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  1. You may want to consider a discussion with your...

    You may want to consider a discussion with your SCI-Nurse or Urology Nurse about a different catheter that has a valve that would allow pressure reduction.

    pbr
  2. I have not heard of it. Since is is so new I'd...

    I have not heard of it.
    Since is is so new I'd love to see the trials this company has run on testing it out.
    pbr
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    agree with above a stage IV wound lasting over 3...

    agree with above
    a stage IV wound lasting over 3 years needs surgical consultation, with diagnostic work up.
    The risk of bone infection (osteomyelitis) is highly likely.
    I am so sorry that your...
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    Check with the hospital where you got your...

    Check with the hospital where you got your surgery completed. Ask to speak to the ostomy-wound nurse. They would be a good resource of information.

    pbr
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    A stage IV pressure injury by definition exposes...

    A stage IV pressure injury by definition exposes bone. 90% of the time, this exposed bone is infected (osteomyelitis) which must be treated before any flap is attempted. Rarely will a stage IV...
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    You really should choose a cushion based on a...

    You really should choose a cushion based on a computerized interface pressure session with a good seating specialist who can evaluate your needs on a number of different cushions. There is no...
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    Not familiar with PA, but in CA, IHSS (In Home...

    Not familiar with PA, but in CA, IHSS (In Home Supportive Services) aides wages are determined by the county, and you are not allowed to supplement their wages with cash. If you do so, you can have...
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    Be sure your physician writes in the prescription...

    Be sure your physician writes in the prescription that you require a full-electric (not semi-electric) in order to self-manage autonomic dysreflexia episodes. Also, you may ask him to specify a...
  9. That was a safety feather on my mother's EZ Lock...

    That was a safety feather on my mother's EZ Lock in her van. You had to turn off the ignition to release the lock.

    (KLD)
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    We have looked at these before, but been unable...

    We have looked at these before, but been unable to find this product available in the USA. Wonder if it is available in Canada?

    (KLD)
  11. Often this is a requirement placed on the...

    Often this is a requirement placed on the manufacturer when obtaining their FDA approval. As a medical device, catheters for internal use are required to obtain FDA approval in the USA.

    (KLD)
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    And we now know that maintaining a closed system,...

    And we now know that maintaining a closed system, and not doing as you do, reduces the risk for CAUTI (catheter associated urinary tract infection) significantly. Science moves forward!

    (KLD)
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    It is recommended to change the bag whenever you...

    It is recommended to change the bag whenever you change catheters. It is also strongly recommended to use a closed system (as above) and not disconnect indwelling catheters from bags if at all...
  14. You'd be surprised what malingerers and...

    You'd be surprised what malingerers and wanna-be's will do to their bodies!

    (KLD)
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    Easy to do with most USA leg bags that have a...

    Easy to do with most USA leg bags that have a hard plastic drain port, like the Bard FlipFlo or Hollister bags.

    When you set up the leg bag with your catheter, just cut off the excess tubing at...
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    Although the Peristeen rectal catheters are sold...

    Although the Peristeen rectal catheters are sold as single use, most users use them over and over until the balloon springs a leak...that could be as long as a month each.

    (KLD)
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    I can not think of anything to contribute. Did...

    I can not think of anything to contribute. Did your medicatioins change? Activity level?
    Have you read the Neurogenic Bowel "pamphlet" posted on this forum?
    grasping at straws.....
    ckf
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    I don't think it is related to the vest, but it...

    I don't think it is related to the vest, but it is worth having it checked out - by your pulmonologist or a respiratory therapist.
    Good suggestion-
    ckf
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    If you want to try TENS - which might help - I...

    If you want to try TENS - which might help - I would suggest getting a PT referral so that they can help you find the best placement of the pads. To try to do it yourself may only end up frustrating...
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    This was a requirement of their FDA approval. It...

    This was a requirement of their FDA approval. It was not a choice of the company, and they don't require it in any other country where they distribute. It has been used in Europe for many, many...
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    Saw "The Report" tonight in a sneak preview. Adam...

    Saw "The Report" tonight in a sneak preview. Adam Driver was excellent, as was Annette Benning.


    https://www.youtube.com/watch?v=m-n9vz-qXIo

    (KLD)
  22. See your private messages. (KLD)

    See your private messages.

    (KLD)
  23. Where is your mom located (country, state,...

    Where is your mom located (country, state, region)?

    A neurologist would not be a good choice; they are best at making diagnosis but have little or no training in long-term health needs nor...
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    Sticky: Updating the links above: For physiatrists in...

    Updating the links above:

    For physiatrists in the USA: https://members.aapmr.org/AAPMR/AAPMR_FINDER.aspx

    and for those board certified in Spinal Cord Injury Medicine:
    ...
  25. You don't need to have a sling "muscled" under...

    You don't need to have a sling "muscled" under you. If you use either a Surehands Body Support or a so-called "hygiene" sling for other mobile floor lifts, they are easy to apply for your attendants...
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