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    I am trying to get the urodynamics study and I am...

    I am trying to get the urodynamics study and I am actually sharing it with Shriners in Chicago to get a second opinion. We currently only do antibiotics into the bladder to prevent UTIs. They said...
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    Thank you! In regards to the urodynamics, I...

    Thank you!

    In regards to the urodynamics, I will ask what the number was.

    for the reflux, they basically said since the ultrasound shows kidneys are fine, that it’s fine.

    i had asked if the...
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    Bladder Management - Pediatric

    My 3.5 year old son has an overactive bladder and leaks in between caths (cath 4x a day). He has a grade 3 reflux into left kidney, though they said this is okay (ultrasound shows kidneys are fine)....
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    Hi Grammy, thanks for sharing the below. I am...

    Hi Grammy,

    thanks for sharing the below. I am aware of the information, I guess my question is a data collection one. For example, how many percentage individuals that are incomplete have...
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    Correlation between sensation and movement

    Are there any studies about incomplete injuries and if you have any type of sensation at your legs, what the percentage of those individuals also have movement? Is there a correlation, or is there...
  6. Thread: Goosebumps

    by MomNoah
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    It isn’t AD. And it only happens after we our...

    It isn’t AD. And it only happens after we our outside when his legs are cold, and mine are too. I was wondering if you can have a response to the cold, such as goosebumps, while being a complete...
  7. Thread: Goosebumps

    by MomNoah
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    Goosebumps

    My son has been getting goosebumps on his legs when they are cold. Is this any indication of feeling, level of injury or completeness?

    i couldn?t find anything on the threads and it isn?t AD.
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    I hate to go on and on about this, but how many...

    I hate to go on and on about this, but how many injuries who are complete get the chance to have that type of intense rehabilitation? As I mentioned before, I have seen studies that indicate CPG gets...
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    Jim, I'm sure he does. This isn't personal. ...

    Jim, I'm sure he does. This isn't personal. This is his job, I'm sure he gets paid. And it is great that he loves his job and he cares about it. But, people on this forum are the stakeholders. ...
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    All of us people.... I have read the paper, and...

    All of us people.... I have read the paper, and many others. They can walk using CPG, who knows if the intense rehab of 6 hours a day did that or it was the cord blood, or the lithium. There are...
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    Clearly, whatever Jim and Wise are doing isn't...

    Clearly, whatever Jim and Wise are doing isn't working. I don't understand why everyone is so obsessed by this one path that clearly isn't working. I've been on here for two years and I think Wise's...
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    Sticky: We have been waiting to hear news of a research...

    We have been waiting to hear news of a research study for my son. Every month, the answer is "in a month".

    Bascially, what I'm saying is, there are no updates because there are no updates. They...
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    Thank you!

    Thank you!
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    Any results or what they are seeing?

    Any results or what they are seeing?
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    BioArctic?s SC806

    Anyone have information into this?

    https://labiotech.eu/bioarctic-spinal-cord-injury-treatment/
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    Not sure. But they told me they see kids with...

    Not sure. But they told me they see kids with SCI. We did urodynamics a whole back, that were inconclusive but noted that he has a spastic bladder - he will pee out before full. At home, he can get...
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    Okay, I clearly asked multiple times my sons...

    Okay, I clearly asked multiple times my sons urologist doctor, at one of the biggest Sick Kids hospitals in Canada, about this reflexive voiding, because my son does that. And he said it is FINE. He...
  18. So both activate the reflexes? Didn't we already...

    So both activate the reflexes? Didn't we already know this? Or, are they saying function can be gained? What frequency and waveform do I use on regular e stim then?
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    Hmm thanks everyone! I'll keep an eye on it, we...

    Hmm thanks everyone! I'll keep an eye on it, we just started doing walking overground and I just notice it when doing that.
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    Maybe, I just wasn't sure because I always...

    Maybe, I just wasn't sure because I always assumed the extensor at the knee is a spasm, and flexor at the elbow, but not flexing of the knee, and it's new.
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    Walking - Resisting extension

    I am use to my son having a knee extension that I break gently when I do steps with him. Recently, when I move his leg forward to step, he sometimes resists extending his knee. What could that be?
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    We did go to Holland Bloorview, but the support...

    We did go to Holland Bloorview, but the support we have with them for PT/OT is done now.

    I did reach out to our coordinator at SCI Ontario and waiting for response.

    I am sort of set on...
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    We thoughts about OHIP, but because the treatment...

    We thoughts about OHIP, but because the treatment is technically offered here (rehab) they won't cover it. It's more for surgeries and cancer treatment type situations that are not offered in...
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    Yes, we have gone there and are going again for...

    Yes, we have gone there and are going again for two weeks. They are fantastic but the problem is they only provide one therapist at a time, which makes it hard to do locomotive training, and they...
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    Sticky: That's so exciting! Do you use any devices to...

    That's so exciting! Do you use any devices to walk? Noah is still in full harness support, but this new movement is very exciting. Plus he is 2, not exactly an ideal age to ask him to try harder...
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