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Type: Posts; User: LetsGo

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  1. Replies
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    I undestand your frustration. But everyone needs...

    I undestand your frustration. But everyone needs to stop focusing on how long it is going to take. The truth is no one knows. It might be next year or it could be 10 years. Isn't it better to...
  2. I understand everyone's frustration with hearing...

    I understand everyone's frustration with hearing the "in 5 years" but every organization is in the same situation not just The Miami Project. It is the process it takes to translate the science from...
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    Paolo, with all due respect you are wrong. What...

    Paolo, with all due respect you are wrong. What you are referencing is Dr. Dietrich saying that the first patients for the Schwann cell trial will be on acutes. That does not mean they are not...
  4. Christopher - the paper you cite is a...

    Christopher - the paper you cite is a collobaration between The Miami Project, University of Alberta and the Schwabb lab in Switzerland. My understanding is that the research is ongoing and The...
  5. Thread: NIH and FDA

    by LetsGo
    Replies
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    Absolutely you should be polite. Coburn will not...

    Absolutely you should be polite. Coburn will not change his mind - with a respectful sit in and an alert to the media what you will do is embarrass him and its a great story the national media will...
  6. Thread: NIH and FDA

    by LetsGo
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    5,571

    the next time you do your march on washington all...

    the next time you do your march on washington all of you in chairs should show up in his office and refuse to leave until he talks to you. I would not give his office any advance warning. be...
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    Of course I will - I will email you privately.

    Of course I will - I will email you privately.
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    Judy - you made a statement on page 4 of this...

    Judy - you made a statement on page 4 of this thread that any amount of money is tax deductible. That's not true. Check with IRS regulations. The only reason I am saying this is you don't want to...
  9. Thread: Miami Project

    by LetsGo
    Replies
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    10,534

    Moe - its been a great discussion. I'll match...

    Moe - its been a great discussion. I'll match whatever amount of money you send to Dr. Young. The amount doesn't need to be made public here unless you want. Send me a private message and I'll...
  10. Thread: Miami Project

    by LetsGo
    Replies
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    10,534

    Moe - I don't know of any non-profit organization...

    Moe - I don't know of any non-profit organization that gets 100% of their costs for an event underwritten. How do you think they raised the $4.2 million? They received it from donations and...
  11. Thread: Miami Project

    by LetsGo
    Replies
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    10,534

    The reason for my many posts is because I really...

    The reason for my many posts is because I really believe it is important to address the misperceptions about The Miami Project. I have attended many MP and Buoniconti Fund events and a lot of them...
  12. Thread: Miami Project

    by LetsGo
    Replies
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    As I re-read my earlier posts I believe they...

    As I re-read my earlier posts I believe they really stand on their own merits. However, I want to make some last comments. First, I find it insane how people can attack such a successful...
  13. Thread: Miami Project

    by LetsGo
    Replies
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    10,534

    Moe - first - $10,000 won't even cover the costs...

    Moe - first - $10,000 won't even cover the costs of salary for the person working for an organization. Second and ask the W2W people what some of their costs are - you can't rent an event space for...
  14. Thread: Miami Project

    by LetsGo
    Replies
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    Let's look at fundraising between The Buoiconti...

    Let's look at fundraising between The Buoiconti Fund and CRF:

    BF: Raised $5 million with $640,00 in expenses.
    CRF: Raised $14 million with $3.5 million in expenses.

    If you would multiple BF's...
  15. Thread: Miami Project

    by LetsGo
    Replies
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    10,534

    Moe - as a fundraiser I disagree with you. ...

    Moe - as a fundraiser I disagree with you. Events - be it small or large - are expensive. Ask the W2W folks. In addition, big galas need to be done or the wealthy individuals will not donate. It...
  16. Thread: Miami Project

    by LetsGo
    Replies
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    10,534

    I agree with Dr. Young, as a HIV+ gay man, we...

    I agree with Dr. Young, as a HIV+ gay man, we don't attack the scientists and people who are raising the money to find a cure for AIDS. We don't attack an organization who has been successful in...
  17. Poll: Just remember - once you join an organization you...

    Just remember - once you join an organization you are no longer grassroots. Its great and important to be a member of an organization. Each organization will have its own agenda and ways of pushing...
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    I read about this family whose 10 month old...

    I read about this family whose 10 month old daughter was injured a few years ago. There website is www.carolineshope.org and there is a phone number listed. I'm sure they would talk to you about...
  19. I received this The Miami Project e-newsletter...

    I received this The Miami Project e-newsletter tonight (http://www.themiamiproject.org/x972.xml) and maybe their marathon training program would be a great way to get the employees involved and I'm...
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    Movie About Disability Needs Your Help

    In case you had not heard of the movie MURDERBALL, I wanted to share this
    statement from the distributors of the film.

    On July 8th we opened MURDERBALL in theatres in both NY and Los Angeles....
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    Suzanne: I don't think you need to worry about...

    Suzanne:

    I don't think you need to worry about getting people to the next rally. So many people on CC who didn't attend will want to go next time. One of the cools things about this is that it...
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    Wow - you guys are amazing. No matter what MP...

    Wow - you guys are amazing. No matter what MP does, they get cricized for. They make an announcement about the rally in their e-newsletter and they get lambasted for it. Its no wonder why they...
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    Everything Dr. Young has said is right on target....

    Everything Dr. Young has said is right on target. What saddens and bewilders me the most is how the SCI community criticizes itself and attacks the very people who are doing the most for the...
  24. Suzanne - thanks for the sweet note. Trust me,...

    Suzanne - thanks for the sweet note. Trust me, I've been watching all of your moves and seeing how beautiful this is turning out.

    Just think - for one of the first times ever - you guys will...
  25. Hey guys - I just want to add how incredibly...

    Hey guys - I just want to add how incredibly proud I am to watch you all take action, move mountains and do this. For those who have never organized an event, there is so much work to it. And to do...
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