Search:

Type: Posts; User: Shmueley

Page 1 of 2 1 2

Search: Search took 0.01 seconds.

  1. Thread: Head Support

    by Shmueley
    Replies
    2
    Views
    2,569

    Head Support

    I have a permobil F5 corpus and my head keeps drooping. it takes a lotof energy to hold my head up and it gets exhausting. I have sensory processing issues and have ahard time with changing things...
  2. Replies
    33
    Views
    15,111

    we have a transfermaster bed and it is awesome. ...

    we have a transfermaster bed and it is awesome. split bed so my wife has a normal mattress and I have a pressure alternating one
  3. Those two don't bother me. I hate "Wheelchair...

    Those two don't bother me. I hate "Wheelchair bound" though.
  4. Replies
    1
    Views
    1,024

    Coping with being on a vent

    I don't have SCI, I have a progressive mitochondrial disease which has progressed tothe point where I cant breathe on my own or move.

    I also have PTSD from a sexual assault episode so that is...
  5. Replies
    42
    Views
    26,984

    had itfor 7years,was painful but the rectal...

    had itfor 7years,was painful but the rectal prolapse wascaused by a sexual assault :( :( :( so i did not have anythingdone,even though doctors were recommending it. Just too hard to handle with my...
  6. Replies
    8
    Views
    4,786

    Hmm where do your feet go

    Hmm where do your feet go
  7. Replies
    1
    Views
    2,044

    standing wheelchair with vent

    I am recovering from coloproctectomy,andon vent. Hurts to sit down. probably will for awhile. They OK'ed sitting down for short periods, like rides in the minivan or a trip around the block but...
  8. we should all call them just for kicks

    we should all call them just for kicks
  9. Thread: trach ties

    by Shmueley
    Replies
    3
    Views
    2,934

    trach ties

    got a trach changetoday and the thing around my neck is scratchy

    i have some sensory processing difficulties so this sort of thing really bugs me and makes it hard to focus

    does anyone...
  10. Replies
    6
    Views
    1,552

    i feel like they are always adjusting my vent...

    i feel like they are always adjusting my vent settings... but i am still hospitalized and have RT's coming in every day. i also have a progressive condition so i'm sure that as time goes on the...
  11. Replies
    6
    Views
    1,552

    is it too difficult for caregivers to figure out...

    is it too difficult for caregivers to figure out using 2 diffeent vents
  12. Replies
    6
    Views
    1,552

    spare ventilator

    I used to use a bipap but now that i have a trach and my respiratory function is going down i was told that i need another ventilator. right now at home we have the trilogy. if you're a vent...
  13. Thread: suicide

    by Shmueley
    Replies
    246
    Views
    122,675

    i dont have SCI, but the thought of suicide has...

    i dont have SCI, but the thought of suicide has gone through my head at different times. I have a wife and 2 kids, and for the most part they are what keep me going. my disease is terminal and i am...
  14. This is a major issue I struggle with. My...

    This is a major issue I struggle with. My disability affects so much of my life and has changed it in such a dramatic way that it really is difficult to relate to healthy, able bodied people.

    I...
  15. great video, i have lots of memories about when...

    great video, i have lots of memories about when my older son was smaller and could ride on my lap. no need for a stroller
  16. Replies
    6
    Views
    13,042

    OT is a goodidea. i am supposed to be going to...

    OT is a goodidea. i am supposed to be going to rehab soon,rightnow in the hospital for some other stuff. recovering from proctocolectomy and supposed to be sitting up in my wheelchair soon. I...
  17. Replies
    7
    Views
    3,998

    we were actually looking to get one. im in...

    we were actually looking to get one. im in brooklyn
  18. Replies
    1
    Views
    6,999

    Worried about burnout / respite care

    my wife has a lot going on..she works full time, has 2 kids (one ofthem a newborn) and does a lot of caregiving tasks for me. Even just coordinating nursing care and figuring outwho's going to be...
  19. thanks...idid actually look at some of those...

    thanks...idid actually look at some of those sites just didnt find anything that was active. i didnt join the listserves but figured they would probably be as active in 2016 as USENET
  20. I've got a 6 year old and often go to the...

    I've got a 6 year old and often go to the playground with him, at least i did before i was on bedrest. then there are birthday parties, homeschool co-ops, playdates and so on so often not a day...
  21. Replies
    6
    Views
    13,042

    Bonding with babies

    i have a 2 month old, also have a 6 year old...i cant physically hold my son. when my 6 year old was little, we used these woven wrap things my wife would wrap it around me and the beby would get...
  22. I dont have an SCI, but wasnt sure where i should introduce myself

    i guess moderators could put this where they think it should go? my name is shmuel.. currentlyhospitalized andrecently got a trach.

    just tryingto talkto someone elsewho has one. having some...
Results 1 to 22 of 27
Page 1 of 2 1 2