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Type: Posts; User: ekephart

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  1. Replies
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    20,048

    We had 83 degrees on Wednesday and Thursday. ...

    We had 83 degrees on Wednesday and Thursday. Yesterday is made it to 50 (I think) and today we might hit above 40. What the hell. It is going to be in the 70's again mid week but then the roller...
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    20,048

    While we have had a fairly warm winter (so far),...

    While we have had a fairly warm winter (so far), it has been incredibly wet. I have ruts in the driveway from turning the van around to discharge on the concrete. We did get one ice/snow event last...
  3. I do not know exactly what you mean by linear but...

    I do not know exactly what you mean by linear but I do have some concerns. You say you have searing discomfort. Where is this pain? The pump insertion site (incision in your lower side) should...
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    20,749

    I do not want to discourage you but Ihave looked...

    I do not want to discourage you but Ihave looked for a PCA for Ryan for years. They are not allowed to do bowel programs per regulation (have to be a RN or a parent to administer a bullet). ...
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    20,913

    We have had a full sized van conversion for years...

    We have had a full sized van conversion for years now. I have hated it from day one but it has the head clearance for Ry's power chair. I even named it vanstrocity for all the reasons discussed...
  6. I am a little confused. Are you paying them or...

    I am a little confused. Are you paying them or is the state (through a waiver program)? Why are they working 3 hours a day and getting paid for 6? Does your PCA assist with household chores? Why...
  7. Ryan had very good results with this drug. With...

    Ryan had very good results with this drug. With this said, he was prescribed by an endocrinologist and followed by same. Ry's bone density test (ordered by PCP but recommended by physio started...
  8. Replies
    8
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    3,686

    It took us almost a year to get Ry a downgraded...

    It took us almost a year to get Ry a downgraded chair. he has been in a power chair since his injury in 2009. He had all the doctors' on board but it took the DME provider nine months to get it...
  9. Replies
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    7,418

    We have a Sunrise Hydraulic lift that we used to...

    We have a Sunrise Hydraulic lift that we used to transfer Ry from his power chair to a pick up truck that had a chair carrier. We used it at PT appointments in the early days before he could...
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    2,042

    SCI-Nurse. Ry uses a cotton wash cloth because...

    SCI-Nurse.

    Ry uses a cotton wash cloth because he uses a urinal. He uses to cloth not only wipe his penis but also to provide padding to the sharp plastic. I am thankful that after all these...
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    Is this why that Ry urinates more frequently...

    Is this why that Ry urinates more frequently since he had the pump installed? His now has a back up urinal so that he has an empty one at all times (including when I am dumping and washing one). ...
  12. Replies
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    8,089

    I would suggest consulting an endroconogist (sp)...

    I would suggest consulting an endroconogist (sp) fot the osteo. Ry had poor bone density and did Forteo shots for about a year. He also bumped up his calcium and vitamin D. He has been off the...
  13. Leo, You have made it up as you came along...

    Leo,

    You have made it up as you came along thus far. This will be the same. As long as you keep your daughter's safety in the forefront, be creative. Make it up. There are no firm rules as...
  14. Thread: Terrible

    by ekephart
    Replies
    17
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    7,488

    Ry has only has this problem when he was on...

    Ry has only has this problem when he was on antibiotics, a true yeast infection. We treated it and it got better. Since then, he only goes commando and sleeps nude. This allows for ventilation and...
  15. I live in semi-coastal Virginia and hurricanes...

    I live in semi-coastal Virginia and hurricanes are a real issue for us. I firmly believe that everyone needs to have a generator. I know this is not realistic for those in apartments and such but...
  16. We were told in rehab to avoid all rear loading...

    We were told in rehab to avoid all rear loading vans. Not only for the reasons you mention but also because it makes you too vulnerable in parking lots to the idiots that pay no attention to what is...
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    Depending on your Social Security Income ans SDI,...

    Depending on your Social Security Income ans SDI, you may be eligible for no cost B and D. Ry pays nothing for these because he was only 17 when injured and his SSI earning were so low and his...
  18. Replies
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    If they try to talk you out of staying home, it...

    If they try to talk you out of staying home, it means they really do want you there at the bar with them. Yeah, hire some one to help all of you with luggage, etc. OK, you are not going hiking, but...
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    Oatmeal for breakfast. Add berries, apples,...

    Oatmeal for breakfast. Add berries, apples, bananas for variety. Corn must have tons of fiber. It looks the same coming out as going in. I make sure to to get non GMO corn because that is...
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    2,633

    Why can you not have a commode chair? Do you...

    Why can you not have a commode chair?

    Do you not have PCA availability through Medicaid?

    I know that Medicare does not care if you shower and pooping in the bed is OK with them but what is your...
  21. Replies
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    2,633

    Have you thought about getting a shower/commode...

    Have you thought about getting a shower/commode chair? You would have to transfer to it but you could then be in a sitting position. You would need someone who can do bag swaps but I would think...
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    2,778

    You can actually take Tylenol (or generic) and...

    You can actually take Tylenol (or generic) and Motrin (or generic) at the same time as they are chemically different. You do need to make sure you do not exceed daily max for either. I learned this...
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    We have one but Ry has private insurance as...

    We have one but Ry has private insurance as primary and Medicare as secondary and Medicaid third. We used the hydraulic one for years and it was killing me. I have no idea how the cost sharing...
  24. Thread: Stretching

    by ekephart
    Replies
    3
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    1,338

    Have you tries using a stretching loop band? It...

    Have you tries using a stretching loop band? It will probably take some practice but with upper body strength and coordination, you should be able to do it.--eak
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    Replace the starches with more veg options. ...

    Replace the starches with more veg options. Roasted or grilled are yummy. Broccoli, carrots, onions, green beans all work great. Try roasted green beans served with a meat ragu. You will not miss...
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