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  1. Replies
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    I would echo what others have said about the 4...

    I would echo what others have said about the 4 months timetable you've been given--don't believe it. My husband is nearly 2 years out from his injury (T5, ASIA B) and he's still getting things back,...
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    My husband started with 10mg, 3 times per day. ...

    My husband started with 10mg, 3 times per day. Baclofen can make you sleepy, so you want to start lower until you determine what you can tolerate.
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    I'm not terribly familiar with backbones, but the...

    I'm not terribly familiar with backbones, but the Reeve foundation offers peer support groups/mentors as well (I'm a mentor through Reeve, though I work primarily with spouses/partners of the injured...
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    I'm not sure if there is a thread on this or not,...

    I'm not sure if there is a thread on this or not, but my husband was put on prescription strength calcium/vitamin D (something like 30,000/day, once a week) for 8 weeks when he was approximately 18...
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    We have a strap (just a velcro thing that goes...

    We have a strap (just a velcro thing that goes around the mattress underneath the fitted sheet) that my husband can grab onto at night to help with turning over. I tried to find an image of it...
  6. I'm so sorry that you are going through all of...

    I'm so sorry that you are going through all of this. The weeks after discharge are some of the hardest and require a lot of adjustment. Besides CC (a GREAT resource), you may also want to get in...
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    Every injury level is different and requires...

    Every injury level is different and requires different equipment. If he can get enough back, though, to where he can do transfers, then you might be able to make do with a shower bench (this is what...
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    We're in the Bay Area and have not been very...

    We're in the Bay Area and have not been very happy with National Seating and Mobility: super expensive, even with insurance, very slow to get things done, and not incredibly responsive. That being...
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    Outpatient is for people of all ages (they have...

    Outpatient is for people of all ages (they have the international center for spinal cord injury there). Only inpatient is limited to pediatric.
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    One last little update, just because it was so...

    One last little update, just because it was so exciting: today was the last day at KKI, and he walked 100 feet with the KAFOs and a walker. Amazing! HIGHLY recommend this place...
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    We saw Dr. Recio today. He was great. Very...

    We saw Dr. Recio today. He was great. Very excited moving forward.
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    Day one was today...it was amazing. The doctor...

    Day one was today...it was amazing. The doctor spent 2.5 hours with my husband doing a full medical history and a new ASIA exam. In rehab, he was classified as a T4 ASIA A. As of today (nearly 1...
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    They should...he has several doctor's...

    They should...he has several doctor's appointments on Monday morning before his first PT session that afternoon. I'm guessing that it's to assess his overall condition. It's also a good time for a...
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    24'' (540) Titanium Short Tab Pushrims

    My husband bought these a few months ago, used them once, and decided he preferred his natural fit rims better. Would like to sell these quickly (going out of town tomorrow night). $320, includes...
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    Kennedy Krieger

    We fly out tomorrow night for 2 weeks at Kennedy Krieger (my husband starts therapy on Monday). We're excited and a little nervous. Neither of us wants to get our hopes up about it, but at the same...
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    Was he using his hips in a different way? My...

    Was he using his hips in a different way? My husband uses the stationary bike at his gym (SCI-FIT). He couldn't do much at first either-had to have the trainer move legs for him, but now he has...
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    Welcome to CareCure, though I'm very sorry about...

    Welcome to CareCure, though I'm very sorry about the circumstances that led you here.

    Is your dad on morphine? My husband (a T4 injury) was on morphine while in the ICU and he had some crazy...
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    Take things one at a time...there's going to be a...

    Take things one at a time...there's going to be a lot going on when you get home, and a lot to adjust to. Decide what is most important, and tackle those things first. Also, try to be realistic in...
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    Invacare Infinity GC

    Invacare Infinity GC
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    Pressure Mapping/New Cushion

    I think my husband doesn't have the right type of cushion-he's not terribly comfortable after 2-3 hours (with regular pressure lifts), and on a recent 11 hour flight, he felt that the plane's seats...
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    Ask anything you like...that's what this site is...

    Ask anything you like...that's what this site is here for!

    No, he's not walking, though he is being fitted with KAFO leg braces at the beginning of May. He won't be able to do any functional...
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    I don't know that I have much to offer in the way...

    I don't know that I have much to offer in the way of information, but welcome to the site! My husband is a new injury (T4) and CC has been an invaluable resource for us, as I imagine it will be for...
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    My husband was taking part in a bicycling event...

    My husband was taking part in a bicycling event near Lake Tahoe (called Death Ride...ugh. and yes, it was a pedaling type of bicycle...not a motorcycle). He was going downhill around 45 mph, when...
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    We've had the Keurig for about nine months and I...

    We've had the Keurig for about nine months and I love it. I normally only drink one cup of coffee a day (and mys husband might have one cup on the weekends...he's tried to cut out the caffeine since...
  25. Thanks everyone for your input. I'll try to get...

    Thanks everyone for your input. I'll try to get the original prescription from the doctor. We're just tired of feeling jerked around about this...we've been going through the process to get KAFOs...
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