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  1. Anyone here have an Illeal conduit? Colostomy?

    The love of my life broke his neck in 1992. So, 22yrs+ post injury. C5/6 incomplete. He used a condom catheter until 2006. Indwelling catheter placed during emergency surgery to remove kidney stone...
  2. CNS is much more difficult to treat in comparison...

    CNS is much more difficult to treat in comparison to peripheral. Just a side note...
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    He has tried to 900 mg of GABA Along with Xanax...

    He has tried to 900 mg of GABA Along with Xanax and hydrocodone. Then he replaced hydrocodone With oxycodone. However the oxycodone causes him to nod out. Since the pain has gotten so much worse...
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    Any update, John?

    Any update, John?
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    I respectfully disagree with SCInurse. Vented...

    I respectfully disagree with SCInurse. Vented bags do have an odor. They are no more or less effective than putting a pinhole in covering it with scotch tapeā€¦ From my own personal experience with...
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    Did prialt work?

    Did prialt work?
  7. My husband is in ur same boat

    What, if anything, gives u relief? Have you tried marijuana? A tens unit What drug cocktail do you take?
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    Colostomy and illiovesacostomy

    Anyone out there have both?
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    Central nueropathic pain solutions

    Hi,

    My husband is a c5/6 singe '92, age 17. Fine until 2006 when he Had an emergency surgery is right ureter and right Kidney to remove a large kidney stone. They also inserted an indwelling cath....
  10. Perhaps look into spinal tethering as a cause

    Perhaps look into spinal tethering as a cause
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    Not TX

    Not TX
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    Info on spinal untethering for pain?

    Has anyone had this done? Any info is appreciated? Pain is abdominal.
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    Spouse needs a break...SCI the mistress

    You guys, caregiving is hard. And when there is caregiver burnout we take things out on her disabled loved ones. And when they're hurting, feel less than human, since your resentmentā€¦ They become...
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    Have you considered a nerve block? Unfortunately...

    Have you considered a nerve block? Unfortunately with SCI we have to learn to accept that we sometimes will never have answers to 'why'. It sounds like nerve pain to me. You won't ever find a...
  15. Caregiver/spouse respite---Has made a difference in our marriage

    http://www.lovelikethislife.com/2012/12/caring-for-caregiver-scholarship.html?utm_source=feedburner&utm_medium=feed&utm_campaign=Feed:+LoveLikeThisLife+(Love+Like+This+Life)&m=1


    Matt and I...
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    Def Allen wrench and duct tape! Also the Cripper....

    Def Allen wrench and duct tape! Also the Cripper. Quadtools.com I got one for Matt this year and it has made a huge difference.
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    Go pro or a Sony HDR. It has a Velcro adjustable...

    Go pro or a Sony HDR. It has a Velcro adjustable strap and Matt uses his tongue or pinky on the touchscreen. You can also consider an attachment and pole mounted to your wheelchair when you need it.
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    Colorado

    We live in Texas and you would have access to medicaid more than likely. But to maximize that you would be to also enroll in a waiver program. Those waiting lists are years long. I've spoken to a...
  19. Thread: Nerve Block

    by Gentrie
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    Did your wife end up having it again? We are...

    Did your wife end up having it again? We are considering this similar thing now.
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    Hi John, did you end up having the nerve block?...

    Hi John, did you end up having the nerve block? What was the outcome?
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    Hypo gastric nerve block for pain?

    My boyfriend is a C-5 C6 since 1992. He had an emergency surgery almost 7 years ago and woke up with chronic and severe pain ever since. His baselevel is a six and it goes up from there 365 24/7....
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    Caregiver scholarship: deadline December 23

    Hi everybody, brand-new to this site :-) I came across something that I wanted to share though.



    I am a caregiver myself and think this is a neat opportunity. Share as you see fit :-) Also this...
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