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Type: Posts; User: melanie75

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  1. No they can't, the TM is now considered a symptom...

    No they can't, the TM is now considered a symptom of the MS. But both are distinguishable from RSD. Some of the treatments overlap among the three, but for now I'm on copaxone, receive IVIg,...
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    I have 3+ neuro disorders, and it's so...

    I have 3+ neuro disorders, and it's so frustrating...and as they're all linked in some way (TM, MS, RSD, encephalitis) it's often impossible to tell which symptoms belong to which disorder, so i just...
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    i have. i love them. i have tm, ms, and rsd. they...

    i have. i love them. i have tm, ms, and rsd. they don't help much for the rsd pain, and they help me most with back pain. even with full-body pain, you should never use more than 3 patches per 24...
  4. TM, MS, RSD, and Encephalitis...anyone else?

    Hi,

    I joined this form almost a year and a half ago when I was first diagnosed with TM. Since then, my life has turned into that of a professional sick person, and I've developed autoimmune...
  5. I brought up the B12 treatment with my doc when...

    I brought up the B12 treatment with my doc when he called me yesterday. His response was that I needed another course of IV Ig in 3 weeks. I'll be seeing an integrative med doc on the 21st and bring...
  6. Thanks soundguy, Right after my last post I...

    Thanks soundguy,

    Right after my last post I was re-hospitalized for 15 days with plasma pharesis and IV Ig treatments. Doc said his goal is for me to be better but not perfect within 3 months. So...
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    Even before my TM, I had sleeping problems and...

    Even before my TM, I had sleeping problems and went to a kinesiologist who gave me an adrenal supplement and told me to eat lots of raw zucchini and celery. It helped a lot. I can't remember the name...
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    Hey Chaz, Thanks for your review of the mac...

    Hey Chaz,

    Thanks for your review of the mac dictate.

    I'm a mac user (at home) and a pc user (at work) and need to get speech recognition software. (I have Transverse Myelitis (C3-T4)). My...
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    Thanks to everyone for your advise. My doc has...

    Thanks to everyone for your advise.

    My doc has prescribed:

    speech therapy - for my speech and cognitive problems
    occupational therapy - for the obvious reasons
    pt - walking as tolerated;...
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    Thanks for all your feedback. Just got out of...

    Thanks for all your feedback.

    Just got out of hospital Tuesday night; HAd the PP and IV Ig. Got the permacath surgery; had a terrible reaction to the ketamine, but all worked out. Had all the...
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    hi hlh, thanks so much for shedding some...

    hi hlh,

    thanks so much for shedding some light. i'll check out jefferson too.

    best,
    melanie
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    KLD and Sue...response and thank you

    Thank you thank you.

    I did join TMA immediately, as did my brother and mother, and got my packet. Just one article was more informative than my doctor.

    I have occasional partial paralysis and...
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    rehab response

    Thanks for your quick response.

    When I was in the hospital, an OT taught me how to use my cane and gave me some basic exercises to do, like flexing my foot and lifting my arm and raising my leg,...
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    TM: when should physical therapy begin?

    Hi,

    I'm newly diagnosed with TM. Since my diagnosis and first hospitalization (tests and IV solumedrol), I have declined (I'm out of hospital 2 weeks and still on prednisone, down to 60mg). I...
  15. Dear Football123, I'm newly diagnosed with TM,...

    Dear Football123,

    I'm newly diagnosed with TM, so I don't have a lot of advice. But I do wish you the best life possible. Maybe my story can help in some way:

    I started having autoimmune...
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    Plasma Pharesis... what should i expect?

    Hi TM friends,

    Apologies in advance: typing is difficult for me today.

    I was diagnosed in September with TM, hospitalized for 1 week on solumedrol, then continued prednisone taper (still on it,...
  17. solumedrol...

    Hi Jeff,

    I was just diagnosed and hospitalized for TM two weeks ago, so I am still in the early stages of recovery (and shock) and am not even certain yet the real cause of my TM. I am 33,...
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