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  1. Replies
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    Maybe you need to create another forum for people...

    Maybe you need to create another forum for people who believe there will never be a cure :-)




    Thanks Jim, it would be good if it was published - not everyone is in the US.
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    Thanks Jim, all sounds great. Your thoughts on...

    Thanks Jim, all sounds great. Your thoughts on the arm doing the walking training alone before the cells is very interesting.

    Is the protocol that was approved for the walking training available...
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    I bet everyone has these feelings from time to...

    I bet everyone has these feelings from time to time, I know I do. But maybe they are best kept for your bedroom/family/friends rather than in a forum where everyone else is in the same situation and...
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    I think Jim was referring to the stem cells for...

    I think Jim was referring to the stem cells for compassionate use. Obviously you are correct rehab alone doesn't need compassionate use.
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    Isn't that was is proposed? After all the rehab...

    Isn't that was is proposed? After all the rehab people will have the ability to walk on their own to keep it up.

    Or have I missed something and you'll need constant rehab forever? If thats the...
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    The stem cells.

    The stem cells.
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    Is there a waiting list started for this? I...

    Is there a waiting list started for this? I imagine there will be a big queue of people wanting to do it.

    Maybe you should start taking deposits, I'd sign up.
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    Wouldn't that mean expecting the stem cells to do...

    Wouldn't that mean expecting the stem cells to do everything?
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    I'd like to think that if this proves to be...

    I'd like to think that if this proves to be successful then its going to be easy in comparison for people to experiment on alternative rehab strategies.
    The intervention is going to be the bit that...
  10. Thanks, thats an interesting point I'd not...

    Thanks, thats an interesting point I'd not thought about before.

    A lot of other trials let people who have had other treatments as long as the period after the first trial is sufficiently long...
  11. Can I ask why you are asking the question? Not...

    Can I ask why you are asking the question?
    Not meaning to infer anything, just want to understand the thinking behind why people would not want to apply for trials - or why you think they might not...
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    Sorry, it was a typo I meant proved.

    Sorry, it was a typo I meant proved.
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    I'd suggest you are complaining about the wrong...

    I'd suggest you are complaining about the wrong thing. The fact that this has only been approved on acute models, and never on chronic (someone please tell me I'm wrong), is the problem. We read the...
  14. Thread: RENETX Update

    by niallel
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    It's a nice idea, maybe they collaborate in the...

    It's a nice idea, maybe they collaborate in the labs, or maybe they just have a drink together when they go to all of these conferences they like to do, so they can pat each other on the back....
  15. There is a good paper on this by Wise here...

    There is a good paper on this by Wise here https://www.travisroyfoundation.org/sci/resources/spinal-cord-injury-levels-classification/
  16. This isn't a cure and they aren't talking about...

    This isn't a cure and they aren't talking about it as such. The mainstream press like to overstate stuff like this, but thats not the fault of the medical community.

    Who knows why they have chosen...
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    Its no closer to a cure, but very positive for...

    Its no closer to a cure, but very positive for those without hand function.
  18. Thread: RENETX Update

    by niallel
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    It's a phase 1 trial so safety is the main aim....

    It's a phase 1 trial so safety is the main aim. Don't know if rehab is going to part of the next phases though.


    The reasoning I was given was:

    I was told Phase 4 for Thoracic injuries - but...
  19. This trial seems to match the description in the...

    This trial seems to match the description in the article:

    https://clinicaltrials.gov/ct2/show/NCT02978638

    No results, but it does indicate they are using the Vocare in a different way.
  20. Is it not this device:...

    Is it not this device:
    https://finetech-medical.co.uk/products/finetech-brindley-bladder-control-system/

    Have a search on the whole of care cure for Vocare and you'll find more info.

    It would...
  21. It's not your imagination, but based on past...

    It's not your imagination, but based on past performance it's a dream that he will bring a new device to market.
  22. Thread: RENETX Update

    by niallel
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    The trial is now recruiting: ...

    The trial is now recruiting:

    https://clinicaltrials.gov/ct2/show/NCT03989440
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    Sticky: Do you mean not posted yet, or not recruiting...

    Do you mean not posted yet, or not recruiting yet?

    If not posted yet, what's this trial?
    https://clinicaltrials.gov/ct2/show/NCT03979742
  24. The way the spinal cord works is dynamic, so new...

    The way the spinal cord works is dynamic, so new connections can be made. It's more like digging tunnels and building bridges to get around a car crash blocking the road, rather than removing the...
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    Sticky: Is this the trial posting -...

    Is this the trial posting - https://clinicaltrials.gov/ct2/show/NCT03979742
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