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  1. Replies
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    Calcium/Vitamin D supplements slow my gut, the...

    Calcium/Vitamin D supplements slow my gut, the "bonus" learned from having osteoporosis.......
  2. Thread: SCI Nurse

    by cameron887
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    2,011

    Do they erupt symmetrically (both sides of your...

    Do they erupt symmetrically (both sides of your body)? Just a shot in the dark, but I was speaking with someone who had a heck of a time getting a diagnosis for something called Dermatitis...
  3. Wesley, it reduces, but does not eliminate the...

    Wesley, it reduces, but does not eliminate the allodynia (the rubbed raw with acid poured in feeling). Also reduces visceral pain, so I have gained some much needed weight. I am experiencing some...
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    Just a suggestion: If you do make an appt to...

    Just a suggestion: If you do make an appt to cross the border, try to negotiate a lesser fee with the facility you choose beforehand. Explain that you are Canadian experiencing long wait times and...
  5. LaoziSailor, I have Syringomyelia and live in...

    LaoziSailor, I have Syringomyelia and live in Ontario. My GP prescribed Sativex for me and I have been using it since about last August for central pain. My private drug insurance approved a request...
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    I'm with you, Stylin' Moe. I use enteric coated...

    I'm with you, Stylin' Moe. I use enteric coated Cotazym ECS8 digestive enzymes. They have helped reduce my gut pain. I am lucky they are covered by my insurance, as they are quite expensive. My...
  7. Thanks for posting this, Dr Young. I have been...

    Thanks for posting this, Dr Young.

    I have been using Sativex for almost 3 weeks now for Central Pain from Syringomyelia. My sleep is much improved, although I have vividly entertaining dreams. My...
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    I used to take 3 x 900 mg Neurontin and was...

    I used to take 3 x 900 mg Neurontin and was finally able to wean from it by a slow decrease of 300 mg each week. I experienced a worsening of central pain for about 3 days after each decrease, before...
  9. I've tried Sativex

    I am just finishing my first vial of Sativex. I have central pain from syringomyelia and live in Canada. Sativex is conditionally approved for MS, so my GP prescribed it off-label. At $150 for 51...
  10. Thank you,dejerine for your eloquent thoughts on...

    Thank you,dejerine for your eloquent thoughts on this type of pain which seems impossible to survive. You have given me much food for thought.

    Thanks you also, Dr Young, for your brave attempts to...
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    I had read that there were three Sativex...

    I had read that there were three Sativex formulations:
    Indica
    Indica/Sativa
    Sativa

    I wonder what will actually be available in the end.
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    Sativex has recently cleared Health Canada's...

    Sativex has recently cleared Health Canada's first hurdle, and may be available as a prescription in Canada this year for MS. Hope the US follows suit, for the sake of those with CP.
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    RSheckells, are the prescription medications...

    RSheckells, are the prescription medications Marinol and Cesamet legal in the US? I know they are not as effective as Cannabis, but maybe worth a try?
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    Good question. It brought biofeedback to mind for...

    Good question. It brought biofeedback to mind for me. I was so intrigued by the fact that I could raise the temperature of my hands and feet(or even just one hand)by up to 10 degrees with the power...
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    There is an interesting and informative page at...

    There is an interesting and informative page at the Muscular Dystrophy Assoc website http://www.mdausa.org/experts/question.cfm?id=941 citing the science of cannabinoids. (I wasn't sure if I was...
  16. Thread: WEED????

    by cameron887
    Replies
    23
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    6,748

    I have central pain from syringomyelia, and have...

    I have central pain from syringomyelia, and have used "medical cannabis" twice daily for over a year now on the advice of my doctor. The reduction in my visceral pain has allowed me to regain 20% of...
  17. Wow, Dr Young, thanks for all the info. I really...

    Wow, Dr Young, thanks for all the info. I really appreciate you giving of your time and energy.

    Liz

    [This message was edited by cameron887 on 03-02-04 at 11:13 PM.]
  18. Question for Dr Young - Syrinx & FXI deficiency

    Dr Young, I have a narrow syringohydromyelia from T5 to the conus, central and anterior in the cord. I also have a partial clotting factor XI deficiency. I am waiting for an MRI with Gadolinium...
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