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    I have had a supra pubic catheter, with a sling...

    I have had a supra pubic catheter, with a sling for over three years. To date I have had no leakage from my urethra or my stoma. I thought the purpose of the sling was to prevent leakage from the...
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    full time pwc user -- how long?

    i am a ft pwc user due to ms. ms has weakened me so that i can't stand, bear weight, transfer, move my right leg or shift positions while seated. i also have lost a lot of upper body strength. i...
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    my night output is between 800 - 1200 ml. would...

    my night output is between 800 - 1200 ml. would that work for a larger leg bag? if so, would the leg bag just hang on the side off the bed like my bed bag does?

    is it true that ppl with a sp...
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    how about a colostomy plus a mitranoff???

    thanks for the info everyone.

    how long is the recuperation time for a colostomy?

    i was thinking of talking to my uro about getting rid of my sp and getting a mitranoff. that way i could get...
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    suprapubic catheter AND colostomy???

    i already have a suprapubic catheter (as of 10/05). i am beginning to think i also need a colostomy.

    is this possible (to have two abdominal stomas)? does anyone out there have both? any and...
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    my bedroom has a trey ceiling over the bed. ...

    my bedroom has a trey ceiling over the bed. could a ceiling lift still be used?
  7. Thread: Cheap gloves???

    by Pat
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    Thank you!

    Thanks for the info and the offer. Unfortunately, size small won't work for me.

    I'm off to place my order. Thanks again!

    :)
  8. Thread: Cheap gloves???

    by Pat
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    815

    Cheap gloves???

    Where can I get good quality, but inexpensive, latex powder-free gloves online? I found some but have never heard of the company and am afraid to order because they might be poor quality. I would...
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    Thank you very much for the great info.

    Thank you very much for the great info.
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    sci nurse -- care of sp bag??

    what is the preferred frequency for cleaning your sp bag? i keep hearing different things.

    i wear my bed bed bag 24 x 7 due to difficulty with my hands in changing bags back and forth each day....
  11. A cushion with a fan inside! :)

    My PWC cushion is an 'Invacare Infinity MC' that I just got about 6 months ago. Very comfortable but hot as Haiti! :)



    Thanks for all the tips. When I looked to see what kind of cushion it...
  12. we have got the time shortened recently but this...

    we have got the time shortened recently but this is the breakdown:

    30 mins for the aide to remove my sp catheter bed bag, put on the clean one, and then to sterizile the dirty one via your method...
  13. Thank you all!!

    I am so appreciative for all the helpful ideas! I will pick up some Tinactin powder and try to find my blow dryer. And shave too? The things we have to go through! And to think, I "used" to be an...
  14. how do you dry off your 'privates' after yor bathe?

    i have ms and am a full time power wheelchair user. i can't stand. my aide bathes me and dries me off as thoroughly as possible while i'm still in the lift. then once i'm seated back in my pwc,...
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    Wow!!! :)

    Thanks to everyone who replied! I never dreamed I would get so many ideas or replies.

    Since sleeping in the nude was the most frequent way given (as well as the cheapest), I think I'll try that...
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    What do you wear when sleeping?

    I have MS and am pretty much paralyzed on my right side. Because of this it makes turning over at night extremely difficult and even impossible some nights, depending on how bad my spasticity is.
    ...
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    Any others here DX with MS?

    Just wondering if I am the only one. Any others here DX with MS?
  18. Thread: Mitro Stoma

    by Pat
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    Good question LBUSH49. I hope you don't mind me...

    Good question LBUSH49. I hope you don't mind me tagging my question with yours since they are related.

    What if you have a superpubic catheter? Can you go into a hot tub or a bath tub that has...
  19. Thread: ?

    by Pat
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    Hi Brad -- Lots of info here regarding...

    Hi Brad --

    Lots of info here regarding neurovax. It sounds very promising!

    http://brain.hastypastry.net/forums/search.php?searchid=735334
    ...
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    FUNCTIONAL RESULTS OF THE BRIDLE POSTERIOR TIBIAL...

    FUNCTIONAL RESULTS OF THE BRIDLE POSTERIOR TIBIAL TENDON TRANSFER IN PATIENTS WITH FOOT DROP

    AOFAS MEETING ARCHIVES
    AOFAS WINTER MEETING 2001
    FUNCTIONAL RESULTS OF THE BRIDLE POSTERIOR TIBIAL...
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    whoa!!! thanks lindox and metronyguy!!! i...

    whoa!!! thanks lindox and metronyguy!!!

    i just 'googled' the words "tendon transfer" and came up with a ton of hits!!! (hits = hope!) http://sci.rutgers.edu/forum/images/smilies/smile.gif

    am...
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    hi lindox! ...

    hi lindox! http://sci.rutgers.edu/forum/images/smilies/smile.gif

    thanks for replying ... so you had something similar done in the 60's? hmmmm ... wish i knew the current name so i could research...
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    hi again jm, ...

    hi again jm, http://sci.rutgers.edu/forum/images/smilies/smile.gif

    yes, i hope the 4ap works although i'm not sure it can bring 'back to life' a totally 'dead' foot, but maybe it will help enough...
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    wise, i just wanted to let you know that i...

    wise,

    i just wanted to let you know that i called my ms neurologist today. i left a vm telling him that i wanted to try 4ap again. (this time i will give it more than a 30 day test run too.) ...
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    hi wise, i was on the minimum starting mg...

    hi wise,

    i was on the minimum starting mg dosage, i'll call my neuro tomorrow and ask him to rx it again for me. what, in your opinion, would be a max milligram to ultimately ramp up to?

    once...
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