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Type: Posts; User: jazzy22

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    Hi, I also have ALS..10 years now. I am 41 I'm...

    Hi,
    I also have ALS..10 years now. I am 41
    I'm paralyzed from the neck down with a little R triceps to steer my PWC
    FVC at 22%. Nothing bulbar yet...knock on wood

    I read you have a colostomy....
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    ? for those with colostomy/ileostomy

    hi from a longtime lurker!

    I have developed some bowel problems lately, so I am considering getting an elective colostomy.

    I have read through the other colostomy posts, but some are quite old....
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    I have no arm/hand movement and use my mouthstick...

    I have no arm/hand movement and use my mouthstick for everything.
    I use these, they are ca. $50
    http://www.rehabmart.com/product/5979.htm
  4. Thread: ALS Video

    by jazzy22
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    ALS Video

    Hi,

    the Canada ALS Society has started a new awareness campaign with a short TV ad.

    If you haven’t seen the video on TV yet, here it is on you tube:

    ...
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    For great info re Vit D watch this presentation:...

    For great info re Vit D watch this presentation:

    http://www.uvadvantage.org/portals/0/pres/

    ..don't go fullscreen on the video or you'll miss the slideshow on the right
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    Long time lurker here. This is a timely topic for...

    Long time lurker here. This is a timely topic for me.

    I'm in the advanced stage of ALS (Lou Gehrig's disease)
    I've gotten to the point where I soon have to decide if I want to

    a) go on a...
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    To supress your period just use a mono-phasic...

    To supress your period just use a mono-phasic Pill continously...I take Alesse

    Mono-phasic means the 21 "active" pills all have the same amount of hormones and are all the same colour.

    You take...
  8. ...when you're being carried across the threshold...

    ...when you're being carried across the threshold - not because you just got married, but because there's a .... step at the door
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    what did you not like about the TTK? any...

    what did you not like about the TTK? any problems-other than the $$$ ?

    my neck muscles are also weakening, so I've ruled out chin and headcontrol
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    Powerchair controls

    Hi everybody,
    I was going to post this in the equipment forum, but I'm hoping that more people will see it in here.

    My ALS is finally at the point, where I have a really hard time controlling my...
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    Thanks Nevada, but now I need info on the "yucky...

    Thanks Nevada,
    but now I need info on the "yucky look"- are we talking red&puffy or oozing?

    Podiatrist said it's easier to remove whole nail than just part-why do I think he meant easier for...
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    Toenail problems

    Hi everybody-longtime lurker, 1st time poster here.

    For the last 6 months I have had repeated problems with ingrown toenails. It is not so much that the nails grow in (I don't cut them short or...
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