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    Is this a type of spasm?

    Gary has NMO for 27+ years. Lots of spinal damage in the neck and chest area. He recently started Rituxan, about 3 weeks ago was his last dose. Now he has started with involuntary legs stretches...
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    probably can't blame Uro for lack of screening....

    probably can't blame Uro for lack of screening. Kind of expensive to keep getting "preventative" test. Yes, Medicare pays for most of it, but when you add it in with a neurologist, PCP, and all their...
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    Well, gary had 8 marble sized stones and some...

    Well, gary had 8 marble sized stones and some small ones removed from the bladder yesterday. He goes this Wed to have the large one surgically removed. Uro did some research on Cellcept and doesn't...
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    Gary's only has stones in the bladder and the...

    Gary's only has stones in the bladder and the right kidney. Could damage to his spine contribute to this? Most of his damage is on the right side of the body
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    Since he had this recently, he has been really...

    Since he had this recently, he has been really good about drinking to keep the urine diluted. No family history. I cath him throughout the day. No diet problems with this either. His stones are not...
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    HELP ASAP for formation of kidney stones

    Gary, my husband, has NMO and had a bad bout with kidney stones 1 1/2 years ago. He had a bladder full and one in one kidney that was larger than a golf ball. After busting of the one in the kidney...
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    some key issues that make Devic's and MS a little...

    some key issues that make Devic's and MS a little different. Of course, the lack of brain lesions, although there have been some with a few brain lesions and positive for Devic's. My husband is one...
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    been using one for years. I don't think anything...

    been using one for years. I don't think anything about the DO on the end. now, my husband and I use him for general care. Anything nerve wise, we go to a neurologist
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    thanks. today is a better day although it started...

    thanks. today is a better day although it started out ify. Medicare part d wanted authorization for the IV solumedrol Gary was to get 2 days ago. His disease is abosolutely necessary to get the...
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    you don't understand, no condom cath, the pee ...

    you don't understand, no condom cath, the pee won't come out, must be cathed. Doesn't do well with a foley and leg bag. He tries to stay as active as possible and the foley gets in the way. We did...
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    He has a spastic spinchter ( however you spell it...

    He has a spastic spinchter ( however you spell it ) due to spinal damage by NMO. He knows that he has to go, knows how much, but when it comes time, occasionally, the muscle will let a very small...
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    caregiver rant! Bear with me

    I just need to vent a moment. There are no solutions to this, so all I can do is rant. We are TOO POOR to afford the treatment Gary needs. He has had Devic's / NMO for a wonderful 25+ years....
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    as usual, living in rural America means you are...

    as usual, living in rural America means you are stuck with NOTHING
    nos studies in Mississippi or tennessee that he could do
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    gary has MAJOR spasticity which deems it near...

    gary has MAJOR spasticity which deems it near impossible to travel far. His neuro is 2 hours away and puts him down for about a week. He has attacked after the trip. Done the baclofen and all with...
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    butwhere? we are in Mississippi and can't travel.

    butwhere? we are in Mississippi and can't travel.
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    botox for the bladder

    Is botox injects still considered experimental for a neurogenic bladder? If so, I know medicare won't pay for the meds. Any idea on what botox cost?
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    best caths for intermittent cathing

    I need to know a good, flexible catheter for a male. I am the caregiver, the one cathing and have had much trouble. The urethra is drying before I can get the cath in. Painful for him since it has...
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    4ap

    You can search 4 aminopyridine on the net and find much stuff. The national MS society has reports on this working. My husband has Devics, MS's evil twin, and has been on it for years. Does him some...
  19. Thread: Devics or NMO

    by Amelia
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    I was just checking. I am on several forums and...

    I was just checking. I am on several forums and keep up with stuff. Gary, my husband, has had NMO for 25+ years, but was only dx'd a little over a year ago.
  20. Thread: Devics or NMO

    by Amelia
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    Devics or NMO

    I would be curious to know anyone who has Devic's / NMO?
  21. Thread: New Here

    by Amelia
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    BTW, welcome. I have found out a lot of info here

    BTW, welcome. I have found out a lot of info here
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    I was "taught" in the hospital YEARS ago on the...

    I was "taught" in the hospital YEARS ago on the How to procedure for the common person. But when you have a spastic sphincter or flacid bowels or the many other "things" that we all deal with, no one...
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    correct way to caterize

    Many of your were probably taught how to correctly catherize before you left rehab / the hospital. As a Devics patient, everything has been a gradual / half taught lesson in a quick hospital...
  24. Thread: New Here

    by Amelia
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    Did they by any chance do a blood test for...

    Did they by any chance do a blood test for Devic's on you?
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    before medicare part D was initiated, drugs like...

    before medicare part D was initiated, drugs like this was accessible to the ones who could not pay, by foundations such as NORD. They helped Gary get Copaxone, during his "MS" days. We have a friend...
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