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Type: Posts; User: monkeyrat92

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  1. Questions about Mitrofanoff, and other things.

    I had the surgery to create my Mitrofanoff last year and the recovery started out a little rocky but now that everything has healed I am so happy that I went through with it. I'm having a lot of...
  2. Almost 6 months with mitrofanoff, questions.

    It's been almost 6 months since I had the surgery to create my Mitrofanoff, I had a fistula open through the skin below my cath site but it closed up about a month ago (thank God!!). When the fistula...
  3. The urodynamics test I had done pre-surgery said...

    The urodynamics test I had done pre-surgery said I had about 200cc capacity, but I've pretty much have the same size bladder that I've had since a child, because my bladder sphincter never worked, I...
  4. Sorry it's taken me so long to respond back,...

    Sorry it's taken me so long to respond back, thank you for all the advice.

    I do have a fistula, the hole opened up and now there is that red meaty tissue (whatever it's called) poking through....
  5. That's the million dollar question right now. We...

    That's the million dollar question right now. We believe the hole is coming from the tube that connects my bladder to my stoma, but we can't understand why urine would flow up that channel. My...
  6. The hole is right underneath my stoma, in the...

    The hole is right underneath my stoma, in the middle of the incision. There weren't any drains there, my doctor and his nurse thought that it could be a fistula, but for now it's just kind of wait...
  7. New Mitrofanoff, need some advice, please! =)

    I've been Googling Mitrofanoffs and this forum keeps coming up so I figured I would ask a few questions, if y'all don't mind.

    On July 17th of this year I had the surgery to make it able for me to...
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