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Type: Posts; User: specfiction

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    Embryonic Stem Cell Research at Risk

    In the State of the Union last night, president Bush again tried to edge toward a ban on embryonic stem cell research. A few months ago, scientists here and abroad reported creating pluripotent...
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    Very good. This was one of the best talks I've...

    Very good. This was one of the best talks I've seen.
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    Poll: This was very good. My opinion is this: hope for...

    This was very good. My opinion is this: hope for the best, plan for the worst. In the mean time, try to get interested in something that makes you happy.
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    Poll: That was more or less my experience. With the...

    That was more or less my experience. With the exception of my neurosurgeon, the doctors were pretty poor as judged by standards of what one would expect of simular professionals.
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    Poll: If you're surprised by this, you haven't been...

    If you're surprised by this, you haven't been talking to the same doctors I have, or had during my illness. As a group, they were pretty poor both in their knowledge of the condition and in their...
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    Poll: Bottle-necks--> We have a system, and it...

    Bottle-necks--> We have a system, and it works--sometimes. Let's hope it works for us.

    BTW Adi, I'd like to see that picture with the sunglasses again--very Chicago...
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    Poll: Perhaps I'm out of line but...We're all in a club...

    Perhaps I'm out of line but...We're all in a club here that no-one wants to join--it's by invitation only. There's clearly a lot of pain out there--physically and emotionally. Under the...
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    Poll: I hear yea... I was injured when I was 50. I've...

    I hear yea... I was injured when I was 50. I've been injured many times before. I have had an active, physical life. I always thought that when people were injured, they could either die, or recover...
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    Poll: I think that's about right. When we say cure we...

    I think that's about right. When we say cure we have to define what we mean. I think the 5-7 years is reasonable for a treatment that might restore say 20-30% function for the average chronic sci...
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    Poll: Spider-Girl: You said in your profile that you...

    Spider-Girl: You said in your profile that you came to this site for info. Then you said that you thought this site was "pretty dope." Why did you say that? I'm interested. What did you hope to find?
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    Poll: Curt, my experience with SCI is as follows: There...

    Curt, my experience with SCI is as follows: There are several professions involved: researchers, doctors, nurses, nurses' aids, physical therapists, and insurance administrators. Of that group, I...
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    Poll: Adi, I got to say you're looking good. As far as...

    Adi, I got to say you're looking good. As far as the politicians--you've got to vote for the ones who best represent your issues--if you don't, you've only got yourself to blame when you get screwed....
  13. As Rick said, what gives is that Hans is a couple...

    As Rick said, what gives is that Hans is a couple of years away from clinical trials on people. The work he is doing on chronics is being performed in his lab. He has not yet gotten to mice, he is...
  14. I've spoken to Hans Keirstead on several...

    I've spoken to Hans Keirstead on several occasions over the past four years. My son will be working in his lab this summer. He has made tremendous progress with both acute (now going into clinical...
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    I was told by neurosurgeons that they are...

    I was told by neurosurgeons that they are compelled to apply treatment corresponding to a "standard of care" for a particular diagnosis, and according to the neurosurgeon I spoke to Methy.. was not...
  16. Thread: Cure poll

    by specfiction
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    Poll: I hope so.....

    I hope so.....
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    I've been to Project Walk. I know some of their...

    I've been to Project Walk. I know some of their graduates. I know some of their PTs. I've never spoken to anyone treated at PW who was dissatisfied with their experience there. It's a great...
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    I like their "Under Construction" page. Hope that...

    I like their "Under Construction" page. Hope that the content will be useful.



    Thanks......
  19. Thread: Cure poll

    by specfiction
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    Poll: What's the poll question? A complete cure? I'd...

    What's the poll question? A complete cure? I'd settle for an average 10-25% improvement in chronic SCI. That would greatly enhance many peoples' lives. There are many treatments (most) that are not...
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    Thanks for that, but the news I'm looking for is...

    Thanks for that, but the news I'm looking for is work on the astrocyte scar. I've had frank conversations with researchers at UCI and UCLA. After a couple of beers it becomes clear that until we can...
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    To me this makes little sense. Methylprednisolone...

    To me this makes little sense. Methylprednisolone acts on secondary damage, cell apoptosis, etc. With a complete initial injury the likelihood of noticable improvement must be small, while for...
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    Chronic SCI

    Almost everyone I know who has SCI has chronic SCI. However, chronic SCI is hardly ever talked about in terms of clinical treatment. It is obviously hard to treat because of the glial scar that not...
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    Studies of Methylprednisolone for Incomplete?

    It's always annoyed me that methylprednisolone has not been exclusively tested on incomplete SCI victims. Instead of a wide net where a significant signal may be hidden in an insignificant...
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