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  1. Replies
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    Dejerine, I really appreciate the sentiment...

    Dejerine,

    I really appreciate the sentiment you expressed in your article. There is no consistent understanding of what is CP and how can it be treated. At David Berg's site, he details how many...
  2. Thread: Splitting pills?

    by Joe B
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    4,544

    800 milligrams, that's a horse pill alright. I'd...

    800 milligrams, that's a horse pill alright. I'd like to see those senators splitting their Viagra with their teeth - If they still have their teeth.

    Sue, I'm not positive but I believe your PCP...
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    Freej I have had my Xterra for 1 1/2 yrs and...

    Freej

    I have had my Xterra for 1 1/2 yrs and stiil like it a lot. It is highly maneuverable as you said and goes over terrain well. I have had an EZ-Lock tie down put on and drive from the chair...
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    I believe the baclofen and small dose of valium I...

    I believe the baclofen and small dose of valium I take for spasticity do help with the straight leg syndrome for me but they do not stop it all together. It use to be fun to watch my legs bicycle on...
  5. Thread: Pain and weather

    by Joe B
    Replies
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    1,995

    David I notice a significant difference in the...

    David

    I notice a significant difference in the CP level when there is a front moving in. It sometimes drives me to cover up in bed. I often tell my wife that a front is coming and when we turn...
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    I take 2 mg of valium four times daily and along...

    I take 2 mg of valium four times daily and along with baclofen it helps with my CP.

    Joe B
    C6-7
    1988
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    Mike Sorry I didnt see your post sooner, I...

    Mike

    Sorry I didnt see your post sooner,

    I am fortunate to get Neurontin through mail order. $30 for a 3mos supply which is a bargain. Neurontin is a brand name for gabapentin, and...
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    You are taking baclofen 3 x daily which is how...

    You are taking baclofen 3 x daily which is how they prescribe Neurontin. Bit I have found baclofen wears off after 6 hrs for me.

    I was injured in 1988 and was given baclofen for my spasticity. ...
  9. Replies
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    6,255

    Recovery varies with the injury, the person, the...

    Recovery varies with the injury, the person, the care etc. so predicting the recovery a person gets is not very exact.

    My C6-7, incomplete injury resulted in my still having triceps and biceps,...
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    This drug doesn't sound as effective as Neurontin...

    This drug doesn't sound as effective as Neurontin or even the tricyclics yet seems to have a strong side affect of nausea in 27% of the tested patients. The participants reported a lowering of pain...
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    You may want to consider any other drugs you take...

    You may want to consider any other drugs you take as a possible source. Antidepressants build up and may cause short term memory probs.

    Joe B
    C6-7
    1988
  12. Thread: Pain Increasing

    by Joe B
    Replies
    10
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    2,290

    Mike My CP did increase at about the 2 yr...

    Mike

    My CP did increase at about the 2 yr mark. Before it was annoying hen it became pain. The meds did help back then they just gave you Elavil till it got better or you got groggy. I take...
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    Alan I have seen several abstracts in Medline...

    Alan

    I have seen several abstracts in Medline that indicated that ketamine seemed to help neuropathic pain. I have often wondered if the researchers would follow up and try it on human SCI. I...
  14. Thread: yes/no answer

    by Joe B
    Replies
    31
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    3,519

    Nope, at least not anything really useful. Maybe...

    Nope, at least not anything really useful. Maybe some strengthening of existing nerves but no regrowth. The system is set up to be slow and conservative. Even a major breakthrough right now would...
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    I had the same problem. In my case the urologist...

    I had the same problem. In my case the urologist chose to put a 20 ga indwelling foley catheter in and leave it in for three weeks. This helped some. I determined later that much of the problem...
  16. Thread: New moderator

    by Joe B
    Replies
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    2,022

    Hi Mary, thanks for taking on this role. ...

    Hi Mary, thanks for taking on this role. http://sci.rutgers.edu/forum/images/smilies/smile.gif

    Joe B
    C6-7
    1988
  17. Replies
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    There is a nerve called the ulnar nerve that runs...

    There is a nerve called the ulnar nerve that runs through the elbow (same nerve that gets hit and causes a tingling numbness sometimes). This nerve is not well protected and can be sensitized if...
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    Scorp, I understand what your friend means. He's...

    Scorp, I understand what your friend means. He's right in that we need to establish our lives. Once you've done that come on back and share what you learned. The boards our good for new SCI to...
  19. Replies
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    Leo, one group that does have care and cure on...

    Leo, one group that does have care and cure on their agenda is the PVA. I understand its a struggle of the older guys versus young. Think about it, for example, I am 53 yrd old, if a clinical trial...
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    Sorry about his having trouble sleeping. I know...

    Sorry about his having trouble sleeping. I know every injury is different. Dr Young may be able to say something about a ketamine infusion but thats beyond most of our experiences. A search on...
  21. Thread: The flu

    by Joe B
    Replies
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    2,244

    Sue, I am a True Blue Michigan Wolverine fan...

    Sue,

    I am a True Blue Michigan Wolverine fan since childhood. I grew up in and around Ann Arbor. I used to run track on UMs Ferry Field as a high schooler (UM let my school use it for track...
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    That is a lot of meds to be mixing together. ...

    That is a lot of meds to be mixing together. This will screw up the results as far s trying to tell whether one is effective or another. Many of the doses are high but not over the limit. 75 mg of...
  23. Thread: The flu

    by Joe B
    Replies
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    2,244

    Sue, Sorry to hear you got the flu after all...

    Sue,

    Sorry to hear you got the flu after all the other med stuff you just went through. Maybe you wont get the flu this winter. I hate the flu and the docs always tell you its caused by a virus...
  24. Thread: valium dosage?

    by Joe B
    Replies
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    4,016

    I have posted several times that I seem to get...

    I have posted several times that I seem to get some relief from neuropathic pain from the combination of baclofen and valium. I needed the baclofen to treat spasticity but I was up to 120 mg a day...
  25. Dr. Young, I am curious why hospitals and the NIH...

    Dr. Young, I am curious why hospitals and the NIH spend money on clinical trials that have essentially already been tried. Johns Hopkins did a trial in 1996 comparing methadone/ placebo / and...
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