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  1. Replies
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    So sorry you have had these bad experiences. I am...

    So sorry you have had these bad experiences. I am not a good resource for information on baclofen pumps, nor CP, but hope that some of our members who have personal experience with pumps will chime...
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    Prednisone is a powerful steroid...

    Prednisone is a powerful steroid anti-inflammatory. Taking it long term can result in multiple side effects including increased risks for infections, electrolyte imbalances, and even triggering the...
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    Turning is not only important to your skin, but...

    Turning is not only important to your skin, but to your lungs and renal system for good health. While you may get away without turning when you are younger, as you age it is likely to come back and...
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    Both shunting and untethering procedures are used...

    Both shunting and untethering procedures are used to surgically treat syringomyelia; some have both done, while others have only one or the other of these procedures. So recovery depend upon which...
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    Where do you see that I said Medicare provides...

    Where do you see that I said Medicare provides long term homecare? That certainly is not the case for the vast majority of people who have SCI with the care needs they have. We were talking about...
  6. There are very few group homes set up for those...

    There are very few group homes set up for those with SCI. An exception was in New Start Homes in the San Fernando Valley in California, which was located in regular neighborhood homes, initially...
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    Also, petroleum based antibiotic ointments such...

    Also, petroleum based antibiotic ointments such as triple antibiotic ointment are not designed to be applied to mucous membranes and can actual cause infections. Stick to only water-soluble...
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    Be sure you have enough help. Try to avoid...

    Be sure you have enough help. Try to avoid spending hours on the commode...bad for your skin and hemorrhoids both. You may want to use an adult diaper or stay in bed and make a "dam" with disposable...
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    Well, first of all, when changing a SP catheter...

    Well, first of all, when changing a SP catheter it is critical that the new catheter be inserted within 2-3 minutes after the old catheter is removed. Even an old SP stoma can close up sooner. It is...
  10. Have you discussed this with your urologist?...

    Have you discussed this with your urologist? Botox in your bladder (not the urethra) can help to decrease bladder spasm and increase capacity, but it rarely lasts longer than 6 months, so most likely...
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    Urethral or suprapubic? I assume you mean a...

    Urethral or suprapubic?

    I assume you mean a Duette catheter.

    (KLD)
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    You should be pressure mapped on a variety of...

    You should be pressure mapped on a variety of cushions before making this decision. Be leary of a vendor who is pushing a specific cushion, esp. from a company like Invacare who is not recommending...
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    There is some indication that cranberry may...

    There is some indication that cranberry may actually increase the risks for calcium oxalate stones. If stones are found when you have your studies/cysto, they should be sent for analysis to see what...
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    This shows one option for carrying your...

    This shows one option for carrying your wheelchair along:

    http://s21.photobucket.com/user/betheny1/media/jill_beth_golfcart_isla-1.jpg.html

    If, instead of transferring, you would like to drive...
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    Unfortunately SpanAmerica no longer makes their...

    Unfortunately SpanAmerica no longer makes their TurnSelect mattress, but a close replacement is this their APM2:

    http://www.spanamerica.com/apm2.php

    (KLD)
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    Not an intercom, just a bell, but my dad mounted...

    Not an intercom, just a bell, but my dad mounted a wireless doorbell unit on my mom's overbed table and she could push the button to ring the doorbell unit which was located in her live-in PCA's...
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    Yes, it is nearly impossible to determine reflex...

    Yes, it is nearly impossible to determine reflex vs. voluntary movement, or properly assess sensation, in infants. Tests such as an SSEP can be done to help determine some of the damage that exists,...
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    The VA has inpatient palliative care (don't...

    The VA has inpatient palliative care (don't currently call this "hospice" at most VA facilities) for eligible Veterans at most of their hospitals or nursing homes. I don't know of any that provide...
  19. I worked in a VA SCI Center. We were able to keep...

    I worked in a VA SCI Center. We were able to keep Veterans for their entire program...often a 6 month hospitalization.

    Osteomyelitis needs to be properly diagnosed (bone biopsy and culture) and...
  20. If you are talking about your trochanter area,...

    If you are talking about your trochanter area, this is the 3rd most common location for a pressure ulcer in people with SCI (after the ischium and sacrum). Trochanter pressure (ulcers) injuries most...
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    Would recommend that you communicate with both...

    Would recommend that you communicate with both United Spinal Association, and with the PVA about your concerns. They have staff who are specifically gathering information about and communicating with...
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    We cannot do diagnosis-by-internet on our forums....

    We cannot do diagnosis-by-internet on our forums. Dr. Young is very busy with his research in China, and comes to our forums now days only rarely.

    I will e-mail him to see if he can comment, but...
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    The Arizona Health Care Cost Containment System...

    The Arizona Health Care Cost Containment System (AHCCCS) is Arizona's Medicaid agency. California has Medi-Cal, which is the state's Medicaid program. The caregiver program is called IHSS (In Home...
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    No, not unless you had a fistula between your gut...

    No, not unless you had a fistula between your gut and your urinary tract (rare...and you would see feces in your urine!!). Psyllium (which is what Metamucil is generically) is non-soluable fiber; it...
  25. Thread: 30

    by SCI-Nurse
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    You are definitely a survivor! (KLD)

    You are definitely a survivor!

    (KLD)
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