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Type: Posts; User: Chaz19

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  1. Replies
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    Exactly. I’m very frustrated and downright angry...

    Exactly. I’m very frustrated and downright angry at how I’m being treated and Mgh. The best I got after it ultrasound was re-think that prolonged antibiotic use is causing your extreme bloating and...
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    Thanks for the support. Every little bit makes a...

    Thanks for the support. Every little bit makes a difference and I know that I’m not alone with these issues. The pain is what drives me over the edge. I have asked about SIBO multiple times but have...
  3. I have not tried these. I'm going to purchase...

    I have not tried these.
    I'm going to purchase some right now And overnight them.
    In the meantime, is anyone Jerry rig something for the time being. i.e. drilling a small hole into the extension...
  4. Thread: Pseudomonas

    by Chaz19
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    488

    This is very helpful. I’ve been fighting...

    This is very helpful. I’ve been fighting pseudomonas for over a decade and did not know this. All of oregano has been effective but this is one tricky bug. When you’re referring to a scan that you...
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    For what it’s worth, I have yet to find any...

    For what it’s worth, I have yet to find any solutions to this ongoing severe bloating problem. I have tried with diligence call
    - Iberogast
    - FODMAP with dairy and gluten and also gluten and...
  6. How do you remove backflow vacuum pressure from the disposable leg bag?

    What is the highest quality disposable drainage bag?

    Over five years ago, I was Recommended the Urosafe disposable bags. They have the anti-reflux Device and for a while worked well.
    ...
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    Wrists. I don’t have any functional wrist...

    Wrists. I don’t have any functional wrist movement. My fingers are stretched out daily. What I’m curious about is that if there’s a way to naturally find ways to create wrist stability.

    For...
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    C5 wrist Contracture question?

    I'm not sure if this is a rehab related question or care, but I've noticed that some higher cervical injuries (with no wrist movement) sometimes have contractures while others have stretched out...
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    Incredible. I probably don?t need to say it but...

    Incredible.
    I probably don?t need to say it but your transformation is amazing. You must feel very accomplished and your hard work and perseverance is shown. It?s clear that I?m sure you?ve worked...
  10. Thread: Gas crisis

    by Chaz19
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    3,430

    Did you find any relief? Still on the search...

    Did you find any relief? Still on the search myself.
  11. Replies
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    I am so sorry. He and yourself have contributed...

    I am so sorry. He and yourself have contributed so much this community. You've always been there for so many people and it saddens me to even read any of this. I'm completely bewildered – at this...
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    In terms of diet – I am gluten-free,...

    In terms of diet – I am gluten-free, lactose-free, on a low fodmap and keeping sugars low i.e. even watching pineapple consumption. This is not fun but beats pain. However, still having symptoms...
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    I’m still on the hunt for the solution. My diet...

    I’m still on the hunt for the solution.
    My diet could not be any more restrictive without hitting malnutrition.
    Seeing a variety of specialist – but something for me is connected with bloating, low...
  14. C4/5. Incomplete. I’m not against a colostomy; I...

    C4/5. Incomplete. I’m not against a colostomy; I thought about it and entertain the possible solution. However I have predisposition to infection and I’m not a big fan of adding additional holes in...
  15. How to normalize the bowel program for new hires?

    One would think that after a decade and 1/2 that I would be used to this but it still is mentally and physically rough for me.

    Nonetheless, about my and many others personal feelings ? does anyone...
  16. I had this fact listed back in 2006 ? does anyone know if this is still true?

    NIH budget is about $30 billion. If NIH spends $120 million on spinal cord injury research, that means only 0.4% of the NIH budget is spent on spinal cord injury. Two institutes have the...
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    Yes- I use Magic Bullet, MiraLAX and Dulcolax. ...

    Yes- I use Magic Bullet, MiraLAX and Dulcolax. this is the current suggestion by the G.I. physician. Although I am beginning to think that this is way too many "lax" medications and I don't like...
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    I have the capsules. Thinking 6am w/water. Hope...

    I have the capsules. Thinking 6am w/water. Hope to be free around 10.
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    THANK YOU. I will integrate your ideas. All...

    THANK YOU. I will integrate your ideas. All physicians have made things just more complex and outside of the FOD M AP suggestions – most of what has been helpful so far has been found through trial...
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    Does anyone here have recommendations on a...

    Does anyone here have recommendations on a cleansing "clean out" that doesn't destroy your day? I don't mind four hours. However, would like to minimize
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    In terms of "action"; was it two hours of...

    In terms of "action"; was it two hours of movement or more like four? Have had pretty much nonstop G.I. issues and do everything I can to reduce the pain, aberrant bloating and constipation. Never...
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    Hey thank you. I picked up the tablets. If you...

    Hey thank you. I picked up the tablets. If you had a 7:30 AM program – what time would you take them to ensure or reduce incidents of incontinence?
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    Magnesium citrate? How to use?

    As a cleanser, magnesium citrate has been recommended to me for me from the doctor. After numerous various medications used to reduce constipation ? I?m hesitant before taking it. Has anyone had any...
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    My SCI specialist recommended it. Looked into it…...

    My SCI specialist recommended it. Looked into it… Purchase some but I am reluctant after doing some research.
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    but man do I need sleepryl and values NyQuil here...

    but man do I need sleepryl and values NyQuil here and there. I will be careful ? However I need something for insomnia due to trauma ( loss of my brother and my mother within the last 2 years) and...
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