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Type: Posts; User: BigBearJoe

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  1. Replies
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    I purchased the van in mid August but I'm still...

    I purchased the van in mid August but I'm still working through getting everything reconfigured for my needs. I've only driven a few miles right around my house and the surrounding neighborhood. So...
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    Unfortunately, I would be wary of proceeding. I...

    Unfortunately, I would be wary of proceeding. I just purchased a nice EMC AEVIT equipped van from a gentleman with multiple sclerosis. In his case by the time he actually got his van built and...
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    I know this is an old thread, but I have an EMC...

    I know this is an old thread, but I have an EMC AEVIT 2.0 owners manual that has all the error codes. If I can still help you out with those let me know.
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    The there are several games one available in Wii...

    The there are several games one available in Wii Sports Resort that can be played just with the motion of the Wii remote. The one I like the best and can do relatively well is "Island Flyover". I can...
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    Sorry to hear that others had a bad experience at...

    Sorry to hear that others had a bad experience at the Gorge. But I have to stick by what I originally said. We came in a little late after the opening act (Elvis Costello) had started. We asked an...
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    Okay, after reading the research report I have to...

    Okay, after reading the research report I have to admit that Purple Urine Bag Syndrome does sound like what I have going on. Thankfully, I don't have problems with constipation nor severity of UTI...
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    This situation is similar for me. The plastic of...

    This situation is similar for me. The plastic of the leg bag, not my urine, starts out white and then slowly turns light blue and then brighter blue. And my latex Foley catheter, suprapubic, also...
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    The basic voice training requires about five...

    The basic voice training requires about five minutes of reading. You can also choose the "no training" option and just jump straight into dictating.

    For me it's just the opposite, I find the...
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    Just as soon as I was up in a wheelchair in...

    Just as soon as I was up in a wheelchair in rehab, my speech pathologist had me start working with Dragon 8 in February of 2005. Dragon certainly has its difficulties and learning curve but it has...
  10. If You Could Travel Anywhere in the World...?

    For the truly experienced world disabled traveler... what do you feel is the best trip of a lifetime for a quad in a power chair? My mother-in-law turns 75 next year and wants to celebrate by taking...
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    Went to The Police concert last Saturday night,...

    Went to The Police concert last Saturday night, July 12. Turns out that The Gorge is very handicapped/wheelchair accessible. They have a designated disabled parking area (ribboned off grassy area...
  12. Poll: It's raw red "meat" flesh that protrudes from the...

    It's raw red "meat" flesh that protrudes from the stoma. I guess they call it "proud" because it wants to "keep showing itself".

    For those that have used Neosporin, is it actually a healing agent...
  13. Poll: Wise, I think you misunderstood. I have not...

    Wise, I think you misunderstood. I have not removed my suprapubic catheter. What I am saying is, after the suprapubic was installed, the resulting stoma has never healed. Thankfully no infection...
  14. Poll: In my case, the silver nitrate just turns the...

    In my case, the silver nitrate just turns the proud flesh gray, but the proud flesh does not really die, turned black, dry up, or disappear. Usually the silver nitrate just makes it turned gray and...
  15. Thread: Neurontin

    by BigBearJoe
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    When I first started taking Neurontin, even a...

    When I first started taking Neurontin, even a single 200 mg tablet would make me dopey. But I was able to develop a tolerance to the sleepiness and now I'm taking 300 mg, four times per day. But...
  16. Poll: Suprapubic Stoma Not Healed after 1 1/2 Years

    I had my SP installed September 2006, and the stoma never healed properly. It continues to produce "proud flesh" even with repeated applications of silver nitrate which we've taken to doing at home....
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    Here is the e-mail I received from them today. ...

    Here is the e-mail I received from them today.


    "It is possible that we would be flying by June, but not probable. It is less than a 50/50 chance.

    Be sure to join our free e-newsletter to...
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    Airline Preference? Seattle to Wichita

    Looks like the best choices are either United or Frontier since they're the only ones that fly through Denver. Frontier flies a turboprop from Denver to Seattle (EDIT, I meant Denver to Wichita). ...
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    Anybody else been there? Pre-or post-injury? ...

    Anybody else been there? Pre-or post-injury?

    I'm an incomplete C4 quadriplegic in a Storm TDX power chair.
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    Gorge Amphitheater-lawn accessible?

    I bought lawn tickets to The Police at the Gorge Amphitheater (Central Washington). Anybody know if there's at least one small patch somewhere that is level and accessible where I can park my power...
  21. By cutouts do you mean that the opening in the...

    By cutouts do you mean that the opening in the seat is not "keyhole" shaped? I would imagine that the "bucket" underneath could be removed. I'm a C4 Tetra and I require someone else to insert mini...
  22. Activeaid 461 Portable Shower/Commode Chair

    I've done searches on Care Cure and I'm very familiar with the nuprodx and Rolli-Moden Chameleon portable shower/commode chairs. I know that they are expensive but that most people seem to be happy...
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    Thank you much to all who have just posted. From...

    Thank you much to all who have just posted. From my perspective, if you break down the above posts and comments, it can be summarized in what I've generally already been hearing. That is, the...
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    Haven't seen much been put on this. Anyone else...

    Haven't seen much been put on this. Anyone else have thoughts or know someone with experience of a baclofen pump and upper extremity spasticity relief?
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    Yes, count me in too. It's definitely an...

    Yes, count me in too. It's definitely an exaggerated startle reflex. Way beyond what I ever experienced preinjury. I am a C4 incomplete, 2 1/2 years post injury, and I've had it pretty much the...
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