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  1. Replies
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    Is there anyway you, and then your siblings,...

    Is there anyway you, and then your siblings, could take FMLA leave for weeks/months to assist your parents with this transition, whatever it may be?

    It is a huge amount of time/work/learning to...
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    Very interesting. Thanks for sharing! Too bad...

    Very interesting. Thanks for sharing!

    Too bad it is an anti-cholinergic that has additional side effects (fatigue, possibly long term cognitive effects) that many on this board would like to...
  3. Thread: GJ has passed

    by hlh
    Replies
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    4,316

    I am so sorry to hear of this tragic loss. It is...

    I am so sorry to hear of this tragic loss. It is such a shock.

    GJ's expert contributions here are invaluable, and will continue to be as long as the search engine works.

    NL, your devotion to...
  4. My father is in the same boat. 76 year old L3...

    My father is in the same boat. 76 year old L3 incomplete para - uses forearm crutches and wheelchair. About 12 years out.

    He has just had his second steroid injection, which worked great for...
  5. Thread: Leg bag questions

    by hlh
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    1,027

    Yes, I am familiar with these. Just a little...

    Yes, I am familiar with these. Just a little pricey since they aren't reuseable, and as I recall, hard to get off? He will only use the foley for the day, then take it out. But maybe it is the...
  6. Thread: Leg bag questions

    by hlh
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    1,027

    Thanks Rusty - that is the exactly the one my Dad...

    Thanks Rusty - that is the exactly the one my Dad used! So just using the straps that come with the bag, you were able to secure it sufficiently on your thigh? No stat-lock or or velcro holder for...
  7. Thread: Leg bag questions

    by hlh
    Replies
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    1,027

    Thanks - do you also use the large leg bag? ...

    Thanks - do you also use the large leg bag? Which bag do you use? How do you secure it? Does it also pull sometimes as it fills or when you walk/transfer?
  8. Thread: Leg bag questions

    by hlh
    Replies
    10
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    1,027

    Leg bag questions

    My Dad is an incomplete para who walks with AFOs and forearm crutches. He normally does CIC during the day, and puts in a foley every night. He wants to have the option of sometimes keeping the...
  9. My Dad had two of the waterfall cushions, and...

    My Dad had two of the waterfall cushions, and they cracked in mere months. It may also depend on your size/weight etc. my Dad was 6' 2" and about 215 lbs at the time. Who knows.
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    This is really great to hear Patrick. Thanks for...

    This is really great to hear Patrick. Thanks for sharing.

    Can you tell us a little bit how you chose your surgeon, and why the recovery time was so short?
  11. We also switched to the ComfortTuff cushions. So...

    We also switched to the ComfortTuff cushions. So far so good. My Dad uses a Comfortuff for his elevated toilet seat, and it is in perfect condition after 1 year. The vinyl cushions split so...
  12. Thread: Warfarin???

    by hlh
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    You should see a hematologist to discuss it. You...

    You should see a hematologist to discuss it. You probably should still be on it, but you should discuss your options with a knowledgeable doctor. Your primary care doctor is not knowledgeable...
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    There are few things as wonderful to have as an...

    There are few things as wonderful to have as an escape from the burden of SCI ..... as music. How wonderful you have that talent. We need to keep those fingers going. I hope your surgeon knows you...
  14. Replies
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    I hear you. Aging with SCI is not for the...

    I hear you. Aging with SCI is not for the weak....

    Good luck with the surgery. Come back and let us know how it goes.
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    The carpal tunnel release surgery is only for the...

    The carpal tunnel release surgery is only for the median nerve - not the ulnar nerve. The ulnar nerve is the nerve that controls the pinky and ring finger. So this surgery would not help that...
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    I don't think there are many other papers...

    I don't think there are many other papers publishing well controlled studies of Gentamicin for UTI prevention. We are sharing are personal experiences, and I shared the experiences of my father's...
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    Yes, he uses a new foley every night. He re-uses...

    Yes, he uses a new foley every night. He re-uses collection bags for at least a week or more, washing/bleaching every day. There are several guys on CareCure that are doing this now.

    My Dad is...
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    My Dad's neuro-urologist has been using...

    My Dad's neuro-urologist has been using Gentamicin with her patients for many years - more than a decade for sure. Surprising to me as well, she has not seen patients develop resistant UTIs. ...
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    Miralax is easy, doesn't interact with your meds,...

    Miralax is easy, doesn't interact with your meds, and you can titrate what you need up/down every day based on how things are going. My Dad's GI who is an expert in neurogenic bowel recommended it....
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    We've had our best luck with Sigvaris, Jobst and...

    We've had our best luck with Sigvaris, Jobst and Juzo - the better quality brands. They are not cheap. I think I actually bought our last pairs of Jobst on Amazon so you can see the prices. But my...
  21. I think that is one of the most common sites for...

    I think that is one of the most common sites for SCI folks (especially incompletes) to have pain / neuropathic pain.

    My Dad has had it for years. Like you, his right glute is significantly more...
  22. Sounds like you are looking for something like...

    Sounds like you are looking for something like the "second look" program at Shirley Ryan Ability lab (new name of the Rehabilitation Institute of Chicago).
    ...
  23. Thread: Anyone tried Wii?

    by hlh
    Replies
    8
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    1,983

    Thanks for your input Patrick. Actually,...

    Thanks for your input Patrick.

    Actually, I've been impressed with how an upper body aerobics or free weight routine can give you some cardio, especially if you are a bit deconditioned to begin...
  24. Thread: Anyone tried Wii?

    by hlh
    Replies
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    1,983

    So correct me if I'm wrong.... but I probably...

    So correct me if I'm wrong.... but I probably just want a basic Wii (not a Wii U since my Dad isn't into video games or the fanciest graphics etc..). And then I need to buy the Wii fit package with...
  25. Thread: Anyone tried Wii?

    by hlh
    Replies
    8
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    1,983

    Thanks for sharing your experiences. His arm...

    Thanks for sharing your experiences. His arm range of motion is pretty good, and he needs to work on trunk control. I'm also wondering if some of the games could be a little bit of "cardio"...
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