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Type: Posts; User: Adrian

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    Gene therapy chondrotinase

    Chondroitinase gene therapy - not much detail in this and it is not near clinical trials in humans yet but it may be good in the future:

    https://www.bbc.co.uk/news/health-44484901
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    3.5 hours upand 45 minutes down

    3.5 hours upand 45 minutes down
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    I stopped using these a few years ago because the...

    I stopped using these a few years ago because the quality control seemed to be very low.
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    These are pretty capable; there is a handlebar...

    These are pretty capable; there is a handlebar version and a joystick version depending on hand function. I have not seen the joystick version working but the handlebar version works well:
    ...
  5. Thread: 20 years

    by Adrian
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    6
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    4,398

    20 years

    I broke my back 20 years ago today. At the time my life felt so changed that it felt like it had ended. Since then I have had some bad days but also some very good days; something that doubtless...
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    I reuse. After use I rinse thoroughly with...

    I reuse. After use I rinse thoroughly with running water and then inbetween uses I keep the cather in a small container full of Milton's, a mild bleach used for sterilizing baby's bottles, then I...
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    I have been OK with bed heights. There have been...

    I have been OK with bed heights. There have been some bed transfers that were more uphill than was easy, but they have been mangeable. My big issue is when the room is advertsed as accessible but...
  8. I have tried a trekinetic and whilst it is...

    I have tried a trekinetic and whilst it is comfortable the fact that the front wheels cannot be wheelied over an obstacle like a small log or earthbank when you are off roading, in a similar way that...
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    I feel like I am in a re-run of summer 2015. Once...

    I feel like I am in a re-run of summer 2015. Once again, I came off my handcycle at speed two weks ago. Again, I broke my right shoulder blade and a load of ribs (three flail segments and a lot of...
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    I had nothing but trouble with D's locks. It is...

    I had nothing but trouble with D's locks. It is not infrequent that the cables snap if they are exposed to the dirt and little bit of sand that is unavoidable if you ever take your chair outside in...
  11. These guys make very nice chairs that they offer...

    These guys make very nice chairs that they offer with 26" or 28" wheels as standard: http://www.carbonblacksystem.com/design
    I have heard good things about the 28" wheels but have never used them.
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    I sue 26" wheel. Whenever I have used 24" it...

    I sue 26" wheel. Whenever I have used 24" it feels like I am having to do so many more pushes to get anywhere and I would not want to use anything smaller than 26".
    Bigger wheels make bouncing up...
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    I had a home made motorised one, from an old bike...

    I had a home made motorised one, from an old bike fame, with metal plates and straps on to attach your feet and some calf supports to stop your legs getting out of line as they move. It was good but...
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    When I first stumbled on CareCure the Cure forum...

    When I first stumbled on CareCure the Cure forum was always the first and often the only forum I checked. Now it is frequently the last. There is a lot of good work going on but that sense of an...
  15. It is lime being kicked when you read articles...

    It is lime being kicked when you read articles attributing recovery to effort and a positive attitude because the inference is that if you did not get the same recovery it is a reflection on your...
  16. These ae the widest 24" tyre I could find when...

    These ae the widest 24" tyre I could find when looking for a new tyre for my One-Off: http://www.halowheels.com/products/part/TYHAC430

    I did not use this in the widest end as knobs on the tread...
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    Endparalyis needs votes for 10000 euros

    Corrine Jeanmaire is energetic in her effort to fight SCI and fundraises prominently through the endparalysis foundation. She has the chance of raising 10000 Euros if she gets enough votes. She is...
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    Three hours on the One-Off today:

    Three hours on the One-Off today:
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    Mize, as I say it was a wheelchair, not a bike...

    Mize, as I say it was a wheelchair, not a bike but it was awful. All the bearings rusted and needed replacing within a few months, after about a month the foot rest adjustments was slipping, not a...
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    I have a Freedom Ryder which I really like. It is...

    I have a Freedom Ryder which I really like. It is well put together and and whilst I have never ridden a Top End handbike my experience of the shocking build quality on Top End wheelchairs means I...
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    I have been off the bike with pressure sore for a...

    I have been off the bike with pressure sore for a while but that seems sorted and I just need to work on some fitness. I got out for four hours on the One-Off yesterday and the day length is getting...
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    Duplicate post

    Duplicate post
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    This is in the news today and whilst it does not...

    This is in the news today and whilst it does not give information on how/if the treatment could be applied to a wider range of injuries, it does provide an update on Darek's progress:...
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    Small pressure sore on my backside so not doing...

    Small pressure sore on my backside so not doing much at the moment. The fact that the weather has made Noah's effort seem like a sunshine cruise has helped cope with the inactivity. I reckon another...
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    Lots of rain, wind and mud have kept me off the...

    Lots of rain, wind and mud have kept me off the One-off. Hedge cutting season along the road edges where I normally cycle, with the resulting punctures, have kept me off the road bike for a while....
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