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  1. I just wanted to let you know that we can relate....

    I just wanted to let you know that we can relate. My husband has DEBILITATING neuropathic pain. His butt hurts badly, always. Also has shoulder pain, and is currently battling (for months)...
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    My husband has found some relief with it....

    My husband has found some relief with it. Actually, quite a bit. But, he doesn't like being high all the time. We have tried CBD (only) and had no relief, however, I'm not sure about dosing, etc. I...
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    Jim, can you tell me more about lithium? I...

    Jim, can you tell me more about lithium? I googled it but didn't find a lot. Do you take it? I saw a few studies indicating that it helps some w neuro pain, but there isn't tons of info out there on...
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    He has nerve pain- Burning, burning, burning....

    He has nerve pain- Burning, burning, burning. From the injury level down, which covers most of his body. His quality of life is ZERO, and he is on the verge here. I have no idea what to do anymore....
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    My husband has been using it. It does have opioid...

    My husband has been using it. It does have opioid effects, but milder. It does seem to cause some discomfort when he doesn't take it. Also to me seems like it's giving him some sort of "rebound...
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    I just wanted to say that we're in the same boat...

    I just wanted to say that we're in the same boat here with the pain (my husband is C 6/7). Desperately seeking some sort of solution, and we've tried many. That includes being on opioids for 5 or 6...
  7. I know this post is kind of old.... We're not in...

    I know this post is kind of old.... We're not in your area, but my husband has the same injury (C6/7 ). Just thought I'd reach out in case you are still on here looking for people who get it. We...
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    I saw that there was the possibility of other...

    I saw that there was the possibility of other meds. The only thing is, he (my husband) was booted from pain management for having an extra medicine in his system, and so I'm not sure if narcotics are...
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    Does Baclofen Pump work for NERVE PAIN?

    I think we may be at the end of our rope here. My husband has severe central pain (burning butt and legs 24/7). We've tried all the normal meds (though I have to do some research on what doses of...
  10. My hubby is C6/7 (with zero movement below injury...

    My hubby is C6/7 (with zero movement below injury level) , he transfers independently. I do stand there a lot of the time, but... he does it alone a lot. I help him with difficult transfers (like...
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    Hmm, my husband did try Elavil (amitriptyline)...

    Hmm, my husband did try Elavil (amitriptyline) for a short while. We were never sure whether it helped or not, because he slept 24 hours a day as soon as he started taking it . He would literally...
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    My husband takes Xanax for the burning (nerve...

    My husband takes Xanax for the burning (nerve pain). As the last poster said, (diazepam), It's similar. All benzos seem to work. It was literally like a life saver in the way of pain. Not so much in...
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    With the increased availability of this option,...

    With the increased availability of this option, I'm wondering if I should look into it for my husband. He has burning so badly in his legs and bottom. Has anyone else had luck with it reducing or...
  14. Random loss of Hand function ??? Anyone else experienced this before?

    My husband is a C6/7 , with semi-good function in his right hand, and no function in his left. He woke up about 5 days ago with barely any function in his good hand. He often falls asleep in his...
  15. Thanks to all! I've been reading up myself, and...

    Thanks to all! I've been reading up myself, and what I came up with goes with everything you said. He doesn't have any abdominal pain or other symptoms, BUT this morn he woke up with a fever and high...
  16. Rectal Bleeding ~ a little bit alarmed this morn!

    So my husbands bowel program normally only consists of Digital Stim anymore. We don't use suppositories or anything else.. There is normally no blood at all.
    Last night he wanted to try to do it...
  17. I agree with seeing Infectious disease, and...

    I agree with seeing Infectious disease, and wanted to add that my husband takes Methenamine Hippurate daily to control UTI's. He used to have them chronically (one after another, after another) until...
  18. Thanks Mombo ! I read the whole post, and there...

    Thanks Mombo ! I read the whole post, and there is a lot of helpful information in there. Even one guy who said that he had very little hand function and still manages to do it himself. I'm liking...
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    I feel your pain~ My husband went through months...

    I feel your pain~ My husband went through months of fighting resistant bacteria (MRSA & PSEUDOMONAS) in his lungs. He ended up on IV antibiotics at home, two very strong ones, and this went on for a...
  20. Any Quads doing bowel program independantly? C6/7

    Hi all ~ Well. Its been almost 2 and a half years since my husbands accident. We've been doing the bowel program the same ever since the beginning- In bed with disposable pads.. We don't usually...
  21. My husband gets bouts of AD more often when he...

    My husband gets bouts of AD more often when he has a UTI.. Sometimes its every little thing causing it..to the point that you can't even figure out what it was. Once he had AD on and off constantly...
  22. My husband has had a lot of issues in the area.....

    My husband has had a lot of issues in the area.. we do apply some yeast infection cream from time to time, but the best cure seems to still be just showering often, keeping dry, and the ever...
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    My hubby is a C6/7 and has feeling everywhere~ he...

    My hubby is a C6/7 and has feeling everywhere~ he can't feel hot/ cold.. but has terrible neuro pain - burning mostly.. There have always been a few spots that bug him like crazy .After trying a...
  24. Oxycodone withdrawal experiences ~ Will the spasms ever stop?

    Hope I haven't asked this before.. My husband has been taking 20mg of Oxycodone 5X day since his accident (2.5 yrs) .. We are toying with the notion of getting rid of it, since Xanax works so much...
  25. Poll: I don't believe in " Everything happens for a...

    I don't believe in " Everything happens for a reason" type of mentality. Though in essence , it does , but in a scientific way. Before my husbands accident he worked from morning till night. He was...
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