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Type: Posts; User: Shana

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  1. Replies
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    I didn't even meet the surgeon, the whole thing...

    I didn't even meet the surgeon, the whole thing was BS. I was discharged within 24 hours of my surgery. The hospital got me home health care, but the PT hasn't worked with a paraplegic or broken...
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    Femur Break in para

    About a week ago I broke my right femur bone. I was trying to pull my dog up the bed he weighs about 75lbs. As I was pulling on him I heard a loud crack. So I went to the hospital and had a rod and...
  3. Thread: Quad Pod help

    by Shana
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    2,304

    Quad Pod help

    I've been in my chair for 11 years now and I'm starting to gain some weight. It's mainly in my stomach and I can't figure out how to exercise that area. I'm a para/quad my paralysis start at T-4. I...
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    Well now I'm worried :( I'll try to get to the ER...

    Well now I'm worried :( I'll try to get to the ER asap. I may not be able to go until Monday. I've notice the swelling goes down a little but never all the way. Is there any symptoms I should pay...
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    Need advise (sci nurse)

    I noticed about 4 days ago that my left leg was noticeably bigger than my right. I've tried elevating it and staying out of my wheelchair for the day but I can't get the swelling to go down. There is...
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    Thanks, I'm just gonna be me and see what...

    Thanks, I'm just gonna be me and see what happens. When anything new comes along I research it and move on. I've learned this life is easier if I go with the flow..lol
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    It's crazy because my doctor says its involuntary...

    It's crazy because my doctor says its involuntary spasms. But this is the thing, my paralysis starts right under my chest, bra strap level. I've been getting better balance gradually, I can tell a...
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    Stomach muscles return??

    I was wondering if anyone with TM has gotten return back in their stomach muscles? I've been noticing a that when I move around that there is a restricting feeling in my stomach. Like someone is...
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    Thanks guys, I do have real magic bullets I order...

    Thanks guys, I do have real magic bullets I order them online. I can't have a commode chair, I have no help at home during the day except my nine yr old who I home school. I'd rather save her from...
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    Bowel routine suggesions

    I'm so over this shit literally. I can't get a bowel routine down. I'm either constipated for days and constantly cramping or if I take stool softeners I cant tell when I need to go. I use magic...
  11. Thread: Lower back pain

    by Shana
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    2,507

    willingtocope, I'm so sorry this moved so...

    willingtocope, I'm so sorry this moved so progressively.. My mother in law lost her husband two years ago to cancer.. It moved just as fast and I believe the same kind.. He lasted 9 wks after his...
  12. Thread: Lower back pain

    by Shana
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    2,507

    Did they figure out what was wrong? I'm sorry for...

    Did they figure out what was wrong? I'm sorry for your loss was this issue the reason for her passing? If it was a tumor or cancer would something show in my blood work? I recently had a TIA and they...
  13. Thread: Lower back pain

    by Shana
    Replies
    6
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    2,507

    Lower back pain

    I've been having lower back pain for about a year now.. It's progressively gotten worse.. At first I thought it was my kidneys because that's where the pain is.. A recent stay in the hospital has...
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    thanks, I did visit those sites. and most sites...

    thanks, I did visit those sites. and most sites are repetitious so I was hoping to get some personal incite from people who has it.. but thanks again..
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    Charcot-Marie-Tooth Disease

    I was hoping someone could give me any insight on this disease.. what are the best treatments? are there any new treatments? has any one who has this, taken the 4-ap drug for it? if yes, did it help...
  16. Thread: Dr. Wise Young..

    by Shana
    Replies
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    2,269

    Dr. Wise Young..

    I'm sure your tired of these questions, so I apologize ahead of time..LOL But I've looked on here and couldn't find anything on my question.. Could the 4-AP drug help with Charcot-Marie-Tooth...
  17. Thread: stoma insight

    by Shana
    Replies
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    1,729

    thanks gjnl.. SCI-Nurse, if my band aid...

    thanks gjnl..

    SCI-Nurse,
    if my band aid holds so my stoma don't leak, I don't have leaks. It depends on how I feel. I can tell when my bladder is full. I can feel the discomfort of it especially...
  18. Thread: stoma insight

    by Shana
    Replies
    10
    Views
    1,729

    stoma insight

    I've been looking for some info on getting a stoma revision. My stoma from my Mitrofanoff ALWAYS leaks.. My last year has been made up of band aids. urine accidents (only from my stoma) and UTIs. I'm...
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    I never leak through my urethra, just the stoma.....

    I never leak through my urethra, just the stoma.. and it even leaks a 200cc.. unfortunately I think your right on the revision. I was just hoping to fix it with out another surgery.. and it is the...
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    Life after Mitrofanoff

    It'll be a year in July that I had my surgery. Over all I was quite pleased with the out come. But then I started having problems with the stoma. First I wonder if its due to where I had it put. Mine...
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    I took laxatives about 4 days ago, and had a...

    I took laxatives about 4 days ago, and had a bowel movement.. It was loose and no a whole lot. I'm not sure just how much I should be going. My eating habits arn't normal, I eat once a day and it...
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    Bowel Blockage??? Help

    Has anyone had a blockage before?? I need to know what it felt like.. I have a pain in my stomach that I can't explain. I feel like I'm going to throw up. And my head hurts but it's manageable for...
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    Hand contols in car instead of van???!

    I've drove with hands controls many times. Resently I bought a car so I can save money on gas. I getting my handcontrols installed very soon. But I'm worried I'm not going to like them in the small...
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    He's in his late 20s.. I'm friends with his mom.....

    He's in his late 20s.. I'm friends with his mom.. He has a bad pressure sore on his butt right now that it just healing.. He's limited on how long he can be in his chair. Like me the area he lives in...
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    Spine is curving.. Causing pain

    Is there any way to reshape your spine?? My friends spine is curved really bad. He's in a lot of pain and can't stay in his chair much. Also he has a prussure sore on his butt by his tail bone.. So...
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