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Type: Posts; User: mike bauer

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    anyone with bladder removed??

    I want to see of any of you that have had bladder removal and prostate if a man... yet, are still exxpericenceing repeated e-coli and psydomonis infections over and over? The idea was, once the...
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    Bladder and Prostate Removed.. ouch!

    After a grueling surgery and having bladder completely removed, prostate removed, and a Urostomy bag installed I still have an infection they cant get rid of. The idea was, if they removed the...
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    3 Months Post Bladder Removal

    Well, I survived, the surgeries of all surgeries. I had the Bladder and Prostrate removed. WOW... it is a very difficult and painful surgery. However, the infections, now seem to be less frequent...
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    Why not use Laxatives or Stimulants??

    If one has a colon that doesn't work... it cannot be trained one way or another.... so you are not training it or making it progressively worse. After years of hearing myths and opinions on tis...
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    Hummmm

    I recently went through same situation. NEt story. Had bladder removed and prostate to limit harboring of infection tissue. MAJOR surgery.... I am 4 weeks post operation and just got yet another...
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    Have several boxes

    I recently had bladder removed and have many boxes pf caths.... of intersted PM me, Ill make you a deal or a steal whatever your interested in... LOL. mike
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    Severe Pain Requires Severe Meds!

    As a member of the Super High Pain Club... I am going to try Methadone after I rehab from a Surgery in a month. Personally, my pain is so severe and all the time, I could give a rats ass if someone...
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    Meds seem OK

    To me, I don’t see anything I am not on, have been on... one way or another , nor, do I see anything that is out of line. I am the self appointed President of the Super High Pain Club.... to join...
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    addmitted through ER 4 day stay

    I was very very sick with super high white count. Again, they susspect my sick and infected bladder. Almost all the Dr's including Infection Specialist think I should have my bladder removed. We...
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    Removing Bladderor not???

    I have issues beyond belief. 2 months ago, I had a simple Ileo Chimmney installed on top of the bladder. However, the infections are still coming fast and furious. I am now resistant to nearly...
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    Tried Everyting BUT Morphene

    I have tried with zero success all the usual suspects in the pain management family. Nerontin, Lyrica, tried it all. After 6 years of total agony and the recent feeling I can’t go in like this too...
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    Thanks 55. Sounds like we had same thing. That is...

    Thanks 55. Sounds like we had same thing. That is exactly what they called my operation: Ileal Conduit. Was yours a very tough painful surgery? It made my Neuropathic pain go through the roof for...
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    Removing Bladder and Prostate

    After a failed recent surgery... A stove pipe using a piece of the colon. It is at the top of my bladder and come out as a stoma on my abdomen. This eliminated self cathing, but did nothing to reduce...
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    Me Too

    Kay, I have the very same situation. If I am constipated at all... I get a very stiff terrible pain.. that is truly Agony! Until I take laxatives and get out whatever is in my system, I am in hell....
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    I had this done and more

    THIS IS A HUGE, painful, dangerous and really scary surgery for SCI patents It is a huge operation for normal persons... but with a SCI it is really as tough as you can get. I recently had this...
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    Mee Too Pain id Soooooo F'N Bad!

    After 6 years of hell.. It actually seems to be slightly worse.... if that's even possible? I mean, it's already silly high level of pain, I nearly can't go on. And then a few A- Hole Doctors have...
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    YES!!! QUAD... thats it!

    Thanks to ALL FOR YOUR THOUGHTS. QUAD, THAT WAS THE ONE.... Hipprex. It is taken with V - C and several have told me that it works rather well? Anyone else ever tried this approach? Thanks again...
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    Urostomy Surgery From HELL!

    I just had a Urostomy. The Doctor was supposed to have the Urine go into the bag.. and tie off the Urethra and have only one place it goes... IN THE BAG... however, after removing the post surgery...
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    Dozens of Boxes Self Catheters NEW Male

    My condition recently changed. I had a Urostomy and no longer use self catheters. I have many boxes of caths for sale. I am looking for $20 dollars a box of 30. These are new, not old, and I need...
  20. Quadvet

    Right on the money... that is what they want to do.. exactly as you described. They are doing it because I keep having issues and infections and way to much fighting UTI , bladder infections, etc....
  21. they want to take bladder and prostate out

    Like many... i dont know the name of the surgery... but dr. said it is a major deal?? He said he thinks my bladder is gone, infected, so is prostate??? they are sending me to surgen this week for...
  22. Believe in Drugs//

    Your Dr. dosn't believe in Medicine?? LOL... sounds like a great Doctor... If You need medicines to help... get the proper help. Medicines when you need them... arent drugs! Mike
  23. me too

    I have nearly the same scenario. Same bug.... we got rid of it one week.. with Antibiotics... but I think it has returned... Like you said, no ividence of the bug or infection... except super...
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    Tried it all

    I have TRIED IT all IN 5.5 YEARS OF hell> . from Neurontin so high doses it would put a cow to sleep. Im on Percoset and Pain patches... and that does little, but, better than nothing. Im of the...
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    No UTI, Bleeding and Bladder Spasms

    wtf??? I HAVE NOT POSTED IN A WHILE, BECASUE I TRULY DONT BELIEVE MUCH OUT THERE CAN REALLY HELP... SO, I JUST CARRY ON AND DO THE BEST I CAN?? At any rate, I keep getting super bladder...
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