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  1. Thread: not plugged

    by annev308
    Replies
    32
    Views
    905

    This happened to me for the first time a couple...

    This happened to me for the first time a couple of days ago, and my urologist attributed it to exactly what gjnl suggested might be happening to you - bladder sand, only mine is washing out of my...
  2. I don’t know where you can find help but I would...

    I don’t know where you can find help but I would suggest reaching out to case management at some of the big rehabs and see if they’ve got any suggestions. Can the psychiatrist not coordinate...
  3. Thread: SCI stink

    by annev308
    Replies
    22
    Views
    1,212

    And mention that as soon as the other behavior...

    And mention that as soon as the other behavior stopped this behavior began. Patterns of this stuff matter.
  4. Thread: SCI stink

    by annev308
    Replies
    22
    Views
    1,212

    My (very strong) suspicion is that this is...

    My (very strong) suspicion is that this is straight up harassment and you need to go to HR or legal. You are being bullied. Even if you are term, temporary, freelance or contract, you have...
  5. Replies
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    542

    Even if an individual has a state medical permit...

    Even if an individual has a state medical permit for weed, including growing their own, it’s not covered under the (federal) FHA, which means the landlord has to authorize the grow on a case by case...
  6. Replies
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    637

    Also, you can report adverse events directly to...

    Also, you can report adverse events directly to the FDA - https://www.accessdata.fda.gov/scripts/medwatch/ It has been my experience that manufacturers are fairly rapidly responsive to...
  7. Replies
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    967

    I have used Medihoney on a (fairly large)...

    I have used Medihoney on a (fairly large) chemical burn, both while it needed debriding and afterwards; and on (unrelated, entirely different locations) blisters and had good and fairly rapid...
  8. Thread: FES Bike

    by annev308
    Replies
    4
    Views
    1,165

    I have (and regularly use) a Myolyn FES bike....

    I have (and regularly use) a Myolyn FES bike. Setup was a piece of cake, support has been excellent and it has made a real difference in my quality of life.
  9. Also, Sysco (food supplier for many...

    Also, Sysco (food supplier for many hospitals/chain restaurants etc) sells frozen sous vide meat & fish.
  10. Also, if you can stand to do it, sous vide is an...

    Also, if you can stand to do it, sous vide is an excellent way to prep many servings of meat at a time, bc you cook it in sealed bags which can then easily be frozen and lo! many servings of chicken...
  11. Sous vide. Then sear or broil or torch.

    Sous vide. Then sear or broil or torch.
  12. The original article is from 2008 - I haven’t...

    The original article is from 2008 - I haven’t been able to find an update on the Boyd case, but I know a couple of quadriplegic folks in Dade county who have waiver services allowing them live in the...
  13. Replies
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    878

    I had a fairly large allograft of fat on my back...

    I had a fairly large allograft of fat on my back as part of a (non-wound-related) surgery 4 years ago and it was gone in less than 6 months. The surgeon told me it would be absorbed and indeed it...
  14. Replies
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    841

    Yes, I’m a para. My surgeon and my PM&R doc (who...

    Yes, I’m a para. My surgeon and my PM&R doc (who luckily is really responsive to email) said it was important to do it pretty quickly, to increase the chances of the bone healing. The surgeon was...
  15. Just as an FYI - these devices were discontinued...

    Just as an FYI - these devices were discontinued in 2015, are unsupported (cannot be refurbished, new proprietary cables unavailable) and are available on eBay for $19.99-$59.99. I’ve bought them...
  16. Replies
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    841

    Wait, I don’t understand. They just said, “oh go...

    Wait, I don’t understand. They just said, “oh go on home with your unstable floppy broken ankle while we try to find you a second opinion and no bracing or support for you” ? Surely I have somehow...
  17. Thread: sore and ache

    by annev308
    Replies
    22
    Views
    1,252

    I have a couple of heating pads with thermostats...

    I have a couple of heating pads with thermostats in the controls - I think they’re made by chatanooga, which is a subset of don joy, which also owns a couple of companies producing braces and...
  18. Replies
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    841

    I would get a second opinion. I had ORIFs on my...

    I would get a second opinion. I had ORIFs on my left femur and right tib/fib 20 months ago, and they are both healed but the entire thing was problematic and super-uncomfortable. Is it possible for...
  19. Thread: Nursing Home

    by annev308
    Replies
    51
    Views
    15,104

    Most hospitals, med schools, rehabs, nursing...

    Most hospitals, med schools, rehabs, nursing homes, subsidized housing (ie, section 8) etc... will not allow medical marijuana use if they get any federal monies, which Medicare is straight federal...
  20. So for me, untethering was removal of scar tissue...

    So for me, untethering was removal of scar tissue that had formed between the dura and the cord and was both putting tension on the cord, which contributed to the syrinx formation, and interfering...
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    1,179

    I have word-finding problems as a (known)...

    I have word-finding problems as a (known) side-effect of meds I was on pre-SCI and still take. It’s definitely gotten worse in the last year or two. It has made me into an excellent and detailed...
  22. I have had surgery for untethering which...

    I have had surgery for untethering which collapsed a small syrinx and for syrinx/syringeomelia as well as untethering - two separate surgeries a year apart. The first time I was classically...
  23. Replies
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    1,960

    So these chairs...

    So these chairs (https://razdesigninc.com/index.php/shower-commode-chair/raz-sp-self-propelled/ - I don?t know how to post a link except to manufacturer site) have some sort of adjustability to...
  24. Replies
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    2,028

    At least in Colorado, licensing is tiered and...

    At least in Colorado, licensing is tiered and “non-medical” agencies can and do provide a lot of personal care services (transfers, bathing, toileting, dressing, feeding, handing meds) that are often...
  25. Thread: Nursing Home

    by annev308
    Replies
    51
    Views
    15,104

    Also, if Medicaid is paying, you should still...

    Also, if Medicaid is paying, you should still have a Medicaid caseworker. They can be powerful advocates on behalf of their clients and often more effective than the ombudsman (a chain up where I...
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