after leaving rehab, I used a suppository while sitting in a shower chair and having digital stim done. It took about 45 minutes on average. Problem was those days when results didn't come...
  15. I agree with paramoto re. the bacteria count....

    I agree with paramoto re. the bacteria count. I've had counts of greater than 100,000 many times, but because I wasn't systematic my infectious disease doctor would not treat. I trust his judgement...
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    Have you been checked for kidney stones? Right...

    Have you been checked for kidney stones?

    Right now I have Pseudomonas in my bladder with a +100,000 count. I also have abdominal and back, let's call it... pressure, because it really doesn't hurt...
  17. I'm shocked that a liberal like Moonbeam didn't...

    I'm shocked that a liberal like Moonbeam didn't support this!
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    I was having a very similar problem as you two...

    I was having a very similar problem as you two years ago; four, well, five actually, hospitalizations in a five-month span because of a very stubborn Pseudomonas UTI. Finally had an ID (infectious...
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    It sounds like your bladder is so large that...

    It sounds like your bladder is so large that you're not getting enough coverage with the VF. In my opinion, increasing the number of daily instillations won't help if bladder coverage is the issue....
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    Hi Smiley, I, too, have had battles with...

    Hi Smiley,

    I, too, have had battles with pseudomonas.

    You may have bacteria up in your ureters, in which case the V won't touch it. I had a similar situation with odor, in spite of the V, which...
  21. caregver, When I was ICing I used the...

    caregver,

    When I was ICing I used the one-time-use disposable catheters. At night we would insert the catheter into my bladder, wrap some tape around the catheter at the "nipple" (taping it to the...
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    Hey darty, I, too, have a sp, and my bladder...

    Hey darty,

    I, too, have a sp, and my bladder has shrunk, as well. When I first started the instillations I would go maybe five minutes before the tingles and sweats started, followed shortly after...
  23. Thanks for the detailed response, Leila!

    Thanks for the detailed response, Leila!
  24. Hey dewie, JGNI is correct about the...

    Hey dewie,

    JGNI is correct about the resistance, but Leila is right, too. The microbes will adapt. Though it can be expensive, I believe you need to get this current infection under control, then...
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    I'm the same way. Most of the time I'm fine with...

    I'm the same way. Most of the time I'm fine with 60 ccs in the morning, but sometimes--today being one of those--in very short order I start the tingling and sweating, followed by the urinating...
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