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  1. Have they checked for a syrinx?

    Have they checked for a syrinx?
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    Bowel program problems in the hospital

    Hi Anthony is in the hospital he had a shunt revision on his shunt for his syrinx on Friday (the day he was supposed to have his next BP) he has not had a bowel movement since last Monday I tried...
  3. This rehabilitation facility more then likely...

    This rehabilitation facility more then likely would be interested in working with the walking therapy phase of this clinical trial. They work closely with the Tampa Veteran's hospital. It would be...
  4. caregiver needed in tampa (lutz), fl 1 day a week and respite care

    Hi, does anyone in the Tampa area now of any caregivers that would be looking for fill in work? It is for our 36yo quadriplegic son. If so please let me know how I can contact them, thank you.
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    we have taken anthony's past caregiver with us to...

    we have taken anthony's past caregiver with us to mexico and st thomas and did the same paying for flights lodging and usually always paid for her meals. I think we paid a flat weekly rate in...
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    For Anthony 36yo quadriplegic we hired a private...

    For Anthony 36yo quadriplegic we hired a private caregiver through craigslist started at $12.00 an hour over 4 years ago, now we pay her $15.50. Although can't give pay raises anymore but did now...
  7. WOW specialized 3D printer creating scaffod and stem cells?

    Anyone heard of this?

    https://www.rdmag.com/article/2018/08/novel-3d-printing-approach-shows-promise-treating-spinal-cord-injuries
  8. great app for people with no hand function to use phone or tablet with only head move

    This is a great app to let people with no hand function use a phone or a tablet with just head movements. I've tried everything and this really works Anthony will start using it
    ...
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    Hi did you ever end up using any of the companies...

    Hi did you ever end up using any of the companies in those links we will be going early january and found these links as well. It is late saturday so can't call until monday just wondering if you...
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    how to reenact a bill H.R. 1862

    I don't know much about legislation but can a bill be brought back? Specifically this one that no one seemed to care about.

    https://www.govtrack.us/congress/bills/112/hr1862/text
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    Yes but when dealing with large mega resorts it...

    Yes but when dealing with large mega resorts it is like trying to get through pit bulls to actually talk to a live person at the property . . . and it seems those are the only places that supply this...
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    Actually yes he said that we could bring our own...

    Actually yes he said that we could bring our own 4 point sling. Although since we are not familiar with this type of lift and I doubt they would show us. We opted to get a room elsewhere that had...
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    hey we are looking at the bellagio right now and...

    hey we are looking at the bellagio right now and actually have a maintenance guy calling me back with some questions I have with ada rooms. Anthony is a quadriplegic and cannot hold himself up we...
  14. thanks all for the info. Finally anthony is...

    thanks all for the info. Finally anthony is going to be set up at home with the Trilogy 100 only at night. He will be discharged tomorrow morning

    settings: PCFIMV TV 400, PEEP 5 PS 10 back up...
  15. just today I finally got a hold of a case manager...

    just today I finally got a hold of a case manager and she is going to have the respiratory therapist at the hospital contact the RT at the DME to try and get an actual Bipap machine the RT at the DME...
  16. Triumph do you have a trach? Tomorrow the resp....

    Triumph do you have a trach? Tomorrow the resp. therapist from the hospital is supposed to go over with the DME RT to talk technical and try to get this ordered properly for him. It will be for a...
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    they were giving anthony iv lasix for treating...

    they were giving anthony iv lasix for treating fluid around the lungs. they stopped that several days ago but just started with oral lasix 40mg every 24 hours. He is being intermittently cathed...
  18. I actually found that first article about the...

    I actually found that first article about the family using the Bipap for their son a couple of days ago when searching info regarding cpap vs. bipap and ventilator equipment. So I understand it is...
  19. Bipap machine for use with trach and/or trilogy 100 with bipap settings

    Anthony is in the hospital now. He has had two bouts of pneumonia and a major surgery for duodenum bleeding ulcer all happening in December and January. Anthony's Dr. wants Ant to have access to...
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    We actually have the Pflex but the picture you...

    We actually have the Pflex but the picture you are showing we don't have that middle part? Can a trached person use this?
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    UPDATE: there was not enough fluid in the lung...

    UPDATE: there was not enough fluid in the lung to drain so they continued him on diuretics, that has also now stopped. He was off the vent (only bipap setting) for over 18 hours starting Jan 30. ...
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    that was supposed to be bleeding duodenum ulcer...

    that was supposed to be bleeding duodenum ulcer surgery
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    fluid on right lung

    Anthony is in the hospital again he has fluid in/around? his right lung. They were treating it with dieretics(sp?). His pulmonary Dr. came in and said he wants to do this (thoracentesis): ...
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    Thanks i will ask. I am just so mad at this...

    Thanks i will ask. I am just so mad at this point. I hate Drs. who treat SCI like they are useless and already dead. They don't realize that they lead full lives and seem to have this pity...
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    thank you kd. I will definitely pass this along,...

    thank you kd. I will definitely pass this along, unfortunately no he is not in a SCI model system or even a teaching hospital for that matter or trauma center. I know he can get off the vent just...
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