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  1. Hey all, Apologies for the late update. I...

    Hey all,

    Apologies for the late update. I appreciate all the comments and you were all right. My friend is doing a LOT better. Turns out he had two infected abscesses near the wound and spine and...
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    Not sure that's a Tilite problem, it's a...

    Not sure that's a Tilite problem, it's a universal caster bearing problem!

    I replace my bearings minimum twice a year, sometimes twice in the Winter. We have tons of snow here and there's no...
  3. Ertapenem was the stuff that finally erradicated...

    Ertapenem was the stuff that finally erradicated the nasty p. aeruginosa that gave me sepsis. Caught the nasty bug at a cath change and knew within hours it was bad, within a week it was bad news and...
  4. T3 Para Hospitalized w/Sore - Concerned Over His Care

    Hello, posting for a friend. Young guy, T3 para that's around a year post and he's been hospitalized almost since his accident due to a pressure sore in tailbone area and hasn't been able to do rehab...
  5. Some of the people above had good points. I know...

    Some of the people above had good points. I know my spasticity and spasms increases when something's wrong - I see it as a warning signal. I definitely get increased spasticity and spasms with UTIs...
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    Thanks! That's interesting. I just wish I could...

    Thanks! That's interesting. I just wish I could get a definite answer if it's hemorrhoids or ''skin tag'' then I'd know what can be done about it. I'm just guessing it's some sort of both. Laser...
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    I appreciate it! You're in Toronto? I just saw...

    I appreciate it! You're in Toronto? I just saw the first colorectal guy again today - he admitted he had no little experience with patients like me or neuro issues (explains a lot). But he said he...
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    I'm in Ottawa, you? I don't know what stage it...

    I'm in Ottawa, you? I don't know what stage it is, but it's definitely prolapsed and interfering with bowel routine and sitting and spasms (darn I wish I had no sensation). I know it may come...
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    Is there clear guidelines on frequency/max for...

    Is there clear guidelines on frequency/max for Botox? I seem to be getting conflicting information from my team, medical journals and what I read on places like here. Former urologist only did 120...
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    So it comes back, as in right away or eventually?...

    So it comes back, as in right away or eventually? Is it worth it even trying once to see if it helps? I've had no other issues, there's just this one that's a big bother. I was thinking why not try...
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    Refused Banding/Ligation?

    I've had an internal hemmorhoid and large skin tag that keeps coming out for a few years. It's gotten worse and worse with time so I finally got to see a colorectal surgeon about it 6 months ago - he...
  12. - Yes, spasms can make you void through the...

    - Yes, spasms can make you void through the urethra
    - Mucus, even just sediment or a small piece of tissue or blood clot can block an SP tube (flushing it can fix that)
    - Hiprex is for UTIs, not...
  13. So, you're trying to see if an SSRI is going to...

    So, you're trying to see if an SSRI is going to improve pain as well as physical function on top of helping mental health? Did I get that right? I tried several for pain/for mental health reasons and...
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    Um, not so sure you need years of wear for sepsis...

    Um, not so sure you need years of wear for sepsis to happen, just an unfortunately set of circumstances, though I'm sure being worn down doesn't help. Mine happened really quickly, bad UTI so they...
  15. That looks like a neat gadget but not worth 92$...

    That looks like a neat gadget but not worth 92$ EACH eek! Ok, the other version is cheaper at 14$ but still. And think about it, there comes a point when you just can't clean the plastic parts and...
  16. I have the similar pain issues with suprapubic...

    I have the similar pain issues with suprapubic cath changes, you described it as pulling out a knife. Yep, and for me it feels like you're ripping out my bladder and urethra along with it and I get...
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    Aren't people still getting their IPs banned for...

    Aren't people still getting their IPs banned for whatever reason and assume the site is still down? If that's true, it can't help. Looks like the upgrade mess is what lost quite a few people and they...
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    Good question, from what I've heard of people who...

    Good question, from what I've heard of people who had it done due to SCI or whatever, they can either leave it or take it out (I'm guessing in cases like cancer they'd take it out, obviously). I...
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    Thanks, you were quite helpful!

    Thanks, you were quite helpful!
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    Why are Urostomies not reversible?

    This may be a silly question but I can't find the answer anywhere? Why are urostomies not reversible when I routinely hear of reversible colostomies? Is it because there is only so much tubing...
  21. Thread: Drop Foot!!

    by twistties
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    6,880

    I had lots of spasticity as a child on both legs,...

    I had lots of spasticity as a child on both legs, couldn't stand on anything but my tip-toes and they elongated my tendons...I walked and ran for about 15 years afterwards until something else did me...
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    Do your research or get a doctor that's more...

    Do your research or get a doctor that's more informed, because Botox for spasticity is covered by OHIP in all cases. The only time it's not covered is if it's used for migraines...

    Lighten up eh,...
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    Sorry to hear, maybe it's not for you. But it...

    Sorry to hear, maybe it's not for you. But it does sound like maybe you didn't drink enough water? It happens when I don't drink enough. It's like your body tries to draw water when there isn't...
  24. Thread: warm up

    by twistties
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    I spent quite a few years getting paid to...

    I spent quite a few years getting paid to ''camp'' outside for days in frigid weather (military) - you wouldn't pay me any money now since just heading out the door on a regular day bundled up feels...
  25. Thread: Spasms

    by twistties
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    13,690

    He's in Canada. Medical marijuana is legal here,...

    He's in Canada. Medical marijuana is legal here, any primary care physician or specialist can prescribe it if they feel comfortable. I also know a few people taking Nabilone, so there are def options...
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